How ya copin wit CF?

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cfgalbilliex

New member
Hey guys xxx cfgalbillie ea agen :) I wud absoutely love to know how are yo all coping wit ya cf? I h8 havin CF cuz it means i have to take tym out of my tym to do me physio n nebiliser, take me antibiotics. But i dnt mind taking creon to be honest cuz dey go wit ya food ennit but if ur out and forget ya creon !OOPS! ya cnt ave anyfink fatty to eat :-S I have neva realli forgotten me tablets cuz i started taking them by hand myself wen i was about 7 y.o so ... i am quite used to it :) <img src="i/expressions/brokenheart.gif" border="0"> It does affect me relationship wit bois cuz dey fink it a disease dat can spread but it can't xxx<img src="i/expressions/face-icon-small-blush.gif" border="0"> I do feel quite embaressed wen i take me creon becuz people always ask me wt dey are and y i take em but i just say becuz i'm not a fit as u or i'm not very well <img src="i/expressions/face-icon-small-blush.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> But i'm happy becuz i know i am not the onli person in da world wit CF n there are plenty of people I can ask advice off <img src="i/expressions/face-icon-small-smile.gif" border="0"> Speak to ya all soon xxx
Plz reply to me question n hope
to speak to ya soon :)
xxxBilliexxx
 
C

cfgalbilliex

New member
Hey guys xxx cfgalbillie ea agen :) I wud absoutely love to know how are yo all coping wit ya cf? I h8 havin CF cuz it means i have to take tym out of my tym to do me physio n nebiliser, take me antibiotics. But i dnt mind taking creon to be honest cuz dey go wit ya food ennit but if ur out and forget ya creon !OOPS! ya cnt ave anyfink fatty to eat :-S I have neva realli forgotten me tablets cuz i started taking them by hand myself wen i was about 7 y.o so ... i am quite used to it :) <img src="i/expressions/brokenheart.gif" border="0"> It does affect me relationship wit bois cuz dey fink it a disease dat can spread but it can't xxx<img src="i/expressions/face-icon-small-blush.gif" border="0"> I do feel quite embaressed wen i take me creon becuz people always ask me wt dey are and y i take em but i just say becuz i'm not a fit as u or i'm not very well <img src="i/expressions/face-icon-small-blush.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> But i'm happy becuz i know i am not the onli person in da world wit CF n there are plenty of people I can ask advice off <img src="i/expressions/face-icon-small-smile.gif" border="0"> Speak to ya all soon xxx
Plz reply to me question n hope
to speak to ya soon :)
xxxBilliexxx
 
C

cfgalbilliex

New member
Hey guys xxx cfgalbillie ea agen :) I wud absoutely love to know how are yo all coping wit ya cf? I h8 havin CF cuz it means i have to take tym out of my tym to do me physio n nebiliser, take me antibiotics. But i dnt mind taking creon to be honest cuz dey go wit ya food ennit but if ur out and forget ya creon !OOPS! ya cnt ave anyfink fatty to eat :-S I have neva realli forgotten me tablets cuz i started taking them by hand myself wen i was about 7 y.o so ... i am quite used to it :) <img src="i/expressions/brokenheart.gif" border="0"> It does affect me relationship wit bois cuz dey fink it a disease dat can spread but it can't xxx<img src="i/expressions/face-icon-small-blush.gif" border="0"> I do feel quite embaressed wen i take me creon becuz people always ask me wt dey are and y i take em but i just say becuz i'm not a fit as u or i'm not very well <img src="i/expressions/face-icon-small-blush.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> But i'm happy becuz i know i am not the onli person in da world wit CF n there are plenty of people I can ask advice off <img src="i/expressions/face-icon-small-smile.gif" border="0"> Speak to ya all soon xxx
Plz reply to me question n hope
to speak to ya soon :)
xxxBilliexxx
 
C

cysticfibrosisgirl

New member
Hello I to have CF
I take Ultrase MT 20's 10 with meals and 8 with snacks. I do chest PT everyday two times to 4 times a day. I don't like it when people ask me why I take pills before I eat becuase sometimes they know why and they just keep asking..

I don't see a doctor anymore becuase my CF is to hard to work with that I am now going to be on c02 and I am not going back to the doctors anymore.
My PFT's are low and are not going up..

Hope to talk soon!
 
C

cysticfibrosisgirl

New member
Hello I to have CF
I take Ultrase MT 20's 10 with meals and 8 with snacks. I do chest PT everyday two times to 4 times a day. I don't like it when people ask me why I take pills before I eat becuase sometimes they know why and they just keep asking..

I don't see a doctor anymore becuase my CF is to hard to work with that I am now going to be on c02 and I am not going back to the doctors anymore.
My PFT's are low and are not going up..

Hope to talk soon!
 
C

cysticfibrosisgirl

New member
Hello I to have CF
I take Ultrase MT 20's 10 with meals and 8 with snacks. I do chest PT everyday two times to 4 times a day. I don't like it when people ask me why I take pills before I eat becuase sometimes they know why and they just keep asking..

I don't see a doctor anymore becuase my CF is to hard to work with that I am now going to be on c02 and I am not going back to the doctors anymore.
My PFT's are low and are not going up..

Hope to talk soon!
 
C

cfgalbilliex

New member
Thank - you for repling to my message xxxBilliexxx
<img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
C

cfgalbilliex

New member
Thank - you for repling to my message xxxBilliexxx
<img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
C

cfgalbilliex

New member
Thank - you for repling to my message xxxBilliexxx
<img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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