T
tripONthis
Guest
i just got diagnosed with cf. im 17. im really scared im gonna die.
i dont know what to expect. can someone give me some information
i dont know what to expect. can someone give me some information
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Trip,
I am so sorry to hear you are going through all of this.
I have a 13 year old daughter, Courtney, who was not diagnosed till she was 10. When she gets home tomorrow night I will have her write to you. I know she was feeling alot of the same things you are right now.
You hang in there!!
Seana
I am so sorry to hear you are going through all of this.
I have a 13 year old daughter, Courtney, who was not diagnosed till she was 10. When she gets home tomorrow night I will have her write to you. I know she was feeling alot of the same things you are right now.
You hang in there!!
Seana
smoothdave
New member
hey there my name is dave. i got dx when i was 18, i am now 20, ( birthday was on the 3rd of april) since i have been dx things have honestly only got beter for me. i was kinda ill before i got dx cause i was on no medication but sionce i have been on med things have honestly just got better, i thought exactly the same when i first got told i was thinkin fcuk... how long have i got left ect ect.... but to be honest every single person dose not no how long they "have left" anything to happen to any innocent person walking down the street!
a lot of things went thru my mind for a good few months, it was hard to take in. but it eventually sunk in and to be honest i have done totally everything i have ever wanted to do nothin has been any different in my life...
i took the choice not to tell any one about anything about me just cause i kinda felt i didnt want any one to feel sorry for me, but that was my choice... u might be different. i kinda just keep everythin to my self.i am workin on in a full time job and i can get time off when i want if i am not feelin gr8, my boss is personally really good withime about it all. if u ever need to chat just e mial me on hearand i will give u my proper e mail address, please if u need to chat come and speak u can ask al the Q'z u want... i have been thru what ur going thru now and there will be a lot of ppl on hear to cheer u up on this site, they done exactly that for me, this is a gr8 place.
takecare
dave
a lot of things went thru my mind for a good few months, it was hard to take in. but it eventually sunk in and to be honest i have done totally everything i have ever wanted to do nothin has been any different in my life...
i took the choice not to tell any one about anything about me just cause i kinda felt i didnt want any one to feel sorry for me, but that was my choice... u might be different. i kinda just keep everythin to my self.i am workin on in a full time job and i can get time off when i want if i am not feelin gr8, my boss is personally really good withime about it all. if u ever need to chat just e mial me on hearand i will give u my proper e mail address, please if u need to chat come and speak u can ask al the Q'z u want... i have been thru what ur going thru now and there will be a lot of ppl on hear to cheer u up on this site, they done exactly that for me, this is a gr8 place.
takecare
dave
<b><b>Trip,<img src="i/expressions/face-icon-small-smile.gif" border="0">
Hi my name is Kayla. My dad just turned 40 and has had cf since he was born. He has gone through some bad times and will continue to go through them but, he has not let cf hold him back. You might not be able to do SOME of the things that other kids do, but only for health reason. With the support from friends and family you will be just fine.
My thoughts and prayers are with you.
Sincerely,
Kayla</b>
Hi my name is Kayla. My dad just turned 40 and has had cf since he was born. He has gone through some bad times and will continue to go through them but, he has not let cf hold him back. You might not be able to do SOME of the things that other kids do, but only for health reason. With the support from friends and family you will be just fine.
My thoughts and prayers are with you.
Sincerely,
Kayla</b>
silvermoon
New member
hi u
i know a woman whos 60 and has cf she was diagnosed when she was 28
i m thinking on you
i know a woman whos 60 and has cf she was diagnosed when she was 28
i m thinking on you
thelizardqueen
New member
Trip - I know you must be going through quite a bit now. CF is a hard thing to handle all at once when you first find out. That being said - once you're on proper meds and treatments, things will only get better for you. You'll definitly be healthier. I don't know what its like to be dx at such an older age, but I'm sure that because it went undetected for so long, it is a mild version of CF. I was dx at 6 weeks old, and today I'm a for the most part healthy 24 year old - this all being said, and I have one of the most severe gene mutations.
You'll be in my thoughts
You'll be in my thoughts
Having found out that you have CF must be scarey for you. But you have to know that they have so much more now than they ever did before--the outlook for everyone is so much greater now. As long as you take care of yourself you will be fine! Just remember to take your medicine, do your PT and you will be fine. There are so many people out that that are older, so just think about that and nothing else.
thelizardqueen
New member
Some of us have been genotyped. This is where they find out what gene mutation you have. Gene mutations are divided into 5 classes. 1 - being the most severe, 5 - being the most mild. I am double delta f508 - this is a class 2. I have digestive problems, not quite severe, but still a pain in the butt, but I have mild lung involvement. You cannot tell how severe your lungs will be by what mutations you have, only how bad your digestive system will be. Now that you are diagnosed, I would suggest talking to your doctor about getting typed.
HI MY DAUGHTER HANNAH IS 7 AND SHE WAS JUST DIAGNOSED TWO YEARS AGO. SHE IS NOT SKINNY,SHE IS ONE OF THOSE CF PATIENTS THAT HAS TO
BE VERY CAREFULL WITH WHAT SHE EATS BECAUSE SHE HAS A TENDENCY
TO PUT ON THE WEIGHT FAST. SHE IS ON ENZYMES AND HATES HER VITAMINS
WITH A PASSION.I NEED TO FIND SOMEONE SHE CAN TALK TO HER ABOUT
HER VEST.SHE CRIES WHEN SHE HAS TO PUT IT ON AND CANT STAND EVEN
LOOKING AT IT.SHE HAS NEVER HAD DIGESTIVE PROBLEMS,ONLY COUGHING
HAS BEEN A REAL ISSUE EVER SINCE SHE WAS BORN WHEN THEY THOUGHT
SHE WAS COLICY AND HAD CROUP.
BE VERY CAREFULL WITH WHAT SHE EATS BECAUSE SHE HAS A TENDENCY
TO PUT ON THE WEIGHT FAST. SHE IS ON ENZYMES AND HATES HER VITAMINS
WITH A PASSION.I NEED TO FIND SOMEONE SHE CAN TALK TO HER ABOUT
HER VEST.SHE CRIES WHEN SHE HAS TO PUT IT ON AND CANT STAND EVEN
LOOKING AT IT.SHE HAS NEVER HAD DIGESTIVE PROBLEMS,ONLY COUGHING
HAS BEEN A REAL ISSUE EVER SINCE SHE WAS BORN WHEN THEY THOUGHT
SHE WAS COLICY AND HAD CROUP.
WOW does that sound familiar!! What finally led to getting your daughter tested for CF? My son is 6 and CONSTANTLY sick with respiratory issues. He is very thin but also very tall for his age. There doesn't seem to be any problems with his digestion either. No one can figure out why he is always so sick (about every 6 weeks). Just wondering what prompted you to get her tested? Thanks in advance.