<P>Courtney ended up in the hospital yesterday with a 104 fever and a cough. They let us come home today since the fever broke.Please bare with me because I have a lot of questions to ask.Courtney has never had any lung issues before. While in the hospital we got to see one of the best pulmonary docs in town. He had her do PFTs, sputum culture, and chest x-rays.He stated that the x-rays showed some CF damage to the lungs, not a lot, but some. I COULDN"T BELIEVE THIS WHEN I HEARD IT! I guess I have made myself believe over the years that we would be the "special CF case" and we would not have to deal with the lung issues. I know that is pretty dumb of me, but I think that is how I was able to deal with it all.Okay here are my questions............What are normal FEV levels for PFTs?What are considered "dangerous bugs" that show up in sputum cultures?Courtney showed positive cultures forBACILLIPOLYMORPHONUCLEAR CELLSDIPLOCOCCIbut was told that these were "normal bugs in the lungs"?!?!?!?Any info will help.....I am quite confused with all of this new info.ThanksSeana</P>
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JUST GOT HOME FROM THE HOSPITAL
- Thread starter Seana30
- Start date
<P>Courtney ended up in the hospital yesterday with a 104 fever and a cough. They let us come home today since the fever broke.Please bare with me because I have a lot of questions to ask.Courtney has never had any lung issues before. While in the hospital we got to see one of the best pulmonary docs in town. He had her do PFTs, sputum culture, and chest x-rays.He stated that the x-rays showed some CF damage to the lungs, not a lot, but some. I COULDN"T BELIEVE THIS WHEN I HEARD IT! I guess I have made myself believe over the years that we would be the "special CF case" and we would not have to deal with the lung issues. I know that is pretty dumb of me, but I think that is how I was able to deal with it all.Okay here are my questions............What are normal FEV levels for PFTs?What are considered "dangerous bugs" that show up in sputum cultures?Courtney showed positive cultures forBACILLIPOLYMORPHONUCLEAR CELLSDIPLOCOCCIbut was told that these were "normal bugs in the lungs"?!?!?!?Any info will help.....I am quite confused with all of this new info.ThanksSeana</P>
Hi Seana,
The first time I heard the doctor say my son's lungs showed damaged, I was totally surprised too! He was 9, had never been on IV antibiotics and was very healthy. I guess even slight changes on an x-ray are considered damage even if the patient doesn't have any health changes.
You've had a rough week! Its a good thing they let Courtney come home, what caused her fever? ANy word on the blood sugar? I think I told you that my son recently went on insulin. As it turned out, at his clinic visit today his doc told us that one of his meds (gatifloxicen) can cause elevated blood sugar. So now we don't know if he has CFRD or just a side effect from this med. It always something.
In addition to the list of regular bugs cfers get (I know someone else replied with that list), there are a-typical bacteria (similar to TB). Also they can be allergic to aspergillus (mold) that can cause symptoms like worsening cf stuff. Its treated with prednisone.
All to learn. The more I learn, the more I realize I have to learn more. (How's that for a quote?)
jane
The first time I heard the doctor say my son's lungs showed damaged, I was totally surprised too! He was 9, had never been on IV antibiotics and was very healthy. I guess even slight changes on an x-ray are considered damage even if the patient doesn't have any health changes.
You've had a rough week! Its a good thing they let Courtney come home, what caused her fever? ANy word on the blood sugar? I think I told you that my son recently went on insulin. As it turned out, at his clinic visit today his doc told us that one of his meds (gatifloxicen) can cause elevated blood sugar. So now we don't know if he has CFRD or just a side effect from this med. It always something.
In addition to the list of regular bugs cfers get (I know someone else replied with that list), there are a-typical bacteria (similar to TB). Also they can be allergic to aspergillus (mold) that can cause symptoms like worsening cf stuff. Its treated with prednisone.
All to learn. The more I learn, the more I realize I have to learn more. (How's that for a quote?)
jane
Hi Seana,
The first time I heard the doctor say my son's lungs showed damaged, I was totally surprised too! He was 9, had never been on IV antibiotics and was very healthy. I guess even slight changes on an x-ray are considered damage even if the patient doesn't have any health changes.
You've had a rough week! Its a good thing they let Courtney come home, what caused her fever? ANy word on the blood sugar? I think I told you that my son recently went on insulin. As it turned out, at his clinic visit today his doc told us that one of his meds (gatifloxicen) can cause elevated blood sugar. So now we don't know if he has CFRD or just a side effect from this med. It always something.
In addition to the list of regular bugs cfers get (I know someone else replied with that list), there are a-typical bacteria (similar to TB). Also they can be allergic to aspergillus (mold) that can cause symptoms like worsening cf stuff. Its treated with prednisone.
All to learn. The more I learn, the more I realize I have to learn more. (How's that for a quote?)
jane
The first time I heard the doctor say my son's lungs showed damaged, I was totally surprised too! He was 9, had never been on IV antibiotics and was very healthy. I guess even slight changes on an x-ray are considered damage even if the patient doesn't have any health changes.
You've had a rough week! Its a good thing they let Courtney come home, what caused her fever? ANy word on the blood sugar? I think I told you that my son recently went on insulin. As it turned out, at his clinic visit today his doc told us that one of his meds (gatifloxicen) can cause elevated blood sugar. So now we don't know if he has CFRD or just a side effect from this med. It always something.
In addition to the list of regular bugs cfers get (I know someone else replied with that list), there are a-typical bacteria (similar to TB). Also they can be allergic to aspergillus (mold) that can cause symptoms like worsening cf stuff. Its treated with prednisone.
All to learn. The more I learn, the more I realize I have to learn more. (How's that for a quote?)
jane
Thanks for the responses.My name is pronounced Shawna. It is the Irish spelling. Just like Sean.We both are doing much better today! With me just having oral surgery I think it was all just a little to much to handle! Courtney's fever is gone, and I think she will be heading back to school tomorrow!We had to reschedule her blood glucose tolerance test for next week since she was in the hospital, so we will find out about that soon.They think she just picked up an ugly bug at school and that is what was causing the fever. I guess I am going to have to go talk to the teachers again because while we were in the hospital Courtney was telling me that there is this boy that keeps coughing all over her in class!!!Okay, going to make this short, the kids are getting out of school.Seana
Thanks for the responses.My name is pronounced Shawna. It is the Irish spelling. Just like Sean.We both are doing much better today! With me just having oral surgery I think it was all just a little to much to handle! Courtney's fever is gone, and I think she will be heading back to school tomorrow!We had to reschedule her blood glucose tolerance test for next week since she was in the hospital, so we will find out about that soon.They think she just picked up an ugly bug at school and that is what was causing the fever. I guess I am going to have to go talk to the teachers again because while we were in the hospital Courtney was telling me that there is this boy that keeps coughing all over her in class!!!Okay, going to make this short, the kids are getting out of school.Seana