Im 15, i have cf. diagnosed at 11 because i had nasal polyps. never had problems with my lungs. never been hospitalized ive only had one infection. I didint have to start doing any treatment until i was like 13? because i got an infection. they made me do hyper sal and tobi and then only hypersal once a day. and acapella. i never get cough but i need surgery to get rid of my polyps like almost every year:/ so i got deppressed and havent been doing any of my treatment. im on prozac and seeing a therapist. ive never met anyone with cf and i just joined this website today. is anyone else not doing their treatments like me. i dont talk to it with anybody because i feel like nobody understands.
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I dont do my treatments
- Thread starter tnessa
- Start date
Im 15, i have cf. diagnosed at 11 because i had nasal polyps. never had problems with my lungs. never been hospitalized ive only had one infection. I didint have to start doing any treatment until i was like 13? because i got an infection. they made me do hyper sal and tobi and then only hypersal once a day. and acapella. i never get cough but i need surgery to get rid of my polyps like almost every year:/ so i got deppressed and havent been doing any of my treatment. im on prozac and seeing a therapist. ive never met anyone with cf and i just joined this website today. is anyone else not doing their treatments like me. i dont talk to it with anybody because i feel like nobody understands.
luisaguidoux
New member
Hi tnessa,
I don't have CF but when I read your message I had to write something about it, because what I DO know is how being depressed feels like.
I was diagnosed with clinical depression when I was about your age - I'm 22 now. My shrink prescribed me prozac as well. I've been taking it since then - along with other medications. But it took a long while for me to start feeling ok. I actually tried to kill myself 7 times (end up in the hospital in all of them)... it was a hard time. I only started getting better when I forced myself to feel better.
But the advice I give you is: you have to help yourself. Prozac doesn't work by itself - depression is a disease, just like CF. When you're feeling down, you have to push yourself to eat, to take a shower, to get out of bed. And you'll start seeing that everything will get easier then - even doing your CF treatment, which is REALLY important for you. You can't see the difference now, but I assure you'll do in a few years. And can you imagine the situation? There you are, few years from now, feeling all good about everything emotionally, but not healthy? That sucks! So, sweetie, take care of yourself in all possible ways for your future's sake, ok? Do your CF AND your psychiatric treatment. Take care.
I don't have CF but when I read your message I had to write something about it, because what I DO know is how being depressed feels like.
I was diagnosed with clinical depression when I was about your age - I'm 22 now. My shrink prescribed me prozac as well. I've been taking it since then - along with other medications. But it took a long while for me to start feeling ok. I actually tried to kill myself 7 times (end up in the hospital in all of them)... it was a hard time. I only started getting better when I forced myself to feel better.
But the advice I give you is: you have to help yourself. Prozac doesn't work by itself - depression is a disease, just like CF. When you're feeling down, you have to push yourself to eat, to take a shower, to get out of bed. And you'll start seeing that everything will get easier then - even doing your CF treatment, which is REALLY important for you. You can't see the difference now, but I assure you'll do in a few years. And can you imagine the situation? There you are, few years from now, feeling all good about everything emotionally, but not healthy? That sucks! So, sweetie, take care of yourself in all possible ways for your future's sake, ok? Do your CF AND your psychiatric treatment. Take care.
luisaguidoux
New member
Hi tnessa,
I don't have CF but when I read your message I had to write something about it, because what I DO know is how being depressed feels like.
I was diagnosed with clinical depression when I was about your age - I'm 22 now. My shrink prescribed me prozac as well. I've been taking it since then - along with other medications. But it took a long while for me to start feeling ok. I actually tried to kill myself 7 times (end up in the hospital in all of them)... it was a hard time. I only started getting better when I forced myself to feel better.
But the advice I give you is: you have to help yourself. Prozac doesn't work by itself - depression is a disease, just like CF. When you're feeling down, you have to push yourself to eat, to take a shower, to get out of bed. And you'll start seeing that everything will get easier then - even doing your CF treatment, which is REALLY important for you. You can't see the difference now, but I assure you'll do in a few years. And can you imagine the situation? There you are, few years from now, feeling all good about everything emotionally, but not healthy? That sucks! So, sweetie, take care of yourself in all possible ways for your future's sake, ok? Do your CF AND your psychiatric treatment. Take care.
I don't have CF but when I read your message I had to write something about it, because what I DO know is how being depressed feels like.
I was diagnosed with clinical depression when I was about your age - I'm 22 now. My shrink prescribed me prozac as well. I've been taking it since then - along with other medications. But it took a long while for me to start feeling ok. I actually tried to kill myself 7 times (end up in the hospital in all of them)... it was a hard time. I only started getting better when I forced myself to feel better.
But the advice I give you is: you have to help yourself. Prozac doesn't work by itself - depression is a disease, just like CF. When you're feeling down, you have to push yourself to eat, to take a shower, to get out of bed. And you'll start seeing that everything will get easier then - even doing your CF treatment, which is REALLY important for you. You can't see the difference now, but I assure you'll do in a few years. And can you imagine the situation? There you are, few years from now, feeling all good about everything emotionally, but not healthy? That sucks! So, sweetie, take care of yourself in all possible ways for your future's sake, ok? Do your CF AND your psychiatric treatment. Take care.
It must be difficult to have to learn a new way of life as a teenager, I am certain you can do it! However, and hopefully, you can be an inspiration to other teens who have to endure some type of self care for better health.My son is 14 with CF and type 1 diabetes, he also struggles with self care, I imagine the teenage years have enough to handle without the added pressure of health concerns, sometimes life gets in the way! But Life is so wonderful and you can enjoy it better and longer by being in compliance with what your CF dictates. The sinus surgery is uncomfortable for sure, my son just had his done and had a great deal of pain plus complications that caused him to have a second one 2 weeks after the first. Depression is hanging there for him also, and I am trying to encourage him to talk to others so he wont feel so alone. You are courageous to seek help and I hope this forum brings you some good solid answers!
It must be difficult to have to learn a new way of life as a teenager, I am certain you can do it! However, and hopefully, you can be an inspiration to other teens who have to endure some type of self care for better health.My son is 14 with CF and type 1 diabetes, he also struggles with self care, I imagine the teenage years have enough to handle without the added pressure of health concerns, sometimes life gets in the way! But Life is so wonderful and you can enjoy it better and longer by being in compliance with what your CF dictates. The sinus surgery is uncomfortable for sure, my son just had his done and had a great deal of pain plus complications that caused him to have a second one 2 weeks after the first. Depression is hanging there for him also, and I am trying to encourage him to talk to others so he wont feel so alone. You are courageous to seek help and I hope this forum brings you some good solid answers!
Aboveallislove
Super Moderator
I didn't write earlier because I don't have CF and I figured you have enough of people out there who don't know what it is like saying the wrong thing. But then I thought that you should know how many people who don't have to walk in your shoes everyday still are thinking about you and wishing they could make it better. So please know that I am thinking of you and praying for you. And I KNOW you can prove that doctor wrong. Right now things really really suck--and I'm sure most people can look back on life and a time when that was the case--but the fact that you took the time to post shows that you know that no matter how rough it is now, it will get better and that you can get there. When our son (who has CF) is your age, I hope he is like you--strong enough to speak up when things are rough and he needs someone to understand. Godspeed.
Aboveallislove
Super Moderator
I didn't write earlier because I don't have CF and I figured you have enough of people out there who don't know what it is like saying the wrong thing. But then I thought that you should know how many people who don't have to walk in your shoes everyday still are thinking about you and wishing they could make it better. So please know that I am thinking of you and praying for you. And I KNOW you can prove that doctor wrong. Right now things really really suck--and I'm sure most people can look back on life and a time when that was the case--but the fact that you took the time to post shows that you know that no matter how rough it is now, it will get better and that you can get there. When our son (who has CF) is your age, I hope he is like you--strong enough to speak up when things are rough and he needs someone to understand. Godspeed.
I know exactly what you are talking about. I went a couple years without doing my treatments. I could tell you all about how much I regret that and how I wish I had done them, but I'm sure you hear enough of that.
What I do want to say is you can prove your doctor wrong. Don't start off looking at it as "I have to do this the rest of my life." I had to retrain myself by thinking, "okay, I can do this one treatment, right now," and not thinking about the next one. I had to take it back down to little baby steps. I even bribed myself. Every time I did my vest, I gave myself a dollar to spend however I wanted. I was able to do enough treatments that I rewarded myself with a spa day.
I still struggle with my depression. I take medication and see someone for it, but there are still things I struggle with every single day. Unfortunately, CF makes you grow up fast and deal with things kids and teens shouldn't deal with. This site has helped me so much, though, because the people on here understand. I'm glad you've found your way here. We're all here to help you when things get rough.
What I do want to say is you can prove your doctor wrong. Don't start off looking at it as "I have to do this the rest of my life." I had to retrain myself by thinking, "okay, I can do this one treatment, right now," and not thinking about the next one. I had to take it back down to little baby steps. I even bribed myself. Every time I did my vest, I gave myself a dollar to spend however I wanted. I was able to do enough treatments that I rewarded myself with a spa day.
I still struggle with my depression. I take medication and see someone for it, but there are still things I struggle with every single day. Unfortunately, CF makes you grow up fast and deal with things kids and teens shouldn't deal with. This site has helped me so much, though, because the people on here understand. I'm glad you've found your way here. We're all here to help you when things get rough.
I know exactly what you are talking about. I went a couple years without doing my treatments. I could tell you all about how much I regret that and how I wish I had done them, but I'm sure you hear enough of that.
What I do want to say is you can prove your doctor wrong. Don't start off looking at it as "I have to do this the rest of my life." I had to retrain myself by thinking, "okay, I can do this one treatment, right now," and not thinking about the next one. I had to take it back down to little baby steps. I even bribed myself. Every time I did my vest, I gave myself a dollar to spend however I wanted. I was able to do enough treatments that I rewarded myself with a spa day.
I still struggle with my depression. I take medication and see someone for it, but there are still things I struggle with every single day. Unfortunately, CF makes you grow up fast and deal with things kids and teens shouldn't deal with. This site has helped me so much, though, because the people on here understand. I'm glad you've found your way here. We're all here to help you when things get rough.
What I do want to say is you can prove your doctor wrong. Don't start off looking at it as "I have to do this the rest of my life." I had to retrain myself by thinking, "okay, I can do this one treatment, right now," and not thinking about the next one. I had to take it back down to little baby steps. I even bribed myself. Every time I did my vest, I gave myself a dollar to spend however I wanted. I was able to do enough treatments that I rewarded myself with a spa day.
I still struggle with my depression. I take medication and see someone for it, but there are still things I struggle with every single day. Unfortunately, CF makes you grow up fast and deal with things kids and teens shouldn't deal with. This site has helped me so much, though, because the people on here understand. I'm glad you've found your way here. We're all here to help you when things get rough.
hey there! i was diagnosed around the first time i went in to have nasal polyps removed. i was sixteen, and i really didn't have the capacity to deal. i HATED doing my treatments and taking my medication, and i would forget to do them quite often. it took me a very long time before i began to accept the challenge of living with cf. i always had lung problems, so i guess i can't relate to you in that sense, but i became very sick. i was going in to the hospital two times a year for several years. i struggled to breath and be active, and i ended up coughing up quite a bit of blood at one point (very scary).
anyway, the big point i want to make is that i struggled for years after my diagnosis and once i finally decided to take care of myself my health has gotten SO much better! you may not feel like there's a difference, but you may find that doing your meds and treatment like you're supposed to will make you feel a lot better than you currently feel. give it a shot.
anyway, the big point i want to make is that i struggled for years after my diagnosis and once i finally decided to take care of myself my health has gotten SO much better! you may not feel like there's a difference, but you may find that doing your meds and treatment like you're supposed to will make you feel a lot better than you currently feel. give it a shot.
hey there! i was diagnosed around the first time i went in to have nasal polyps removed. i was sixteen, and i really didn't have the capacity to deal. i HATED doing my treatments and taking my medication, and i would forget to do them quite often. it took me a very long time before i began to accept the challenge of living with cf. i always had lung problems, so i guess i can't relate to you in that sense, but i became very sick. i was going in to the hospital two times a year for several years. i struggled to breath and be active, and i ended up coughing up quite a bit of blood at one point (very scary).
anyway, the big point i want to make is that i struggled for years after my diagnosis and once i finally decided to take care of myself my health has gotten SO much better! you may not feel like there's a difference, but you may find that doing your meds and treatment like you're supposed to will make you feel a lot better than you currently feel. give it a shot.
anyway, the big point i want to make is that i struggled for years after my diagnosis and once i finally decided to take care of myself my health has gotten SO much better! you may not feel like there's a difference, but you may find that doing your meds and treatment like you're supposed to will make you feel a lot better than you currently feel. give it a shot.
I dontgive my sons breathing treatments. He has CF and is doing well, I dont feel he needs them. I dont know if it is the denial, laziness or depression. I am not a big fan of alot of meds and it seemed like thedoctorkept giving him soo many antibiotics, breathing treatments and steroids.Now, he is only 4, but I took him off of milk when he got congested (mostly from allergies) and his phlemwould clear up. Now if he gets phlemmy I will give him a few treatments to clear him up, but not routinly. And even worse, I dont give him all of the vitamins they tell me to give him either. First, they smell and taste awful, second flinstones arent that much different (if I remember to give it to him) and they taste better, and third he is a good eater and loves fruits and vegtables. We will make protien health drinks, he loves those.
You know how you feel. Dont let the doctor get you down, they dont understand where you are. I had a doctor that made me feel so insecure and down when I was a teenager. I still do not like that doctor today and its been 15 years since I saw that doctor, and what he said sticks. Although he was wrong, it still boggles me how some doctors are not very compassionate about people and their feelings, or may if they just try and realize there is a bigger picture to things. Its hard to hear the phrase, its just words. But it is bothering you obviously. Being a teenager is hard enough, justify why you do what you do and do what makes you feel good. If you are ok, then dont worry. You have been very healthy and were doing it right for a long time, with out getting sick, that in itself if amazing.
I used to feel like a bad parent for a long time. I would lie to the doctor because they didnt want to hear that what I was doing was working, although they always asked me what I am doing because my son is soo healthy and growing well now. I got tired of trying to tell them what I do and getting that look and the talk of why I need to always keep my son medicated. I eventually had a long emotional talk with my sons pulmonologist and dealt with the flack. I still hear it from time to time from the Nutritionist, and the pulmonologist, But at least I know my son is growing well, his vitamin levels are ok, and I know I am making a good choice for him.
Life is short. Find what makes you happy and do it. No one can take your inner peace or joy away from you. And this moment will pass. You will look back on it and say this phase was easy, after the fact. I hope this helps, you are not alone.
Tammy G.
You know how you feel. Dont let the doctor get you down, they dont understand where you are. I had a doctor that made me feel so insecure and down when I was a teenager. I still do not like that doctor today and its been 15 years since I saw that doctor, and what he said sticks. Although he was wrong, it still boggles me how some doctors are not very compassionate about people and their feelings, or may if they just try and realize there is a bigger picture to things. Its hard to hear the phrase, its just words. But it is bothering you obviously. Being a teenager is hard enough, justify why you do what you do and do what makes you feel good. If you are ok, then dont worry. You have been very healthy and were doing it right for a long time, with out getting sick, that in itself if amazing.
I used to feel like a bad parent for a long time. I would lie to the doctor because they didnt want to hear that what I was doing was working, although they always asked me what I am doing because my son is soo healthy and growing well now. I got tired of trying to tell them what I do and getting that look and the talk of why I need to always keep my son medicated. I eventually had a long emotional talk with my sons pulmonologist and dealt with the flack. I still hear it from time to time from the Nutritionist, and the pulmonologist, But at least I know my son is growing well, his vitamin levels are ok, and I know I am making a good choice for him.
Life is short. Find what makes you happy and do it. No one can take your inner peace or joy away from you. And this moment will pass. You will look back on it and say this phase was easy, after the fact. I hope this helps, you are not alone.
Tammy G.
I dontgive my sons breathing treatments. He has CF and is doing well, I dont feel he needs them. I dont know if it is the denial, laziness or depression. I am not a big fan of alot of meds and it seemed like thedoctorkept giving him soo many antibiotics, breathing treatments and steroids.Now, he is only 4, but I took him off of milk when he got congested (mostly from allergies) and his phlemwould clear up. Now if he gets phlemmy I will give him a few treatments to clear him up, but not routinly. And even worse, I dont give him all of the vitamins they tell me to give him either. First, they smell and taste awful, second flinstones arent that much different (if I remember to give it to him) and they taste better, and third he is a good eater and loves fruits and vegtables. We will make protien health drinks, he loves those.
You know how you feel. Dont let the doctor get you down, they dont understand where you are. I had a doctor that made me feel so insecure and down when I was a teenager. I still do not like that doctor today and its been 15 years since I saw that doctor, and what he said sticks. Although he was wrong, it still boggles me how some doctors are not very compassionate about people and their feelings, or may if they just try and realize there is a bigger picture to things. Its hard to hear the phrase, its just words. But it is bothering you obviously. Being a teenager is hard enough, justify why you do what you do and do what makes you feel good. If you are ok, then dont worry. You have been very healthy and were doing it right for a long time, with out getting sick, that in itself if amazing.
I used to feel like a bad parent for a long time. I would lie to the doctor because they didnt want to hear that what I was doing was working, although they always asked me what I am doing because my son is soo healthy and growing well now. I got tired of trying to tell them what I do and getting that look and the talk of why I need to always keep my son medicated. I eventually had a long emotional talk with my sons pulmonologist and dealt with the flack. I still hear it from time to time from the Nutritionist, and the pulmonologist, But at least I know my son is growing well, his vitamin levels are ok, and I know I am making a good choice for him.
Life is short. Find what makes you happy and do it. No one can take your inner peace or joy away from you. And this moment will pass. You will look back on it and say this phase was easy, after the fact. I hope this helps, you are not alone.
Tammy G.
You know how you feel. Dont let the doctor get you down, they dont understand where you are. I had a doctor that made me feel so insecure and down when I was a teenager. I still do not like that doctor today and its been 15 years since I saw that doctor, and what he said sticks. Although he was wrong, it still boggles me how some doctors are not very compassionate about people and their feelings, or may if they just try and realize there is a bigger picture to things. Its hard to hear the phrase, its just words. But it is bothering you obviously. Being a teenager is hard enough, justify why you do what you do and do what makes you feel good. If you are ok, then dont worry. You have been very healthy and were doing it right for a long time, with out getting sick, that in itself if amazing.
I used to feel like a bad parent for a long time. I would lie to the doctor because they didnt want to hear that what I was doing was working, although they always asked me what I am doing because my son is soo healthy and growing well now. I got tired of trying to tell them what I do and getting that look and the talk of why I need to always keep my son medicated. I eventually had a long emotional talk with my sons pulmonologist and dealt with the flack. I still hear it from time to time from the Nutritionist, and the pulmonologist, But at least I know my son is growing well, his vitamin levels are ok, and I know I am making a good choice for him.
Life is short. Find what makes you happy and do it. No one can take your inner peace or joy away from you. And this moment will pass. You will look back on it and say this phase was easy, after the fact. I hope this helps, you are not alone.
Tammy G.
theLostMiler
New member
I really agree with the poster who said it has to be a step by step thing... you need to take baby steps, make small, ACHIEVABLE goals, as you accomplish them you will get yourself motivated, you will feel better about yourself and I think that will help you to keep setting goals and finishing them.
I had a relatively mild case growing up, and actually my mom was told not to do treatments unless I was sick (Kinda like poster Tammy), as the meds were hard on the heart then. I was really active in sports and choir and then I stopped it all, but I also wasn't doing treatments... I got sick and needed a PICC line my junior year, it was a nice wake up call that honestly, I think most cfers have to go through... you can read and listen to someone say, "I wish I had" but until you experience your own bottom in a sense... I don't know if you can appreciate or understand.
I just wrote to say I agree with the poster, don't worry about the doctor, do it for yourself. One step at a time, and believe me, I still have to bribe myself <img src="i/expressions/face-icon-small-wink.gif" border="0"> It isn't a walk in the park, and often is sucks sooo bad.... I do skip treatments here and there, if I feel there is an occasion not worth missing out on... for me its a quality of life over quantity.
I had a relatively mild case growing up, and actually my mom was told not to do treatments unless I was sick (Kinda like poster Tammy), as the meds were hard on the heart then. I was really active in sports and choir and then I stopped it all, but I also wasn't doing treatments... I got sick and needed a PICC line my junior year, it was a nice wake up call that honestly, I think most cfers have to go through... you can read and listen to someone say, "I wish I had" but until you experience your own bottom in a sense... I don't know if you can appreciate or understand.
I just wrote to say I agree with the poster, don't worry about the doctor, do it for yourself. One step at a time, and believe me, I still have to bribe myself <img src="i/expressions/face-icon-small-wink.gif" border="0"> It isn't a walk in the park, and often is sucks sooo bad.... I do skip treatments here and there, if I feel there is an occasion not worth missing out on... for me its a quality of life over quantity.
theLostMiler
New member
I really agree with the poster who said it has to be a step by step thing... you need to take baby steps, make small, ACHIEVABLE goals, as you accomplish them you will get yourself motivated, you will feel better about yourself and I think that will help you to keep setting goals and finishing them.
I had a relatively mild case growing up, and actually my mom was told not to do treatments unless I was sick (Kinda like poster Tammy), as the meds were hard on the heart then. I was really active in sports and choir and then I stopped it all, but I also wasn't doing treatments... I got sick and needed a PICC line my junior year, it was a nice wake up call that honestly, I think most cfers have to go through... you can read and listen to someone say, "I wish I had" but until you experience your own bottom in a sense... I don't know if you can appreciate or understand.
I just wrote to say I agree with the poster, don't worry about the doctor, do it for yourself. One step at a time, and believe me, I still have to bribe myself <img src="i/expressions/face-icon-small-wink.gif" border="0"> It isn't a walk in the park, and often is sucks sooo bad.... I do skip treatments here and there, if I feel there is an occasion not worth missing out on... for me its a quality of life over quantity.
I had a relatively mild case growing up, and actually my mom was told not to do treatments unless I was sick (Kinda like poster Tammy), as the meds were hard on the heart then. I was really active in sports and choir and then I stopped it all, but I also wasn't doing treatments... I got sick and needed a PICC line my junior year, it was a nice wake up call that honestly, I think most cfers have to go through... you can read and listen to someone say, "I wish I had" but until you experience your own bottom in a sense... I don't know if you can appreciate or understand.
I just wrote to say I agree with the poster, don't worry about the doctor, do it for yourself. One step at a time, and believe me, I still have to bribe myself <img src="i/expressions/face-icon-small-wink.gif" border="0"> It isn't a walk in the park, and often is sucks sooo bad.... I do skip treatments here and there, if I feel there is an occasion not worth missing out on... for me its a quality of life over quantity.
Just wanted to say hello and I am/was right there with ya! I was diagnosed at birth, but I didn't have any lung hospitalizations until I was 15. I've only been in a handful of times since then and I'm 25. Throughout my childhood, my doctor called me his "poster child" not because I was disciplined with my medical treatments, but because my health stayed so well (playing sports all the time, etc.)- with fev1'savging about 120%. I still struggle but have gotten better about finding some time to fit in a pulmozyme treatment regularly. I have never skimped on my enzymes though.
I have a hard time with depression related to this stuff sometimes too. I have found it helps to have access to this forum where I find out my problems are similar to other people's- I am not alone. Plus, on and off, I've gone to a therapist which has been nice. It gets difficult to pay for after a while, so i haven't gone in a while. I'm not in a romantic relationship right now, but my family has been a huge support for me even though they don't quite get my experience from the same perspective. (But they love me and have their own battles with my disesase over my lifetime.)
I write all this just to say, I get it! Please stick with it, and you will eventually adjust. Part of it comes with maturity over many years. No one is perfect even though some people are better with their medical regimens than others. Please try to take care of your mind/body/soul and keep balanced with exercise, diet,and everything else too. I wish you all the best.
I have a hard time with depression related to this stuff sometimes too. I have found it helps to have access to this forum where I find out my problems are similar to other people's- I am not alone. Plus, on and off, I've gone to a therapist which has been nice. It gets difficult to pay for after a while, so i haven't gone in a while. I'm not in a romantic relationship right now, but my family has been a huge support for me even though they don't quite get my experience from the same perspective. (But they love me and have their own battles with my disesase over my lifetime.)
I write all this just to say, I get it! Please stick with it, and you will eventually adjust. Part of it comes with maturity over many years. No one is perfect even though some people are better with their medical regimens than others. Please try to take care of your mind/body/soul and keep balanced with exercise, diet,and everything else too. I wish you all the best.
Just wanted to say hello and I am/was right there with ya! I was diagnosed at birth, but I didn't have any lung hospitalizations until I was 15. I've only been in a handful of times since then and I'm 25. Throughout my childhood, my doctor called me his "poster child" not because I was disciplined with my medical treatments, but because my health stayed so well (playing sports all the time, etc.)- with fev1'savging about 120%. I still struggle but have gotten better about finding some time to fit in a pulmozyme treatment regularly. I have never skimped on my enzymes though.
I have a hard time with depression related to this stuff sometimes too. I have found it helps to have access to this forum where I find out my problems are similar to other people's- I am not alone. Plus, on and off, I've gone to a therapist which has been nice. It gets difficult to pay for after a while, so i haven't gone in a while. I'm not in a romantic relationship right now, but my family has been a huge support for me even though they don't quite get my experience from the same perspective. (But they love me and have their own battles with my disesase over my lifetime.)
I write all this just to say, I get it! Please stick with it, and you will eventually adjust. Part of it comes with maturity over many years. No one is perfect even though some people are better with their medical regimens than others. Please try to take care of your mind/body/soul and keep balanced with exercise, diet,and everything else too. I wish you all the best.
I have a hard time with depression related to this stuff sometimes too. I have found it helps to have access to this forum where I find out my problems are similar to other people's- I am not alone. Plus, on and off, I've gone to a therapist which has been nice. It gets difficult to pay for after a while, so i haven't gone in a while. I'm not in a romantic relationship right now, but my family has been a huge support for me even though they don't quite get my experience from the same perspective. (But they love me and have their own battles with my disesase over my lifetime.)
I write all this just to say, I get it! Please stick with it, and you will eventually adjust. Part of it comes with maturity over many years. No one is perfect even though some people are better with their medical regimens than others. Please try to take care of your mind/body/soul and keep balanced with exercise, diet,and everything else too. I wish you all the best.