I just want to Thank our care givers

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anonymous

New member
I read a lot of the posts here, and I don't usually post. I am a patient with CF and I just want those that take care of us on a day to day basis to know how much we appreciate them. For some of us it is our parents, spouse, boy/girl friends, brothers/sisters, etc. We really love you for it and if everyone else is like me I don't say Thank You enough for it. I especially want to say Thank You to my boyfriend who has helped me with my CF now for 23 + years, and I have never once heard him complain.

We live in a cold climate in the winter, so he installed a heater in the garage so that I never have to get into a cold car. He also put an automatic started on my car, so that I can start it a few minutes before I leave where ever I am so that it is warm when I get in.

I was just in the hospital recently and he had to give me shots in my stomach as a blood thinner - he did not even blink and eye, just said OK show me how.

Anyway, before I make this to long... THANK YOU TO ALL OF YOU FOR YOUR LOVE AND SUPPORT. IT REALLY MEANS A LOT TO US.
 
A

anonymous

New member
I read a lot of the posts here, and I don't usually post. I am a patient with CF and I just want those that take care of us on a day to day basis to know how much we appreciate them. For some of us it is our parents, spouse, boy/girl friends, brothers/sisters, etc. We really love you for it and if everyone else is like me I don't say Thank You enough for it. I especially want to say Thank You to my boyfriend who has helped me with my CF now for 23 + years, and I have never once heard him complain.

We live in a cold climate in the winter, so he installed a heater in the garage so that I never have to get into a cold car. He also put an automatic started on my car, so that I can start it a few minutes before I leave where ever I am so that it is warm when I get in.

I was just in the hospital recently and he had to give me shots in my stomach as a blood thinner - he did not even blink and eye, just said OK show me how.

Anyway, before I make this to long... THANK YOU TO ALL OF YOU FOR YOUR LOVE AND SUPPORT. IT REALLY MEANS A LOT TO US.
 
A

anonymous

New member
Thanks for that but as a mother of a CF child and I am sure a lot of other people on this sight would agree I would like to thank you and all of the other CF kids and adults who were once kids. You are the ones who have given me the gift. Taking care of you is not always easy but I wouldnt have it any other way. Everything you all go through and I dont know many cfers who do a lot of complaining. So I guess it is a mutual respect and thankfulness from cfers to caregivers and visa versa.

We love you from the bottom of our hearts and consider you a true blessing<img src="i/expressions/face-icon-small-smile.gif" border="0">

Teri
mom to rachel 8yow/cf
 
A

anonymous

New member
Thanks for that but as a mother of a CF child and I am sure a lot of other people on this sight would agree I would like to thank you and all of the other CF kids and adults who were once kids. You are the ones who have given me the gift. Taking care of you is not always easy but I wouldnt have it any other way. Everything you all go through and I dont know many cfers who do a lot of complaining. So I guess it is a mutual respect and thankfulness from cfers to caregivers and visa versa.

We love you from the bottom of our hearts and consider you a true blessing<img src="i/expressions/face-icon-small-smile.gif" border="0">

Teri
mom to rachel 8yow/cf
 
E

Emily65Roses

New member
Damn straight! Caregivers rock. Haha. <img src="i/expressions/rose.gif" border="0">

My Mike always gets really nervous when I ask him to access my port for me because he's only done it twice so far. But both times, I walked him through it and he did it despite the fact that it made him queasy. Haha. He hates that he has to push so hard on the needle, says it feels like he's stabbing me (even though it's mostly painless). Now that we've been together over a year, he's gotten to where he knows pretty much all the "procedures" I go through at one time or another. Regardless that he's not currently technically family (so therefore, not "obligated," as family kind of is), he chooses to stick around. He's the only boyfriend I've had that's been this involved. I've had others who visited in the hospital and what have you, but none who helped me with hooking and unhooking the IV meds, etc. And I love him. He's my "faybrit."

I don't wish to downplay the parents' part here. My parents rule. Always there for me and helping me with my meds, even when I was old enough to do them myself, and just felt too damn lazy on one day or another. It seems to me that family, though not always (as some people straight out turn their backs) is more "obligated" than friends and spouses. So when Mike chooses to stick around, it's a little different. There are, of course, parents who outright abandon their sick children, though. So parents still rawk! And "obligated" or not they still do a whole lot of stuff for our sick butts, whether physically, emotionally, financially, or whatever combination of those. My parents just happen to have done all of those, and more. You guys have seen my mom on the forum. She rules! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Haha.
 
E

Emily65Roses

New member
Damn straight! Caregivers rock. Haha. <img src="i/expressions/rose.gif" border="0">

My Mike always gets really nervous when I ask him to access my port for me because he's only done it twice so far. But both times, I walked him through it and he did it despite the fact that it made him queasy. Haha. He hates that he has to push so hard on the needle, says it feels like he's stabbing me (even though it's mostly painless). Now that we've been together over a year, he's gotten to where he knows pretty much all the "procedures" I go through at one time or another. Regardless that he's not currently technically family (so therefore, not "obligated," as family kind of is), he chooses to stick around. He's the only boyfriend I've had that's been this involved. I've had others who visited in the hospital and what have you, but none who helped me with hooking and unhooking the IV meds, etc. And I love him. He's my "faybrit."

I don't wish to downplay the parents' part here. My parents rule. Always there for me and helping me with my meds, even when I was old enough to do them myself, and just felt too damn lazy on one day or another. It seems to me that family, though not always (as some people straight out turn their backs) is more "obligated" than friends and spouses. So when Mike chooses to stick around, it's a little different. There are, of course, parents who outright abandon their sick children, though. So parents still rawk! And "obligated" or not they still do a whole lot of stuff for our sick butts, whether physically, emotionally, financially, or whatever combination of those. My parents just happen to have done all of those, and more. You guys have seen my mom on the forum. She rules! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Haha.
 
E

EmilysMom

New member
Like Teri said,our kids are great! It would have been nice to have healthy children, but I wonder how different my live would have been if Emily had been healthy. I probably would still be an introverted shy person who doesn't speak up and never questions authority. CF threw me into a world where I was forced to question doctors, nurses, medicines, pharmacists, and whoever else I thought might be doing something that was not right for my child. I think I turned out to be a much stronger person because of CF. That can't be all bad! <img src="i/expressions/face-icon-small-blush.gif" border="0">)
 
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EmilysMom

New member
Like Teri said,our kids are great! It would have been nice to have healthy children, but I wonder how different my live would have been if Emily had been healthy. I probably would still be an introverted shy person who doesn't speak up and never questions authority. CF threw me into a world where I was forced to question doctors, nurses, medicines, pharmacists, and whoever else I thought might be doing something that was not right for my child. I think I turned out to be a much stronger person because of CF. That can't be all bad! <img src="i/expressions/face-icon-small-blush.gif" border="0">)
 
J

jaime

New member
My family and friends are my "support team" and I just want to say thanks too!! My father took off before I even came home from the hospital after being born so my mother raised my older brother and I on her own. I know she sacrificed a ton for me and I can only hope she realizes how much I appreciate her (I tell her all the time!!). I hope someday if I have children of my own I can take as good "care" of them as my mom took of me.
And my brother and friends, well they pretty much never leave me alone. especially when Im sick!! haha--they keep a close eye on me, but I couldnt do it without them.
Thanks to Mom, friends and fam!!!
 
J

jaime

New member
My family and friends are my "support team" and I just want to say thanks too!! My father took off before I even came home from the hospital after being born so my mother raised my older brother and I on her own. I know she sacrificed a ton for me and I can only hope she realizes how much I appreciate her (I tell her all the time!!). I hope someday if I have children of my own I can take as good "care" of them as my mom took of me.
And my brother and friends, well they pretty much never leave me alone. especially when Im sick!! haha--they keep a close eye on me, but I couldnt do it without them.
Thanks to Mom, friends and fam!!!
 
A

anonymous

New member
Wow, all these posts gave me chills. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It feels really good to hear a "thank you" and even better to hear success stories like yours and Emily's - - and other cf patients out there who are doing so well. We parents are blessed too, ya know. Like Barbara said, it has made us stronger. I have honestly made more changes in my own life since my son's diagnosis 3 years ago than I have in my entire life. CF, for the good and bad, has really put my life into perspective. I appreciate all of you - your support, opinions, and example to me!!!

Carey
 
A

anonymous

New member
Wow, all these posts gave me chills. <img src="i/expressions/face-icon-small-smile.gif" border="0"> It feels really good to hear a "thank you" and even better to hear success stories like yours and Emily's - - and other cf patients out there who are doing so well. We parents are blessed too, ya know. Like Barbara said, it has made us stronger. I have honestly made more changes in my own life since my son's diagnosis 3 years ago than I have in my entire life. CF, for the good and bad, has really put my life into perspective. I appreciate all of you - your support, opinions, and example to me!!!

Carey
 
A

anonymous

New member
My parents & my spouse have done an awesome job w/ my care. One other group of people I thought should be thanked is our doctors that choose to specialize in CF. Let's face it, it's not the most rewarding, encouraging illness to choose to treat & become involved in. I doubt that any of our Dr's have a chance to view these boards, but if by chance one does, thank you for choosing this tough disease to tackle.<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/rose.gif" border="0">
 
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