LuvMy2Girls
New member
Madelyn now weighs about 16lbs and is 7 mths old. She still keeps fluid on both lungs though. The pulmacort makes her cough and choke really bad but they said that was good. She's on antibiotics constantly though and it worries me that soon they will be useless. One question though...after madelyn's first sweat test a lady who had a child with cf said they only do a sweat test twice if the blood comes back positive. The other day my mom called and the hospital said they didn't know what was going on withthe blood test that they didn't have it. BUT they want to do another sweat test. I have been waiting 2 mths on the results. Could they really be in and they are waiting on telling me? She is still not crawling. Although, she can say a few words. I can't seem to get her to eat baby food. She chokes and coughs up a handful of mucus and has started resisting any baby food. So, at 7 mths she is still only getting formula. I've watered it down a lot ND IT DOESN'T HELP. She actually spent her first night away and the lady said she was choking and she knew about her problems so she was going to let her cough it up. She started turning colors and she thought maybe my 2 yr old put something in her mouth and stuck her fingers down her throat and she threw up. She said she literally threew up nothiing but a handful of mucus. She said she doesn't even knoiw how she got that much out. I'm very upset with how long the hospitaOL IS TAKING ON THIS B/C WE HAVE TO GET SOMETHING DONE. She still gets yeast infections horribly and her poop is still the same as newborns. They actually told me that was normal like I don't allready have a child. Mentally she is developing great, but not physically. Can it eventually affect her mentally? I kind of just needed to vent.