Hi,My 3 yr old is constantly complaining about knee pain (mostly her right knee). On occassion she will also say her hips hurt. I spoke to my clinic nurse and she says it is common to have joint pain with CF and that little is known about it. Does anyone have any info on this, or any tips on how to relieve her pain? Sometimes she will wake in the middle of the night screaming with pain because it hurts so bad.Any info would be appreciated.AM
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Knee Pain
- Thread starter anonymous
- Start date
AM Arthritis and joint pain are very common. Worse in females, worse during infection and mensturation. I get it all the time and it is a drag. I know it hurts, and I've woken up at night too, but your 3 year old may be exagerating because her emotions are high and she doesn't like the discomfort. When she is older, they may reccomend high doses of ibuprofen. A good idea but it isn't good to use it to often or too long. My rheumatologist has reccomended tylenol when the pain acts up. I am on Vioxx once a day and it has kept the pain at bay w/o the side effects of ib. I don't know about the recomendation for small children, but it would be worth asking about. Let her soak in the bath tub when it flares up, I usually dissolve a cup or two of epsom salt in my bath water. If you use it, don't worry if some of the water gets in her mouth, it's often used as a laxitive. I also use heat, cold packs. Keep her hydrated.Hope it helps, let her know she's not alone!<img src="i/expressions/face-icon-small-smile.gif" border="0">Debbie22 yr old w/ cf
I also have CF related arthritis....I have had it since I was about 10....it is now an extreme pain when I have a flare up....ibuprofen and regular meds...dont even touch it. Mine is suca an extreme pain that I cant move at all! But when I was younger before it got too bad...ibuprofen worked...also used celebrex for about 2 years. Now that I have had it for so long...the only thing that works is prednisone. I am seeing a new rheumatologist though...and he is doing some research on CF and this kind of arthritis. I will post if I hear anything from my doc. Dea
When my daughter was 3 she had severe knee pain. It turned out to be caused by Cipro. The pain went away when the Cipro was discontinued. They didn't put her on Cipro again for 3 year until this past summer. Now being a little older and keeping the time on it shorter she has had no knee pain with it. If your daughter is on Cipro, joint pain is a common reaction in young children.