information please

[anonymous]

Hi,
My daughter has always been tiny, basically dropped right off the growth curve now (she is 2) and has been having recurring diarrhea for several months (comes and goes). She is being referred and our GP mentioned that one of the tests they are likely to do is for CF (also said would test for celiac disease). I know that it would be the sweat test, but I am wondering, how long does it take and when do you get the results. We have always assumed she is just little. I think not knowing is just so darn stressful. Any advice would be great, thanks so much.
Heather

 

[anonymous]

Hi,
My daughter has always been tiny, basically dropped right off the growth curve now (she is 2) and has been having recurring diarrhea for several months (comes and goes). She is being referred and our GP mentioned that one of the tests they are likely to do is for CF (also said would test for celiac disease). I know that it would be the sweat test, but I am wondering, how long does it take and when do you get the results. We have always assumed she is just little. I think not knowing is just so darn stressful. Any advice would be great, thanks so much.
Heather

 

[Jane]

Hi Heather,
The results of a sweat test for cf are usually immediate. Not knowing is stressful. Once you find out either way, you'll have support from us.

good luck

jane

 

[Jane]

Hi Heather,
The results of a sweat test for cf are usually immediate. Not knowing is stressful. Once you find out either way, you'll have support from us.

good luck

jane

 

[miesl]

You should make sure that the sweat test will be performed at a CF Center. A list of CF centers can be found at the <a target=new class=ftalternatingbarlinklarge href="http://www.cff.org">CFF website</a>.

 

[miesl]

You should make sure that the sweat test will be performed at a CF Center. A list of CF centers can be found at the <a target=new class=ftalternatingbarlinklarge href="http://www.cff.org">CFF website</a>.

 

[karon72]

We found out the sweat test results in about three days. I guess it depends on what lab/hospital you go to. Good luck to you & your daughter!

 

[karon72]

We found out the sweat test results in about three days. I guess it depends on what lab/hospital you go to. Good luck to you & your daughter!

 

[anonymous]

Thanks! I am in Canada so I am wondering if it is the same-do they have accredited facilities here too, or does anyone know if it works differently? So, when you say the test results are immediate, do they tell you right then and there, or do you have to wait for a call from your doctor? I haven't actually told my husband what the tests are for-not really sure how to tell him, he gets easily worried and I am not sure if better to jsut wait? By the way, this site is amazing!

 

[anonymous]

Thanks! I am in Canada so I am wondering if it is the same-do they have accredited facilities here too, or does anyone know if it works differently? So, when you say the test results are immediate, do they tell you right then and there, or do you have to wait for a call from your doctor? I haven't actually told my husband what the tests are for-not really sure how to tell him, he gets easily worried and I am not sure if better to jsut wait? By the way, this site is amazing!

 

[karon72]

The official webiste of the Canadian Cystic Fibrosis Foundation is http://www.ccff.ca/home.asp... it should have links to the care centers or clinics.

 

[karon72]

The official webiste of the Canadian Cystic Fibrosis Foundation is http://www.ccff.ca/home.asp... it should have links to the care centers or clinics.

 

[LoveShines4Austin]

13 years ago when Austin was diagnosed, the sweat test was fairly simple. They just put a solution (I have no idea what it was) on his upper arm and then attached some very small electrodes to the skin. Then they covered it will a saran wrap like cover. All they did was run a VERY light current to heat up the area to produce the sweat I guess. Austin said it tickled and was kind of uncomfortable but he made it through. He was 3, so any testing like that scared him. He had it done twice and like everyone else said, it in not invasive. It may have changed over the years, but it's still simple, I'm sure.

Is there a chance, that if you tell your husband, he can be there to hold you and support you? Will he be upset if you keep this from him? I'm not going to tell you not to worry, because I have been exactly where you are right now...just try and keep some smiles around for your daughter when you look at her and hold her. She has no idea what's going on, but she'll notice if Mommy is sad. I sure hope this makes sense and doesn't sound offensive to you or anyone else. I feel like I'm butting in but you sound scared and any advice that's given to you right now can either be taken with a grain (no pun intended, I swear!) or taken to heart. Just follow your heart and gut feelings, I guess.

 

[LoveShines4Austin]

13 years ago when Austin was diagnosed, the sweat test was fairly simple. They just put a solution (I have no idea what it was) on his upper arm and then attached some very small electrodes to the skin. Then they covered it will a saran wrap like cover. All they did was run a VERY light current to heat up the area to produce the sweat I guess. Austin said it tickled and was kind of uncomfortable but he made it through. He was 3, so any testing like that scared him. He had it done twice and like everyone else said, it in not invasive. It may have changed over the years, but it's still simple, I'm sure.

Is there a chance, that if you tell your husband, he can be there to hold you and support you? Will he be upset if you keep this from him? I'm not going to tell you not to worry, because I have been exactly where you are right now...just try and keep some smiles around for your daughter when you look at her and hold her. She has no idea what's going on, but she'll notice if Mommy is sad. I sure hope this makes sense and doesn't sound offensive to you or anyone else. I feel like I'm butting in but you sound scared and any advice that's given to you right now can either be taken with a grain (no pun intended, I swear!) or taken to heart. Just follow your heart and gut feelings, I guess.

 

[anonymous]

Thanks for the kind word Laurel and of course I didn't take any offense! I did tell him about what the tests would be for, and he was pretty stressed but is much better after I explained it further. I think he thought if they were testing, she most likely is positive, and really that isn't the case. The doc said it is precautionary-so fingers crossed! We have a 3 week wait to see the specialist and then book testing from there-all this waiting!! Thanks again for the advice, most appreciated.

 

[anonymous]

Thanks for the kind word Laurel and of course I didn't take any offense! I did tell him about what the tests would be for, and he was pretty stressed but is much better after I explained it further. I think he thought if they were testing, she most likely is positive, and really that isn't the case. The doc said it is precautionary-so fingers crossed! We have a 3 week wait to see the specialist and then book testing from there-all this waiting!! Thanks again for the advice, most appreciated.