i want kids

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ASHLEIGH1228ANTOSZ

New member
ok,,,,,i was wonderin if its hard to have kids with havin CF?should i think about adoption or can i have kids without gettin sicker? also is it better to have kids when ur younger or when ur get older? my husband and i have been married a year been together for four yrs.i am 22 yrs old and i am afraid the older i get the harder it will be to have kids and the higher chance i will get really sick,,,,,i need advace..i dont know what to do i talk to my husband and he understands but then again dont,,.he has read up about cf and goes to the doctors with me when he can, but still is new with all this even knows its been four wonderful yrs wiith him..i figured i can post a message up and i can get my answer here since ppl will understand where i am comin from...

if ne one can give me ne advace i would be very thankful.....
 
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JazzysMom

New member
It depends on the CFer. Some doctors dont recommend their patients get pregnant depending on their history etc. Some wait until they are at a better status. Some are fine until they get pregnant. It varies. I got pregnant when I was 30 & had a great pregnancy. I worked the whole time & had no problems until my 8th month when I started with hemoptysis which isnt uncommon for me. IN fact I was surprised it took so long to rear its ugly head in the pregnancy. SO I was admitted for 2 weeks as a precaution & during this time it was decided that I not try the last month of pregnancy nor go thru labor becaue of my history of hemoptysis. I remained in the hospital after my 2 week cleanout & had a c section. I would have not wanted labor if the braxton hicks (sp?) contractions were an indication of what labor is like. LOL I stayed home for 5 months & returned to work full time. I did fine until my husband took a job 2 hours a way from home then I became a single mom in many ways. Between working, carrying for my daughter etc without my husband home it took its toll. I got extremely sick & had to stop working. He switched jobs shortly after that. I really enjoyed my pregnancy. I know many other moms who did wonderfully. I also know some that had a real rough time & even some that passed away. I will note that the ones I know who passed away were advised by the doctor NOT to get pregnant. However; do to religious beliefs they did so anyway. The next obstacle would be the conception. Many CF woman have problems getting pregnant & need intervention. I didnt use birth control for 12 years. Granted most of that time was with my first husband and never got pregnant. I was only with my second husband for 10 months when I got pregnant. As far as your age......like anything with CF there is no gaurantee. As a rule the healthier you are the easier it will be, but that doesnt mean your health wont remain stable for years. One thing that I do stress to do......make sure you and your husband are on the same page. Should you get sick or worse...will he be able to take care of the kid(s). That was my biggest concern with my hubby. Can he handle it? It is also very easy to say yes when you havent had the taste of the actual problem. By nmo means to I want to scare you. Its just very important that both of you understand because the baby/child isnt a toy that can be returned for a refund. Most of these thoughts apply to adoption also. At least the care of the child etc. Good Luck!
 
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LouLou

New member
Melissa and other mommies with CF,

How high were your pft's when you got pregnant vs. post pregnancy? and what about during? did you have increased illness? My doctor said that I would likely need to go on supplemental oxygen during my third trimester which was a surprise to me with my PFT's hovering between 68% and 75%. His comment was very motivating. I signed up at the gym within a week and plan to get my pft's up as high as they can in the next 6 mo. and evaluate pregnancy at that point.
 
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JazzysMom

New member
I dont remember exactly my numbers from pre, during & post pregnancy except that they didnt differ much. I averaged high 80's/low 90's pre pregnancy & was in the ballpark all during & after. I carried my daughter very low & had minimal problems with breathing compared to the average person (never mind CF). It always looked like I dropped like women do as the baby is getting into position for its birth. I carried that way the whole pregnancy. My doctor told me she was probably trying to get away from the coughing....I worked fulltime during my pregnancy & felt great. Outside of being a bit more tired & in my 8th month my hemoptysis kicking in.....I had no problems. If you have anymore ??? give a shout!
 
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LouLou

New member
I think I remember reading that you were 30 when you had your baby. Is this right? I might be able to get my pft's up into the 80's. How critical do you think having high pft's are?
 
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JazzysMom

New member
I turned 30 in March & my daughter was delivered in April. Unless your O2 is really low now I wouldnt get too worked up. Obviously O2 is important, but so are many other things. High PFTs are important because everyone is different with there pregnancy so you have to "assume" that they will go down during the pregnancy. The higher they are beforehand the more room you have to work with. It will also make it easier for you to tolerate the "unjoyful joys" of pregnancy like fatgue, morning sickness etc
 
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Faust

New member
Kids can be a pain. I do want to know though, when you made your name, did you just call in your cat to walk on the keyboard?
 
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julie

New member
Great website, HollyCatheryn is member of this site and created her own site about CF, montherhood and breastfeding. Here's her site: <a target=new class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama/index.html">http://www.geocities.com/murrensnaturemama/index.html</a>
 
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anonymous

New member
I have had two children one when I was 25 and the 2nd when I was 31. My pfts are normally in the 90 and remain there most of my pregnancies, I did drop a little after but according to my docs that is to be expected but after a recent clean out, I am back up in the 90's.
 
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anonymous

New member
I have always wanted kids! but for now my doctor tells me that if i do get pregnant that i will die! My PFT's are like 35-38%... She told me that it would be very hard to carry a child... not only for the nutrition part but for the breathing part! and also it would put such a strain on my body that she tells me that it is a very high risk for me to get pregnant! So for the time being as bad as my husband and i want a child... now is definately the time! If we do decide to have a child i will not carry the child! my sister offered her body to carry our child! So, I was thinking after i get a transplant that we will look into having a child... I dont want to stress my body out or even get pregnant just to loose it and/or loose myself and the baby. So just make sure that you are at your best! and that you have support from your doctor! take care...

Cariann 20 w/cf cfrd mrsa
 
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JazzysMom

New member
I think it was directed to the original poster since the sreenname is quite lengthy & I personally am not sure what the last part stands for......tho I could be wrong!
 
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Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>Hey flag thong boy. How are you today? Was that comment about the cat to me? What's wrong with LouLou?<hr></blockquote>


No LouLou as jazzy'smom said, was directed at the thread starter. Seeing her forum name just made me think she was away from the keyboard during registration and her cat jumped up and tap danced some <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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