I'm confused and scared

[proudmomof5]

My son is almost 11. He has battled asthma since he was 3 months old. He always seemed to be sick. Ear infections, constipation, abdominal pain, just a lot. To much for a young child. We spent a lot of time in the ER, or admitted for pneumonia, or bronchitis. As he grew his breathing became worse when they expected him to "just grow out of it".
Now in the past year or two it has gotten even worse.To make a very long story short I will cut the middle out. He gets allergy shots once a week to help breathing, but it is not helping and has been or is on almost all asthma meds. He only breaths good when on Prednisone. He had a CT and it showed bronchiectasis, and a nodule on his lung. While I was reading up on the lung disease it would always lead me to CF. I started to read the symptoms and he has all of them but 1. He has had some since he was born like the constipation and sweating problems, plus the breathing issues like the coughing. We went to his pulmonologist to day and with out me saying anything about my suspicions he said he wanted to do a sweat test right away.They are also going in to do a biopsy of his lungs and do a lung wash to take some cells and sending him home with a probe in his lung. I did not ask to many questions because I didn't want him to know. He won't think anything of the tests because he is so used to having things done.
So that leads to me I'm scared!!!I can't think, or sleep and it has only been a day.He is having it done on Tuesday.
How soon will I know?? Has any one been through something similar?

 

[proudmomof5]

My son is almost 11. He has battled asthma since he was 3 months old. He always seemed to be sick. Ear infections, constipation, abdominal pain, just a lot. To much for a young child. We spent a lot of time in the ER, or admitted for pneumonia, or bronchitis. As he grew his breathing became worse when they expected him to "just grow out of it".
Now in the past year or two it has gotten even worse.To make a very long story short I will cut the middle out. He gets allergy shots once a week to help breathing, but it is not helping and has been or is on almost all asthma meds. He only breaths good when on Prednisone. He had a CT and it showed bronchiectasis, and a nodule on his lung. While I was reading up on the lung disease it would always lead me to CF. I started to read the symptoms and he has all of them but 1. He has had some since he was born like the constipation and sweating problems, plus the breathing issues like the coughing. We went to his pulmonologist to day and with out me saying anything about my suspicions he said he wanted to do a sweat test right away.They are also going in to do a biopsy of his lungs and do a lung wash to take some cells and sending him home with a probe in his lung. I did not ask to many questions because I didn't want him to know. He won't think anything of the tests because he is so used to having things done.
So that leads to me I'm scared!!!I can't think, or sleep and it has only been a day.He is having it done on Tuesday.
How soon will I know?? Has any one been through something similar?

 

[proudmomof5]

My son is almost 11. He has battled asthma since he was 3 months old. He always seemed to be sick. Ear infections, constipation, abdominal pain, just a lot. To much for a young child. We spent a lot of time in the ER, or admitted for pneumonia, or bronchitis. As he grew his breathing became worse when they expected him to "just grow out of it".
Now in the past year or two it has gotten even worse.To make a very long story short I will cut the middle out. He gets allergy shots once a week to help breathing, but it is not helping and has been or is on almost all asthma meds. He only breaths good when on Prednisone. He had a CT and it showed bronchiectasis, and a nodule on his lung. While I was reading up on the lung disease it would always lead me to CF. I started to read the symptoms and he has all of them but 1. He has had some since he was born like the constipation and sweating problems, plus the breathing issues like the coughing. We went to his pulmonologist to day and with out me saying anything about my suspicions he said he wanted to do a sweat test right away.They are also going in to do a biopsy of his lungs and do a lung wash to take some cells and sending him home with a probe in his lung. I did not ask to many questions because I didn't want him to know. He won't think anything of the tests because he is so used to having things done.
So that leads to me I'm scared!!!I can't think, or sleep and it has only been a day.He is having it done on Tuesday.
How soon will I know?? Has any one been through something similar?

 

[proudmomof5]

My son is almost 11. He has battled asthma since he was 3 months old. He always seemed to be sick. Ear infections, constipation, abdominal pain, just a lot. To much for a young child. We spent a lot of time in the ER, or admitted for pneumonia, or bronchitis. As he grew his breathing became worse when they expected him to "just grow out of it".
Now in the past year or two it has gotten even worse.To make a very long story short I will cut the middle out. He gets allergy shots once a week to help breathing, but it is not helping and has been or is on almost all asthma meds. He only breaths good when on Prednisone. He had a CT and it showed bronchiectasis, and a nodule on his lung. While I was reading up on the lung disease it would always lead me to CF. I started to read the symptoms and he has all of them but 1. He has had some since he was born like the constipation and sweating problems, plus the breathing issues like the coughing. We went to his pulmonologist to day and with out me saying anything about my suspicions he said he wanted to do a sweat test right away.They are also going in to do a biopsy of his lungs and do a lung wash to take some cells and sending him home with a probe in his lung. I did not ask to many questions because I didn't want him to know. He won't think anything of the tests because he is so used to having things done.
So that leads to me I'm scared!!!I can't think, or sleep and it has only been a day.He is having it done on Tuesday.
How soon will I know?? Has any one been through something similar?

 

[proudmomof5]

My son is almost 11. He has battled asthma since he was 3 months old. He always seemed to be sick. Ear infections, constipation, abdominal pain, just a lot. To much for a young child. We spent a lot of time in the ER, or admitted for pneumonia, or bronchitis. As he grew his breathing became worse when they expected him to "just grow out of it".
<br />Now in the past year or two it has gotten even worse.To make a very long story short I will cut the middle out. He gets allergy shots once a week to help breathing, but it is not helping and has been or is on almost all asthma meds. He only breaths good when on Prednisone. He had a CT and it showed bronchiectasis, and a nodule on his lung. While I was reading up on the lung disease it would always lead me to CF. I started to read the symptoms and he has all of them but 1. He has had some since he was born like the constipation and sweating problems, plus the breathing issues like the coughing. We went to his pulmonologist to day and with out me saying anything about my suspicions he said he wanted to do a sweat test right away.They are also going in to do a biopsy of his lungs and do a lung wash to take some cells and sending him home with a probe in his lung. I did not ask to many questions because I didn't want him to know. He won't think anything of the tests because he is so used to having things done.
<br />So that leads to me I'm scared!!!I can't think, or sleep and it has only been a day.He is having it done on Tuesday.
<br />How soon will I know?? Has any one been through something similar?

 

[JazzysMom]

First of all Welcome to our site. It does sound like CF to me, but you do need to wait for actual results.

I would imagine he is culturing one of our special CF bacterias in his lungs given his breathing issues for so long.

I know its hard to grasp that he might have CF. BUT once you get a diagnosis & he is started on the PROPER treatment instead of just A treatment.....you will see a different kid.

The results should not take long, but I would imagine in addition or depending on what they find, they will refer you for a sweat test &/or genetic testing.

Make sure these are done by an Accredited CF Center to assure accuracy.

In the meantime, please feel free to ask ?? or just vent!

We have so many members that have been in your spot!

HUGS

 

[JazzysMom]

First of all Welcome to our site. It does sound like CF to me, but you do need to wait for actual results.

I would imagine he is culturing one of our special CF bacterias in his lungs given his breathing issues for so long.

I know its hard to grasp that he might have CF. BUT once you get a diagnosis & he is started on the PROPER treatment instead of just A treatment.....you will see a different kid.

The results should not take long, but I would imagine in addition or depending on what they find, they will refer you for a sweat test &/or genetic testing.

Make sure these are done by an Accredited CF Center to assure accuracy.

In the meantime, please feel free to ask ?? or just vent!

We have so many members that have been in your spot!

HUGS

 

[JazzysMom]

First of all Welcome to our site. It does sound like CF to me, but you do need to wait for actual results.

I would imagine he is culturing one of our special CF bacterias in his lungs given his breathing issues for so long.

I know its hard to grasp that he might have CF. BUT once you get a diagnosis & he is started on the PROPER treatment instead of just A treatment.....you will see a different kid.

The results should not take long, but I would imagine in addition or depending on what they find, they will refer you for a sweat test &/or genetic testing.

Make sure these are done by an Accredited CF Center to assure accuracy.

In the meantime, please feel free to ask ?? or just vent!

We have so many members that have been in your spot!

HUGS

 

[JazzysMom]

First of all Welcome to our site. It does sound like CF to me, but you do need to wait for actual results.

I would imagine he is culturing one of our special CF bacterias in his lungs given his breathing issues for so long.

I know its hard to grasp that he might have CF. BUT once you get a diagnosis & he is started on the PROPER treatment instead of just A treatment.....you will see a different kid.

The results should not take long, but I would imagine in addition or depending on what they find, they will refer you for a sweat test &/or genetic testing.

Make sure these are done by an Accredited CF Center to assure accuracy.

In the meantime, please feel free to ask ?? or just vent!

We have so many members that have been in your spot!

HUGS

 

[JazzysMom]

First of all Welcome to our site. It does sound like CF to me, but you do need to wait for actual results.
<br />
<br />I would imagine he is culturing one of our special CF bacterias in his lungs given his breathing issues for so long.
<br />
<br />I know its hard to grasp that he might have CF. BUT once you get a diagnosis & he is started on the PROPER treatment instead of just A treatment.....you will see a different kid.
<br />
<br />The results should not take long, but I would imagine in addition or depending on what they find, they will refer you for a sweat test &/or genetic testing.
<br />
<br />Make sure these are done by an Accredited CF Center to assure accuracy.
<br />
<br />In the meantime, please feel free to ask ?? or just vent!
<br />
<br />We have so many members that have been in your spot!
<br />
<br />HUGS

 

[Mommafirst]

Welcome to the site. I'm so very sorry you and your son are going through this. My daughter was diagnosed shortly after birth, and while CF is no fun, I'm glad that we didn't have to wait so long to get answers.

I hope its not CF for your son, but if it is, a good dosing of IV antibiotics appropriate for his culture might help him dramatically right away. And then, hopefully with proper preventative CF care, you will see a whole new kid.

(((HUGS)))
I know you are scared. I know that regardless of your suspicions that hearing the doctor say it makes your heart jump into your throat. But I also know that having some answers will eventually be a huge relief.

 

[Mommafirst]

Welcome to the site. I'm so very sorry you and your son are going through this. My daughter was diagnosed shortly after birth, and while CF is no fun, I'm glad that we didn't have to wait so long to get answers.

I hope its not CF for your son, but if it is, a good dosing of IV antibiotics appropriate for his culture might help him dramatically right away. And then, hopefully with proper preventative CF care, you will see a whole new kid.

(((HUGS)))
I know you are scared. I know that regardless of your suspicions that hearing the doctor say it makes your heart jump into your throat. But I also know that having some answers will eventually be a huge relief.

 

[Mommafirst]

Welcome to the site. I'm so very sorry you and your son are going through this. My daughter was diagnosed shortly after birth, and while CF is no fun, I'm glad that we didn't have to wait so long to get answers.

I hope its not CF for your son, but if it is, a good dosing of IV antibiotics appropriate for his culture might help him dramatically right away. And then, hopefully with proper preventative CF care, you will see a whole new kid.

(((HUGS)))
I know you are scared. I know that regardless of your suspicions that hearing the doctor say it makes your heart jump into your throat. But I also know that having some answers will eventually be a huge relief.

 

[Mommafirst]

Welcome to the site. I'm so very sorry you and your son are going through this. My daughter was diagnosed shortly after birth, and while CF is no fun, I'm glad that we didn't have to wait so long to get answers.

I hope its not CF for your son, but if it is, a good dosing of IV antibiotics appropriate for his culture might help him dramatically right away. And then, hopefully with proper preventative CF care, you will see a whole new kid.

(((HUGS)))
I know you are scared. I know that regardless of your suspicions that hearing the doctor say it makes your heart jump into your throat. But I also know that having some answers will eventually be a huge relief.

 

[Mommafirst]

Welcome to the site. I'm so very sorry you and your son are going through this. My daughter was diagnosed shortly after birth, and while CF is no fun, I'm glad that we didn't have to wait so long to get answers.
<br />
<br />I hope its not CF for your son, but if it is, a good dosing of IV antibiotics appropriate for his culture might help him dramatically right away. And then, hopefully with proper preventative CF care, you will see a whole new kid.
<br />
<br />(((HUGS)))
<br />I know you are scared. I know that regardless of your suspicions that hearing the doctor say it makes your heart jump into your throat. But I also know that having some answers will eventually be a huge relief.

 

[JORDYSMOM]

I'm so sorry. I know how scary this is. I've been there. My son wasn't dx until he was 15, and we went through all of the things you've mentioned. I was also told he would grow out of his asthma.

We are here for you. Ask anything you want, and feel free to just vent your fears and frustrations. Keep us posted.

Stacey

 

[JORDYSMOM]

I'm so sorry. I know how scary this is. I've been there. My son wasn't dx until he was 15, and we went through all of the things you've mentioned. I was also told he would grow out of his asthma.

We are here for you. Ask anything you want, and feel free to just vent your fears and frustrations. Keep us posted.

Stacey

 

[JORDYSMOM]

I'm so sorry. I know how scary this is. I've been there. My son wasn't dx until he was 15, and we went through all of the things you've mentioned. I was also told he would grow out of his asthma.

We are here for you. Ask anything you want, and feel free to just vent your fears and frustrations. Keep us posted.

Stacey

 

[JORDYSMOM]

I'm so sorry. I know how scary this is. I've been there. My son wasn't dx until he was 15, and we went through all of the things you've mentioned. I was also told he would grow out of his asthma.

We are here for you. Ask anything you want, and feel free to just vent your fears and frustrations. Keep us posted.

Stacey

 

[JORDYSMOM]

I'm so sorry. I know how scary this is. I've been there. My son wasn't dx until he was 15, and we went through all of the things you've mentioned. I was also told he would grow out of his asthma.
<br />
<br />We are here for you. Ask anything you want, and feel free to just vent your fears and frustrations. Keep us posted.
<br />
<br />Stacey