I am so sorry it took so long to reply to your message. As you know, toddlers can keep you pretty busy!!!!
We continue to participate in the Hope program and they are so great. Ethan Sky is now 2 so we have increased his products a bit.
....until he was 2, he was on 1/2 teaspoon ambrotose 3 times daily
....1 capsule sport 2 times daily.....1/4 teaspoon phyt-aloe daily
They did suggest a higher dose of phyt-aloe but his poops got all crazy because of the fiber.
We also get emprizone in our package. Some people have been putting it in their breathing treatments. Ethan Sky is not on breathing treatments, but I do put it in our humidifier.
Before his diagnosis, Ethan Sky had protien losing enteropathy at 3 months old. I was made to stop breastfeed and he was placed on special formula and the problem went away. Thus far he has had no problems.
He is on 4 Creon 5 but it has not been increased in close to a year. I really think it is the sport (a natural anti-inflammatory) that is helping that. He is in the 10 percentile for height and the doctors say he should be in the 75th percentile, but he is growing at a speed all are happy with.
Hope this helps....e-mail me if you have any questions...
heleadsmyway@cox.net
