I just don't understand

[tbw18]

Well I guess here we go again, we have been off the IV meds for 9 days and tonight my son comes in he has a fever of 101.5 and a cough. I don't understand we did 4 months of IV's and that nasty ***** bug is back again. I can't cry in front of him, if I am upset he gets upset. I am just so sad and I don't know where to turn, as most of you know he has mycrobacterium abscessus and we can't seem to keep it at bay, oh god why is this happening to him he is only 18yrs old and he has such hopes for the future. I know that I can express on here my feelings, I need to just cry and get ready again for battle, I just don't know how at this moment. Is this normal to feel so sad for him, I am his mom why can't I make this okay for him, why can't he get a break. Oh I know I am just ranting away but I upset and so very mad at this disease. I know I will figure out a way to handle this again, I just got to figure out how at this moment. please keep us in your prayers tonight.
Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Well I guess here we go again, we have been off the IV meds for 9 days and tonight my son comes in he has a fever of 101.5 and a cough. I don't understand we did 4 months of IV's and that nasty ***** bug is back again. I can't cry in front of him, if I am upset he gets upset. I am just so sad and I don't know where to turn, as most of you know he has mycrobacterium abscessus and we can't seem to keep it at bay, oh god why is this happening to him he is only 18yrs old and he has such hopes for the future. I know that I can express on here my feelings, I need to just cry and get ready again for battle, I just don't know how at this moment. Is this normal to feel so sad for him, I am his mom why can't I make this okay for him, why can't he get a break. Oh I know I am just ranting away but I upset and so very mad at this disease. I know I will figure out a way to handle this again, I just got to figure out how at this moment. please keep us in your prayers tonight.
Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Well I guess here we go again, we have been off the IV meds for 9 days and tonight my son comes in he has a fever of 101.5 and a cough. I don't understand we did 4 months of IV's and that nasty ***** bug is back again. I can't cry in front of him, if I am upset he gets upset. I am just so sad and I don't know where to turn, as most of you know he has mycrobacterium abscessus and we can't seem to keep it at bay, oh god why is this happening to him he is only 18yrs old and he has such hopes for the future. I know that I can express on here my feelings, I need to just cry and get ready again for battle, I just don't know how at this moment. Is this normal to feel so sad for him, I am his mom why can't I make this okay for him, why can't he get a break. Oh I know I am just ranting away but I upset and so very mad at this disease. I know I will figure out a way to handle this again, I just got to figure out how at this moment. please keep us in your prayers tonight.
Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Well I guess here we go again, we have been off the IV meds for 9 days and tonight my son comes in he has a fever of 101.5 and a cough. I don't understand we did 4 months of IV's and that nasty ***** bug is back again. I can't cry in front of him, if I am upset he gets upset. I am just so sad and I don't know where to turn, as most of you know he has mycrobacterium abscessus and we can't seem to keep it at bay, oh god why is this happening to him he is only 18yrs old and he has such hopes for the future. I know that I can express on here my feelings, I need to just cry and get ready again for battle, I just don't know how at this moment. Is this normal to feel so sad for him, I am his mom why can't I make this okay for him, why can't he get a break. Oh I know I am just ranting away but I upset and so very mad at this disease. I know I will figure out a way to handle this again, I just got to figure out how at this moment. please keep us in your prayers tonight.
Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

Well I guess here we go again, we have been off the IV meds for 9 days and tonight my son comes in he has a fever of 101.5 and a cough. I don't understand we did 4 months of IV's and that nasty ***** bug is back again. I can't cry in front of him, if I am upset he gets upset. I am just so sad and I don't know where to turn, as most of you know he has mycrobacterium abscessus and we can't seem to keep it at bay, oh god why is this happening to him he is only 18yrs old and he has such hopes for the future. I know that I can express on here my feelings, I need to just cry and get ready again for battle, I just don't know how at this moment. Is this normal to feel so sad for him, I am his mom why can't I make this okay for him, why can't he get a break. Oh I know I am just ranting away but I upset and so very mad at this disease. I know I will figure out a way to handle this again, I just got to figure out how at this moment. please keep us in your prayers tonight.
Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[AbbysMama]

Hi Hope. Lots of people have looked, but no one has responded to you. I don't know what to tell you since I have not walked in your shoes. I can't imagine the heartache you are feeling right now for your son and the inability of the medications to work their magic and eradicate the bug. All I know is that you have every right to feel the way you do and that you are in the best place to rant. I will certainly keep you and your precious son in my thoughts and prayers. I send good thoughts your way and lots of hugs.

Em

 

[AbbysMama]

Hi Hope. Lots of people have looked, but no one has responded to you. I don't know what to tell you since I have not walked in your shoes. I can't imagine the heartache you are feeling right now for your son and the inability of the medications to work their magic and eradicate the bug. All I know is that you have every right to feel the way you do and that you are in the best place to rant. I will certainly keep you and your precious son in my thoughts and prayers. I send good thoughts your way and lots of hugs.

Em

 

[AbbysMama]

Hi Hope. Lots of people have looked, but no one has responded to you. I don't know what to tell you since I have not walked in your shoes. I can't imagine the heartache you are feeling right now for your son and the inability of the medications to work their magic and eradicate the bug. All I know is that you have every right to feel the way you do and that you are in the best place to rant. I will certainly keep you and your precious son in my thoughts and prayers. I send good thoughts your way and lots of hugs.

Em

 

[AbbysMama]

Hi Hope. Lots of people have looked, but no one has responded to you. I don't know what to tell you since I have not walked in your shoes. I can't imagine the heartache you are feeling right now for your son and the inability of the medications to work their magic and eradicate the bug. All I know is that you have every right to feel the way you do and that you are in the best place to rant. I will certainly keep you and your precious son in my thoughts and prayers. I send good thoughts your way and lots of hugs.

Em

 

[AbbysMama]

Hi Hope. Lots of people have looked, but no one has responded to you. I don't know what to tell you since I have not walked in your shoes. I can't imagine the heartache you are feeling right now for your son and the inability of the medications to work their magic and eradicate the bug. All I know is that you have every right to feel the way you do and that you are in the best place to rant. I will certainly keep you and your precious son in my thoughts and prayers. I send good thoughts your way and lots of hugs.

Em

 

[tbw18]

so glad you wrote to me just to know what I am feeling is okay. It is so hard he wasnt sick until he turned 15 yrs of age, he was diagnosised at 6 months of age, we are just devasted that this is happening and it seems to be spinning out of control, am I ever gonna understand this? I appreciate your reply it meant alot to me for right now I am at a very low point and I am trying to get ahold of myself.
thanks again for the kind words.

Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

so glad you wrote to me just to know what I am feeling is okay. It is so hard he wasnt sick until he turned 15 yrs of age, he was diagnosised at 6 months of age, we are just devasted that this is happening and it seems to be spinning out of control, am I ever gonna understand this? I appreciate your reply it meant alot to me for right now I am at a very low point and I am trying to get ahold of myself.
thanks again for the kind words.

Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

so glad you wrote to me just to know what I am feeling is okay. It is so hard he wasnt sick until he turned 15 yrs of age, he was diagnosised at 6 months of age, we are just devasted that this is happening and it seems to be spinning out of control, am I ever gonna understand this? I appreciate your reply it meant alot to me for right now I am at a very low point and I am trying to get ahold of myself.
thanks again for the kind words.

Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

so glad you wrote to me just to know what I am feeling is okay. It is so hard he wasnt sick until he turned 15 yrs of age, he was diagnosised at 6 months of age, we are just devasted that this is happening and it seems to be spinning out of control, am I ever gonna understand this? I appreciate your reply it meant alot to me for right now I am at a very low point and I am trying to get ahold of myself.
thanks again for the kind words.

Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[tbw18]

so glad you wrote to me just to know what I am feeling is okay. It is so hard he wasnt sick until he turned 15 yrs of age, he was diagnosised at 6 months of age, we are just devasted that this is happening and it seems to be spinning out of control, am I ever gonna understand this? I appreciate your reply it meant alot to me for right now I am at a very low point and I am trying to get ahold of myself.
thanks again for the kind words.

Hope

THE SUN RISES AND SETS IN THE EYES OF TBW

 

[Jane]

Oh hope, I am so sorry your son is sick again. That nasty bug just doesn't back down. SOmetimes it takes a few different meds to fight it (I know that's not what you want to hear, but there are options). Talk to your doctor about his next step in treatment.

Have you checked out the NTM site? There are many people on there with good advice, or even just those who can sympathize with what you are feeling.

It is normal to be sad and yes, you should cry, its ok. You only want your son to be well. It is exhausting to be strong all the time. Have a good cry and get some rest. We're here when you need to vent.

Let us know.

 

[Jane]

Oh hope, I am so sorry your son is sick again. That nasty bug just doesn't back down. SOmetimes it takes a few different meds to fight it (I know that's not what you want to hear, but there are options). Talk to your doctor about his next step in treatment.

Have you checked out the NTM site? There are many people on there with good advice, or even just those who can sympathize with what you are feeling.

It is normal to be sad and yes, you should cry, its ok. You only want your son to be well. It is exhausting to be strong all the time. Have a good cry and get some rest. We're here when you need to vent.

Let us know.

 

[Jane]

Oh hope, I am so sorry your son is sick again. That nasty bug just doesn't back down. SOmetimes it takes a few different meds to fight it (I know that's not what you want to hear, but there are options). Talk to your doctor about his next step in treatment.

Have you checked out the NTM site? There are many people on there with good advice, or even just those who can sympathize with what you are feeling.

It is normal to be sad and yes, you should cry, its ok. You only want your son to be well. It is exhausting to be strong all the time. Have a good cry and get some rest. We're here when you need to vent.

Let us know.

 

[Jane]

Oh hope, I am so sorry your son is sick again. That nasty bug just doesn't back down. SOmetimes it takes a few different meds to fight it (I know that's not what you want to hear, but there are options). Talk to your doctor about his next step in treatment.

Have you checked out the NTM site? There are many people on there with good advice, or even just those who can sympathize with what you are feeling.

It is normal to be sad and yes, you should cry, its ok. You only want your son to be well. It is exhausting to be strong all the time. Have a good cry and get some rest. We're here when you need to vent.

Let us know.

 

[Jane]

Oh hope, I am so sorry your son is sick again. That nasty bug just doesn't back down. SOmetimes it takes a few different meds to fight it (I know that's not what you want to hear, but there are options). Talk to your doctor about his next step in treatment.

Have you checked out the NTM site? There are many people on there with good advice, or even just those who can sympathize with what you are feeling.

It is normal to be sad and yes, you should cry, its ok. You only want your son to be well. It is exhausting to be strong all the time. Have a good cry and get some rest. We're here when you need to vent.

Let us know.