Learning about CF

[Bubbalove]

Does anyone recommend a good book or movie about CF and ALL the aspects of it?

 

[SeasonsOfLove]

Give Me One Wish by Jacquie Gordon is a terrific book.

 

[reillybug]

Cystic Fibrosis: A Guide for Patient and Family by Dr. David Orenstein is very informative. It puts everything in laymans terms, and is easy to understand. My Daughters CF Clinic actually loans this book out to new patients.
Good luck!

 

[SeasonsOfLove]

Yes - I almost mentioned this book in my earlier reply - this is a fantastic book for learning about the medical side of CF.

 

[anonymous]

Bubba, visit this website <a target=new class=ftalternatingbarlinklarge href="http://www.mycysticfibrosis.com/growing_older.asp">http://www.mycysticfibrosis.com/growing_older.asp</a> If you register as a user of mycysitfibrosis.com you can recieve this book for free. It is a great resource. Also, ask ask ask questions on this website. There is a whole lot to learn about CF and most questions are best answered by speaking with others. Way to be proactive!!


Julie (wife to Mark 24 w/CF)

 

[NoDayButToday]

I LOVE Give Me One Wish. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

Thanks!!

 

[thefrogprincess]

Breathing For a Living by Laura ROthenburg gives a really good look at transplant. I wouldn't recommmend it for someone who just got diagnosed or whose child just got diagnosed though, learn a little more about CF first.

 

[anonymous]

The one that Reilly bug mentioned is brilliant. It goes through everything assosicated with cf, an excellent guide. Just check the year of publishing if you get it, because they update them, what with advancing treatments and everything.

Shamrock, x

 

[rotandroll]

The movie "Sick: The Life of Supermasochist Bob Flanagan".

Just kidding.

Sort of.