blindhearted
New member
I posted on a previous Hypertonic Saline topic. I was wondering if people could share:
1. Their experiences with Hypertonic Saline?
2. How and when you take it?
3. What you can or can't take or mix it with?
4. And how much much are you on?
Or if you know of any positive, medical (yet understandable), or general articles about Hypertonic Saline.
The reason I am asking about HS is because from what I have read up here, I believe it is something that would help me. Since my FEV1 are in the mid 30s, I figure anything would help at this point is worth looking into. Following peoples advice, I asked my CF Specialist about it. His answer "I don't believe in it. There is no medical evidence on it. It causes bronchospasms. It's also hard to get." That was it. End of discussion. And those were the only excuses he gave me. Not even "Its your health, if you feel like it will work." or "If you want to try, it shouldn't hurt anything." or even a simple "The reasons I don't believe in it are...". I got his excuses, change of subject and he walked out the door.
Anything to help would be great. I want to collect as much information as possible on it (already looking for articles) and thought it might be a good idea to get other people with CF to give their points of view and say how it effects them. Hoping to have him reconsider his irrational decision about it.
Thanks so much for helping! <img src="i/expressions/face-icon-small-smile.gif" border="0">
1. Their experiences with Hypertonic Saline?
2. How and when you take it?
3. What you can or can't take or mix it with?
4. And how much much are you on?
Or if you know of any positive, medical (yet understandable), or general articles about Hypertonic Saline.
The reason I am asking about HS is because from what I have read up here, I believe it is something that would help me. Since my FEV1 are in the mid 30s, I figure anything would help at this point is worth looking into. Following peoples advice, I asked my CF Specialist about it. His answer "I don't believe in it. There is no medical evidence on it. It causes bronchospasms. It's also hard to get." That was it. End of discussion. And those were the only excuses he gave me. Not even "Its your health, if you feel like it will work." or "If you want to try, it shouldn't hurt anything." or even a simple "The reasons I don't believe in it are...". I got his excuses, change of subject and he walked out the door.
Anything to help would be great. I want to collect as much information as possible on it (already looking for articles) and thought it might be a good idea to get other people with CF to give their points of view and say how it effects them. Hoping to have him reconsider his irrational decision about it.
Thanks so much for helping! <img src="i/expressions/face-icon-small-smile.gif" border="0">