I guess I just want to thank you moms...

J

jmom

New member
I got a phone call today from my insurance company. They overturned my medical group's "denial of authorization" for Ambry's genetic test and now they will cover it in full. After three years of searching, I thought I had come to a dead end when they denied my daughter's test (Somebody at the doc's office forgot to send her pertinent medical records and the GI specialist's cover letter stating medical necessity) . That's when I will never forget the kindness you moms showed in taking the time to answer my questions when I felt I had no where else to turn. I feel like you make no prejudice, CF or not, between who you choose to take time for and help. You make us all feel like any question is a good question, even if we are floundering. I know that many of you are there for each other because you share the common bond of having a CF child, but I personally appreciate the way you are equally willing to help moms like me who don't yet have a diagnosis.
P.S. Thank you to Ambry genetics, who "went to bat" for me and filed my appeal on my daughter's behalf.
 
J

jmom

New member
I got a phone call today from my insurance company. They overturned my medical group's "denial of authorization" for Ambry's genetic test and now they will cover it in full. After three years of searching, I thought I had come to a dead end when they denied my daughter's test (Somebody at the doc's office forgot to send her pertinent medical records and the GI specialist's cover letter stating medical necessity) . That's when I will never forget the kindness you moms showed in taking the time to answer my questions when I felt I had no where else to turn. I feel like you make no prejudice, CF or not, between who you choose to take time for and help. You make us all feel like any question is a good question, even if we are floundering. I know that many of you are there for each other because you share the common bond of having a CF child, but I personally appreciate the way you are equally willing to help moms like me who don't yet have a diagnosis.
P.S. Thank you to Ambry genetics, who "went to bat" for me and filed my appeal on my daughter's behalf.
 
J

jmom

New member
I got a phone call today from my insurance company. They overturned my medical group's "denial of authorization" for Ambry's genetic test and now they will cover it in full. After three years of searching, I thought I had come to a dead end when they denied my daughter's test (Somebody at the doc's office forgot to send her pertinent medical records and the GI specialist's cover letter stating medical necessity) . That's when I will never forget the kindness you moms showed in taking the time to answer my questions when I felt I had no where else to turn. I feel like you make no prejudice, CF or not, between who you choose to take time for and help. You make us all feel like any question is a good question, even if we are floundering. I know that many of you are there for each other because you share the common bond of having a CF child, but I personally appreciate the way you are equally willing to help moms like me who don't yet have a diagnosis.
<br />P.S. Thank you to Ambry genetics, who "went to bat" for me and filed my appeal on my daughter's behalf.
 
H

hmw

New member
I am SO glad that you were able to get the coverage and your daughter will now be able to have this very important testing! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What a relief to you this must be. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is so good that Ambry was able to be of such help to you as well!

And many of us were where you are today today or have been there before arriving here; struggling for a dx or to understand what was going on with our child, and see where we once were when new ones arrive here. Even if such ones don't yet have a dx it's an incredibly stressful time and support is needed for the journey and encouragement to keep going. It would have been of benefit if I came here after my daughter's endo appt when I found out for the first time that CF was even a possibility and that she needed sweat testing and during those days of torture waiting for the test... and when I found out the results. I had another support forum but no one who understood THIS dx, but I didn't yet know about this site.

We will continue to be here for you through this process. <img src="i/expressions/rose.gif" border="0">
 
H

hmw

New member
I am SO glad that you were able to get the coverage and your daughter will now be able to have this very important testing! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What a relief to you this must be. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is so good that Ambry was able to be of such help to you as well!

And many of us were where you are today today or have been there before arriving here; struggling for a dx or to understand what was going on with our child, and see where we once were when new ones arrive here. Even if such ones don't yet have a dx it's an incredibly stressful time and support is needed for the journey and encouragement to keep going. It would have been of benefit if I came here after my daughter's endo appt when I found out for the first time that CF was even a possibility and that she needed sweat testing and during those days of torture waiting for the test... and when I found out the results. I had another support forum but no one who understood THIS dx, but I didn't yet know about this site.

We will continue to be here for you through this process. <img src="i/expressions/rose.gif" border="0">
 
H

hmw

New member
I am SO glad that you were able to get the coverage and your daughter will now be able to have this very important testing! <img src="i/expressions/face-icon-small-smile.gif" border="0"> What a relief to you this must be. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is so good that Ambry was able to be of such help to you as well!
<br />
<br />And many of us were where you are today today or have been there before arriving here; struggling for a dx or to understand what was going on with our child, and see where we once were when new ones arrive here. Even if such ones don't yet have a dx it's an incredibly stressful time and support is needed for the journey and encouragement to keep going. It would have been of benefit if I came here after my daughter's endo appt when I found out for the first time that CF was even a possibility and that she needed sweat testing and during those days of torture waiting for the test... and when I found out the results. I had another support forum but no one who understood THIS dx, but I didn't yet know about this site.
<br />
<br />We will continue to be here for you through this process. <img src="i/expressions/rose.gif" border="0">
 
M

Mommafirst

Guest
I'm so glad that you are getting the approval. i hope you get some definitive answers. Limbo is such an awful place to be. And most every single one of us here was in limbo for at least a short time as we awaited test results.

I'm very proud to be an active member of this site. The members here have such huge hearts and are so willing to share their knowledge, despite all that is going on in their own lives.
 
M

Mommafirst

Guest
I'm so glad that you are getting the approval. i hope you get some definitive answers. Limbo is such an awful place to be. And most every single one of us here was in limbo for at least a short time as we awaited test results.

I'm very proud to be an active member of this site. The members here have such huge hearts and are so willing to share their knowledge, despite all that is going on in their own lives.
 
M

Mommafirst

Guest
I'm so glad that you are getting the approval. i hope you get some definitive answers. Limbo is such an awful place to be. And most every single one of us here was in limbo for at least a short time as we awaited test results.
<br />
<br />I'm very proud to be an active member of this site. The members here have such huge hearts and are so willing to share their knowledge, despite all that is going on in their own lives.
 
J

JORDYSMOM

New member
A little encouragement goes a long way. I wish I'd had this site when my son was born. I have no doubt that if I had found it, Jordan would have been diagnosed then rather than at 15!

I'm so happy that you are getting the proper testing for your child.

Stacey
 
J

JORDYSMOM

New member
A little encouragement goes a long way. I wish I'd had this site when my son was born. I have no doubt that if I had found it, Jordan would have been diagnosed then rather than at 15!

I'm so happy that you are getting the proper testing for your child.

Stacey
 
J

JORDYSMOM

New member
A little encouragement goes a long way. I wish I'd had this site when my son was born. I have no doubt that if I had found it, Jordan would have been diagnosed then rather than at 15!
<br />
<br />I'm so happy that you are getting the proper testing for your child.
<br />
<br />Stacey
 
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