Hello everyone, Just wanted to give you an update on what is happening with my family member, who has cf. She is now in the hospital, after several weeks of slowly getting more and more sick. She is culturing MRSA and Pseudo, and her lung functions have dropped into the 40's. She is now on IV's and receiving treatment, and has also developed pneumonia on top of it all! While leading up to this hospitalization, she didn't slow down a bit, and continued pushing through, 103 degree fever and all. The only thing that slowed her down, was her doctor admitting her into the hospital, and that was after asking him to put it off for a few extra days! She had things to do! In many of our conversations, she still says that she really doesn't believe the doctors when they tell her that she needs to take care of herself, actually, she still doesn't believe that she has cf! I just want everyone to know, that your input to me, on how I could be a better support for her, has helped me deal with this, in a much better way than I would have before. Thank you, for being there for me, and others, who are desperate at times, to know how to deal!! Well, that's all for now! I'm praying for you! Chloe
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in the hospital again...
- Thread starter chloe
- Start date
not slowing down a bit when that sick is just going to cause more damage. i know cuz that's how i used to be, put it off til the last possible second. i have wised up now, though. i don't think there is anything anyone can say to make her realize what she is doing/how much she hurts herself when doing that. it is going to take a realization on her part to decide to take better care.
Thanks for the responses, I appreciate it more than I can say! I realized from one of the responses, that I needed to include my initial post, so that people could understand the medical history of my family member. I don't know how to post "The Thread" (?), so I'll just give the date of my initial post. It was on October 4th, at 8:50 a.m.. Once again, I'm so thankful for the responses so far, and look forward to hearing from anyone who could give me more understanding. Just so you know, I keep on checking in, everyday, not only to see responses, but to see if there is any question that I might be able to help someone with! Thanks again! Chloe
Chloe, I am so sorry to hear about your family member being in the hospital...I was much like her at one point in my life and I was a nurse! I would push myself until I was literally admitted right after work...I will admit that I was in denial, this was prior to my CF diagnosis, but usually it was a pulmonary issue that put me in the hospital. I would tell the docs I was okay and could make it through the shift...when inside I knew that I was sick and should not have been there in the first place. Call it stubborn or denial....it was all of the above. OVer the years, I have become very aware of my body, any decline and the doc gets a call...I learned the hard way not to wait until I am ready to collapse. I take my meds like a good girl and do what the doc asks of me these days. I am vent dependent now too...so that really makes me more aware of my pulmonary status. As far as your family member goes, just be there for him or her, and listen to her...there are always clues as to why he or she may be putting off treatment. I am sure the doc has read her the riot act too...like you said, maybe it's denial. I know it is hard to swallow a diagnosis like CF...My thoughts and prayers are going out to you and your family member. Hugs Jenn
Mockingbird
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The original thread. =-)
The original thread. =-)