Hello,<br>
<br>
I tried to intro myself on the 'newly diagnosed' board but it
didn't quite work. <br>
<br>
I'm 29 yrs old and a mom to my wonderful baby boy Eli who was just
diagnosed with CF two weeks ago. Eli will be one year old on
October 31rst. He was born full term and gained well up until
about 6 months. At that point his weight started dropping off
and he developed a persistent cough. As the months went
on we were all thinking reflux which he does have. At 10
months he got his first real cold that just did not end and
continued to lose weight. About two weeks ago he was admitted
to Loyola Hospital in Maywood, IL (we live in Oak Park for those of
you who might live around Chicago). We were pretty happy with
our care there and met all of the members of the CF team. The
CF nurse on that team is great. She spent so much time with
us at the hospital and wants us to call her any time if ANYTHING
comes up. I think that I would be comfortable going to their
CF clinic but I have nothing to compare it to. I know there
are a few CF clinics in and around Chicago and I was wondering if
anyone could share their experiences good or bad.<br>
<br>
I also just wanted to say hello.<br>
<br>
Sarah<br>
<br>
<br>
I tried to intro myself on the 'newly diagnosed' board but it
didn't quite work. <br>
<br>
I'm 29 yrs old and a mom to my wonderful baby boy Eli who was just
diagnosed with CF two weeks ago. Eli will be one year old on
October 31rst. He was born full term and gained well up until
about 6 months. At that point his weight started dropping off
and he developed a persistent cough. As the months went
on we were all thinking reflux which he does have. At 10
months he got his first real cold that just did not end and
continued to lose weight. About two weeks ago he was admitted
to Loyola Hospital in Maywood, IL (we live in Oak Park for those of
you who might live around Chicago). We were pretty happy with
our care there and met all of the members of the CF team. The
CF nurse on that team is great. She spent so much time with
us at the hospital and wants us to call her any time if ANYTHING
comes up. I think that I would be comfortable going to their
CF clinic but I have nothing to compare it to. I know there
are a few CF clinics in and around Chicago and I was wondering if
anyone could share their experiences good or bad.<br>
<br>
I also just wanted to say hello.<br>
<br>
Sarah<br>
<br>