low fev and frustration

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ihatecf

New member
Hi all,

To those who have fevs in the 20s, how do u feel currently? I feel so bad as I cant put any effort in anything. Going upstairs and walking long distances leave me breathless not to mention the sex thing which is so frustrating. I wonder if its different with everyone, but I feel that the low 20s are just too much for me to handle. Thank you.
 
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JazzysMom

New member
Not getting any air is the most frustrating thing & scary thing I have experienced. I can handle being congested or coughing my brains out much easier that not moving air. My life took a nose dive during the months that I was so low on my fev this year. Sex.....I almost forgot what that it. If it wasnt for my hubby reminding me I might have. I dont have any real advice for you, Rami......I wish I did except to not get upset about what you cant do. Look for what you can even if its not what you desire at the moment!
 
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mustangmousa

New member
I know what you're going through!! My FEV1 is about 23% right now and I can't do squat!! I just sit around all day hooked up to my O2 and do NOTHING! I absolutely hate it. Showering and getting dressed is the hardest part of the day. Hardly have sex anymore which sucks! I would do anything to be able to live again! Are you on a transplant list? My only hope is that I will be getting a transplant in the next couple of months. I guess there is no easy way to get through this, but just know that you aren't alone.
 
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Marjolein

New member
My fev1 is around 17% at the moment. And lucky for me i don't o2 during the day. At home i can do what i want, though i am always tired, sometimes very very tired. I have my wheelchair for long distances and have o2 with me when i go to the gym. I only went active on the list again this week, cause before this year i could do relatively much like go shopping for hours(although at my own pace) even though my fev1 was allready mid 20..

Good luck Rami! And thank you for your message on my site (that was you? am i right?)
 
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anonymous

New member
My FEV's aren't that low (yet), but I totally understand your sex comment. My boyfriend thinks it's funny (but it's not!) because every time we have sex, afterwards I have a coughing fit. It never fails. He makes a big joke out of it, saying stuff like "wow, I really got you out of breath that time" and retarded stuff like that. He's very supportive, just a huge weiner!! And a few times (God forbid), we have had to stop in the middle so I could cough or catch my breath. The joys of CF are neverending.
 
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