As a teacher, I know the best way to learn is to ASK Questions. The trouble with being in a doctor’s office, getting a serious diagnosis or learning about a comorbidity for the first time, as so often happens with cystic fibrosis, is a person can become flooded. The emotions may take over and it won’t be till much later that the questions appear. True, these questions may have already been addressed, but the student may not have been ready.
I notice with CF patients, many are strong, have already learned the answers from reading through a site like ours at cysticfibrosis.com. They show up at the clinic with lots of question.
Yet some people need to find their voice. So asking people in the same situation seems like a natural way to begin.
Something may occur to them on the way home in the car or in the middle of the night…yes, we are 24/7! And global…so someone is probably up and ready to respond from a faraway time zone.
Maybe they’ll need to word the questions different ways. A discussion will well up with many voices of experience and newbies joining in.
There will be “ah ha” moments, as people share notions, ideas, solutions, experiences, links, and expert opinions from their own research and from their clinics and health care providers.
Now, not just the mind has been addressed, but the heart also, as caregivers and patients nurture each other out of worry and fret into confidence and adherence through conversation and love.
This is a part of learning curve for seriously ill patients that may not ever get measured.
This is happening at sites like ours, around the world….24/7.
I notice with CF patients, many are strong, have already learned the answers from reading through a site like ours at cysticfibrosis.com. They show up at the clinic with lots of question.
Yet some people need to find their voice. So asking people in the same situation seems like a natural way to begin.
Something may occur to them on the way home in the car or in the middle of the night…yes, we are 24/7! And global…so someone is probably up and ready to respond from a faraway time zone.
Maybe they’ll need to word the questions different ways. A discussion will well up with many voices of experience and newbies joining in.
There will be “ah ha” moments, as people share notions, ideas, solutions, experiences, links, and expert opinions from their own research and from their clinics and health care providers.
Now, not just the mind has been addressed, but the heart also, as caregivers and patients nurture each other out of worry and fret into confidence and adherence through conversation and love.
This is a part of learning curve for seriously ill patients that may not ever get measured.
This is happening at sites like ours, around the world….24/7.