I know their was a thread put on the message about children being terminated because they have CF and I don't want to get anything stirred up again but I just wanted to add this one thought. Their is only one and only one that is perfect and that is our dear GOD above. No one in this world is perfect even if they are born disease free. I was like every one else on this board when we found out our boys has CF (at 18 months old) I was totally devasted. I thought the angles I loved so much were going to die right then. I was not worried about what they would have to live with I was worried about what I was going to have to live with out. They have brought so much joy to my life that I live one day at a time and love them for the time we had that day. They are so normal that most people don't know anything is wrong with them. They do everything that our older son (who is 8 and CF free) does. We go on vacation, camping. They are boy scouts and play tee-ball and swim and ride bikes. So I guess I just want to say to someone out their that might decide to eliminate their baby(not fetus) be sure you make the right decision. God might not be so quick to grant you another pregnancy. I also would like to add to the post that was so rude to all CFers! You and your wife are the carriers of this horrible disease just at thought for you!Mom to twins with CF Who have touched many hearts!
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Ilove my CF twins
- Thread starter anonymous
- Start date
I am so glad that you wrote about your twins and the high quality life they are living. I have a 6 yr old with CF and a 4 yr old and an 11 month w/o CF. When we tried for a third child we knew there was a chance she would have CF. All we had to do was look at our beautiful 6 year old, and the decision was made. She is a well adjusted happy little girl. Someone once wrote on this website, "CF isn't the movie of your life. It's the commercials in between the scenes". I think this is a good way of thinking.
It's so funny at times with the twins. They both have been in the hospital four time(at the same time that I might add). The first time was the roughest for me. I didn't know what to expect and they were only 18 months old and in seperate rooms. It's really hard to split mom into two. We made it though. Now they usually are right across from each other and run back and forth between the rooms. I know this might sound strange but, I am glad that they both have it an not only one of them. They lean on each other so much and as you said they have each other to share it with. I am assuming you guys are identical dave. We did not have the boys tested(which they look just alike) but our regular md told us they were due to the CF do you know if that is true? We were also told just because twins look just alike does not mean they are identical. Thanks for everyones reponse on the post. CFers are great people!Moms to twins with CF!
NoDayButToday
New member
I said that thing about CF being commercials, and not the movie of your life. Actually it wasn't me, one of my friends used the analogy, and I posted it here. I liked it too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hi I have twin girls that are 11 years old and they do not look alike, or act alike, they have never been sick at the same time for that matter the one has only been in the hospital 1 time in 11 years and her sister is in about 2 to 3 times a year, they are like night and day. I was told to have testing done to tell what was wrong with them early in my preg. so i could abort them if i wanted, because they knew they were sick but what whey had they did not know, I refused all testing, after they were born at 3 weeks old we found out they have cf but i am glad I had them no matter what.