Perhaps you would like to know about a support group for parents called "CF
Loss." It was started by Laura Gould after her son, Graham, died just shy of
his 17th birthday. Membership is restricted to CF parents/family/friends, so there is not so
much need to discuss background information or "compare notes" with those whose
children died from other causes and we can get right to the heart of the matter.
In order to join, you have to visit the site and leave a message asking for
membership. Laura will get back to you and let you know that you have access to
the site. I would suggest that you set your preferences so that you receive all
messages in e-mail. There are not so many messages that it will overload your
in-box and it is more convenient than going to visit the site all the time. You
may wish to actually log on from time-to-time to view photos or upload your own.
<a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/cfloss/
">http://health.groups.yahoo.com/group/cfloss/
</a>
I hope that you find this information useful.
Sandy
Loss." It was started by Laura Gould after her son, Graham, died just shy of
his 17th birthday. Membership is restricted to CF parents/family/friends, so there is not so
much need to discuss background information or "compare notes" with those whose
children died from other causes and we can get right to the heart of the matter.
In order to join, you have to visit the site and leave a message asking for
membership. Laura will get back to you and let you know that you have access to
the site. I would suggest that you set your preferences so that you receive all
messages in e-mail. There are not so many messages that it will overload your
in-box and it is more convenient than going to visit the site all the time. You
may wish to actually log on from time-to-time to view photos or upload your own.
<a target=_blank class=ftalternatingbarlinklarge href="http://health.groups.yahoo.com/group/cfloss/
">http://health.groups.yahoo.com/group/cfloss/
</a>
I hope that you find this information useful.
Sandy