I am new to this forum and some what new to CF since my son has been diagnosed 2 years ago. He was sent through all the testing that goes along with it and had a genetic test was done. We were informed he doesn't have the I think "80 common genes" for CF. He has the respiratory problems but not digestive. I assume that because of the unknown gene that is why he is not as bad as others. Should carriers find out what they carry ? Its weird that neither of us (my husband or I) know of anyone in our families that have this. My father & I have asthma, allergies and that sort of thing. It took me a long time to believe it even though the tests tell me different. Since then he has had 2 hospital stays, 1 just last month which woke me up. He has been very healthy and this episode just shows how quick it can turn south. He is better again and life is back to normal for now. What ever normal is ! LOL
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I am new here
- Thread starter ctelenda
- Start date
NoDayButToday
New member
Just wanted to say welcome, and also it isn't that weird or unusual for a CF patient not to have any other CF in their family. I was the first (as of now, the only) CFer in my family.
Thank you, ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> My son is 10. Well, I shouldn't rack my brain anymore about who in the family could have had it. One of my initial thoughts was, what are the odds of me & my husband being carriers. Too bad that isn't a test when you get pregnant. Or at least when I was pregnant they didn't do that. And if they don't now, it should be. It won't change the out come, but you sure can have the right treatment from the beginning. I'm sorry he wasn't detected sooner.
It is definitely a shame that not all states have testing for CF as one of the newborn tests. I believe there are only 9 or 10 that do it. It would definitely help in a child's life if the diagnosis was made early. Iknow they are trying to make it nation wide for the testing. To help you out with the odds of being a carrier...the stats show 1 in 25 people is a carrier. It's strange isnt it...that many people are carriers...and most don't even know it...until a child is born with CF. I have the most common gene....twice. So I have both respiratory and digestive. I have done well though most of my life...and continue to do so. If you have any questions...I'd be glad to answer whatever I can. Take Care!
Dea
31 w/CF and CFRD
Dea
31 w/CF and CFRD
<blockquote>Quote<br><hr>One of my initial thoughts was, what are the odds of me & my husband being carriers<hr></blockquote>
Connie-
If your husband is the father of your son w/CF then both you and your husband are definately carriers. Both parents must be carriers to have a baby with CF. Your odds of having another baby with CF are 1 in 4.
Connie-
If your husband is the father of your son w/CF then both you and your husband are definately carriers. Both parents must be carriers to have a baby with CF. Your odds of having another baby with CF are 1 in 4.
i never even heard of cf before until my daughter was diognosed 1 year ago.
What a terrible time it was.
And also when i found out, i was pregnant with my second daughter.
being pregnant kept me sane only because i had to.
thankfully she has not got cf and is not a carrier........if only it was the same for my first daughter.
what do u think off findin out if your other children are just carrier of 1 cf gene
What a terrible time it was.
And also when i found out, i was pregnant with my second daughter.
being pregnant kept me sane only because i had to.
thankfully she has not got cf and is not a carrier........if only it was the same for my first daughter.
what do u think off findin out if your other children are just carrier of 1 cf gene