The other day was my daughter's 3 mo ck up at the CF doc. I had some concerns regarding her stomach problems. She always complains of her tummy hurting and from what I've noticed from reading other peoples tummy problems is that it is related to enzymes but my daughter is pancreatic sufficient. But she needs Miralax every day to not be constipated. Her doc said that the constipation has nothing to do with cf and that some kids are just naturally constipated. She is also very small for her age, like someone that would need enzymes. She was a big ol baby til around 2yr old and when she went in for her ck up, that's when her pedi suggested she might have cf due to failure to thrive. But if she absorbs her fats then why is she so little? Couldn't the mucus still affect her tummy too? I asked the doc that since there aren't that many people with cf that are pan suff that maybe there's not enough studies done on it to know if it would cause constipation and she said it was possible. Does anyone know about this?
Also, it concerned me that she told me there was no reason for Makailyn to miss school due to cf. She said that because her lung functions are good and that kids that have 50% lung function go to school every day that there's no reason for Makailyn to miss. 50%!! Could that be right? And what about the fact that she has pseudemonas and staph? Doesn't that tire her body trying to fight those bugs? Or all the treatments before and after school, being at school all day,tummy hurting, up all through the night sometimes coughing up mucus, etc,etc. And the way she said it, really stern, like I'm some kind of unfit mother that just lets her stay home for no reason. It really bothered me. I mean, I difinately want Makailyn to have a "normal" life but I don't want to make her worse by pushing her to do too much. Well, thanks for "listening". Any advice is definately appreciated.
<img src="http://i426.photobucket.com/albums/pp350/katie620_01/073-1.jpg">
Also, it concerned me that she told me there was no reason for Makailyn to miss school due to cf. She said that because her lung functions are good and that kids that have 50% lung function go to school every day that there's no reason for Makailyn to miss. 50%!! Could that be right? And what about the fact that she has pseudemonas and staph? Doesn't that tire her body trying to fight those bugs? Or all the treatments before and after school, being at school all day,tummy hurting, up all through the night sometimes coughing up mucus, etc,etc. And the way she said it, really stern, like I'm some kind of unfit mother that just lets her stay home for no reason. It really bothered me. I mean, I difinately want Makailyn to have a "normal" life but I don't want to make her worse by pushing her to do too much. Well, thanks for "listening". Any advice is definately appreciated.
<img src="http://i426.photobucket.com/albums/pp350/katie620_01/073-1.jpg">