kristinsangels
New member
Hello Everyone,
My name is Kristin. I was born with the DeltaF508 gene. I decided to start a blog and tell everyone my day to day life. I feel that it may help some and give others insight. My story started way back when I was a baby. I am now 18 years old and living life to the absolute fullest. People do not understand Cystic Fibrosis. If you do not show a physical disability, nobody thinks twice. My helath is dramatically declining, it really has been bad over the past nine months. I have been on IV antibiotics for 7 weeks at a time. My treatments, meds, and IVs are becoming more frequent. I had IVs the whole month of September, half of October, part of December, all of January, and all of March, April and most of May. I just got done with them. I require oxygen when walking around my ranch home, when before September I only used it at night. I am also writing a book of my life called Angel Wings and Butterfly Kisses. Even though I have this disease, it doesn't define me. I take care of myself like I should and thats so I can be around my friends and family longer. My story is a long one! But I would love to share it.
I will blog tomorrow and tell you more! Thank you for reading and I hope you guys will read my story on here
Goodnight!
My name is Kristin. I was born with the DeltaF508 gene. I decided to start a blog and tell everyone my day to day life. I feel that it may help some and give others insight. My story started way back when I was a baby. I am now 18 years old and living life to the absolute fullest. People do not understand Cystic Fibrosis. If you do not show a physical disability, nobody thinks twice. My helath is dramatically declining, it really has been bad over the past nine months. I have been on IV antibiotics for 7 weeks at a time. My treatments, meds, and IVs are becoming more frequent. I had IVs the whole month of September, half of October, part of December, all of January, and all of March, April and most of May. I just got done with them. I require oxygen when walking around my ranch home, when before September I only used it at night. I am also writing a book of my life called Angel Wings and Butterfly Kisses. Even though I have this disease, it doesn't define me. I take care of myself like I should and thats so I can be around my friends and family longer. My story is a long one! But I would love to share it.
I will blog tomorrow and tell you more! Thank you for reading and I hope you guys will read my story on here
Goodnight!