Max and his low oxygen level

[paugh22]

hello
Max was in the hospital for 8 days in February because his oxygen level was 86 (95-100 being normal) They put him on oxygen for 5 of the days until he could hold hid own. Also they are treating his wheezing which he has been doing since November. The oxygen level really scares me. They told me what to look for by how he is breathing (nostrals flaring, pushed in belly while breathing) I don't know if its me, but I just cannot tell. i didnt know anything was wrong in the first place, we had gone to the pediatrician for his monthly synagis shot, next thing i knew we were in an ambulance on our way to the hospital.
Ive asked the cf clinic about a pulsocs (not sure of the spelling) machine but she said i would drive myself crazy if i had one. Has anyone else gone through anything like this with oxygen levels???

 

[paugh22]

hello
Max was in the hospital for 8 days in February because his oxygen level was 86 (95-100 being normal) They put him on oxygen for 5 of the days until he could hold hid own. Also they are treating his wheezing which he has been doing since November. The oxygen level really scares me. They told me what to look for by how he is breathing (nostrals flaring, pushed in belly while breathing) I don't know if its me, but I just cannot tell. i didnt know anything was wrong in the first place, we had gone to the pediatrician for his monthly synagis shot, next thing i knew we were in an ambulance on our way to the hospital.
Ive asked the cf clinic about a pulsocs (not sure of the spelling) machine but she said i would drive myself crazy if i had one. Has anyone else gone through anything like this with oxygen levels???

 

[paugh22]

hello
Max was in the hospital for 8 days in February because his oxygen level was 86 (95-100 being normal) They put him on oxygen for 5 of the days until he could hold hid own. Also they are treating his wheezing which he has been doing since November. The oxygen level really scares me. They told me what to look for by how he is breathing (nostrals flaring, pushed in belly while breathing) I don't know if its me, but I just cannot tell. i didnt know anything was wrong in the first place, we had gone to the pediatrician for his monthly synagis shot, next thing i knew we were in an ambulance on our way to the hospital.
Ive asked the cf clinic about a pulsocs (not sure of the spelling) machine but she said i would drive myself crazy if i had one. Has anyone else gone through anything like this with oxygen levels???

 

[paugh22]

hello
Max was in the hospital for 8 days in February because his oxygen level was 86 (95-100 being normal) They put him on oxygen for 5 of the days until he could hold hid own. Also they are treating his wheezing which he has been doing since November. The oxygen level really scares me. They told me what to look for by how he is breathing (nostrals flaring, pushed in belly while breathing) I don't know if its me, but I just cannot tell. i didnt know anything was wrong in the first place, we had gone to the pediatrician for his monthly synagis shot, next thing i knew we were in an ambulance on our way to the hospital.
Ive asked the cf clinic about a pulsocs (not sure of the spelling) machine but she said i would drive myself crazy if i had one. Has anyone else gone through anything like this with oxygen levels???

 

[paugh22]

hello
<br />Max was in the hospital for 8 days in February because his oxygen level was 86 (95-100 being normal) They put him on oxygen for 5 of the days until he could hold hid own. Also they are treating his wheezing which he has been doing since November. The oxygen level really scares me. They told me what to look for by how he is breathing (nostrals flaring, pushed in belly while breathing) I don't know if its me, but I just cannot tell. i didnt know anything was wrong in the first place, we had gone to the pediatrician for his monthly synagis shot, next thing i knew we were in an ambulance on our way to the hospital.
<br />Ive asked the cf clinic about a pulsocs (not sure of the spelling) machine but she said i would drive myself crazy if i had one. Has anyone else gone through anything like this with oxygen levels???

 

[pjspiegle]

Yes! Still do even after 14 years along with others that I know.

I finally did get them to give me a pulse ox because I assured them that I would feel more at ease and less crazy with one than without one. I assured them that I would only check his levels 2x's a day, unless there is a reason to do more checks. They finally agreed and I have heard that they are getting more relaxed about getting them for others as well. As matter of fact, they wanted my friend that has 2 with CF to get one but she was afraid it would drive her crazy.

It took me over 12 years to finally get one, but now they are more at ease about it, especially if there is a legit reason for it. Perhaps try letting them know that you would be able to relax more and actually be less stressed if you had one and promise to only check 1-2 times a day or on a as needed bases. Persistance is sometimes the key, doesn't always work, but sometimes worth a try.

 

[pjspiegle]

Yes! Still do even after 14 years along with others that I know.

I finally did get them to give me a pulse ox because I assured them that I would feel more at ease and less crazy with one than without one. I assured them that I would only check his levels 2x's a day, unless there is a reason to do more checks. They finally agreed and I have heard that they are getting more relaxed about getting them for others as well. As matter of fact, they wanted my friend that has 2 with CF to get one but she was afraid it would drive her crazy.

It took me over 12 years to finally get one, but now they are more at ease about it, especially if there is a legit reason for it. Perhaps try letting them know that you would be able to relax more and actually be less stressed if you had one and promise to only check 1-2 times a day or on a as needed bases. Persistance is sometimes the key, doesn't always work, but sometimes worth a try.

 

[pjspiegle]

Yes! Still do even after 14 years along with others that I know.

I finally did get them to give me a pulse ox because I assured them that I would feel more at ease and less crazy with one than without one. I assured them that I would only check his levels 2x's a day, unless there is a reason to do more checks. They finally agreed and I have heard that they are getting more relaxed about getting them for others as well. As matter of fact, they wanted my friend that has 2 with CF to get one but she was afraid it would drive her crazy.

It took me over 12 years to finally get one, but now they are more at ease about it, especially if there is a legit reason for it. Perhaps try letting them know that you would be able to relax more and actually be less stressed if you had one and promise to only check 1-2 times a day or on a as needed bases. Persistance is sometimes the key, doesn't always work, but sometimes worth a try.

 

[pjspiegle]

Yes! Still do even after 14 years along with others that I know.

I finally did get them to give me a pulse ox because I assured them that I would feel more at ease and less crazy with one than without one. I assured them that I would only check his levels 2x's a day, unless there is a reason to do more checks. They finally agreed and I have heard that they are getting more relaxed about getting them for others as well. As matter of fact, they wanted my friend that has 2 with CF to get one but she was afraid it would drive her crazy.

It took me over 12 years to finally get one, but now they are more at ease about it, especially if there is a legit reason for it. Perhaps try letting them know that you would be able to relax more and actually be less stressed if you had one and promise to only check 1-2 times a day or on a as needed bases. Persistance is sometimes the key, doesn't always work, but sometimes worth a try.

 

[pjspiegle]

Yes! Still do even after 14 years along with others that I know.
<br />
<br />I finally did get them to give me a pulse ox because I assured them that I would feel more at ease and less crazy with one than without one. I assured them that I would only check his levels 2x's a day, unless there is a reason to do more checks. They finally agreed and I have heard that they are getting more relaxed about getting them for others as well. As matter of fact, they wanted my friend that has 2 with CF to get one but she was afraid it would drive her crazy.
<br />
<br />It took me over 12 years to finally get one, but now they are more at ease about it, especially if there is a legit reason for it. Perhaps try letting them know that you would be able to relax more and actually be less stressed if you had one and promise to only check 1-2 times a day or on a as needed bases. Persistance is sometimes the key, doesn't always work, but sometimes worth a try.

 

[Ratatosk]

DS had some issues with airtrapping and refracting (?) when he was about 5-8 months old. We were told to count his respirations -- can't remember how many breaths during a minute was too fast and the nasal flaring. Only time he breathed too fast was when he had an ear infection and spiked a fever.

He too had synagis shots and a couple of times he developed a wheeze during this time period. Wasn't a constant, just off and on -- so I'd steam up the bathroom and give him a bath in the morning and before bed. We also increased his CPT -- added another beatment late at night, increased the amount of time doing his cpt, too. To "beat that cough (wheeze) out of him".

 

[Ratatosk]

DS had some issues with airtrapping and refracting (?) when he was about 5-8 months old. We were told to count his respirations -- can't remember how many breaths during a minute was too fast and the nasal flaring. Only time he breathed too fast was when he had an ear infection and spiked a fever.

He too had synagis shots and a couple of times he developed a wheeze during this time period. Wasn't a constant, just off and on -- so I'd steam up the bathroom and give him a bath in the morning and before bed. We also increased his CPT -- added another beatment late at night, increased the amount of time doing his cpt, too. To "beat that cough (wheeze) out of him".

 

[Ratatosk]

DS had some issues with airtrapping and refracting (?) when he was about 5-8 months old. We were told to count his respirations -- can't remember how many breaths during a minute was too fast and the nasal flaring. Only time he breathed too fast was when he had an ear infection and spiked a fever.

He too had synagis shots and a couple of times he developed a wheeze during this time period. Wasn't a constant, just off and on -- so I'd steam up the bathroom and give him a bath in the morning and before bed. We also increased his CPT -- added another beatment late at night, increased the amount of time doing his cpt, too. To "beat that cough (wheeze) out of him".

 

[Ratatosk]

DS had some issues with airtrapping and refracting (?) when he was about 5-8 months old. We were told to count his respirations -- can't remember how many breaths during a minute was too fast and the nasal flaring. Only time he breathed too fast was when he had an ear infection and spiked a fever.

He too had synagis shots and a couple of times he developed a wheeze during this time period. Wasn't a constant, just off and on -- so I'd steam up the bathroom and give him a bath in the morning and before bed. We also increased his CPT -- added another beatment late at night, increased the amount of time doing his cpt, too. To "beat that cough (wheeze) out of him".

 

[Ratatosk]

DS had some issues with airtrapping and refracting (?) when he was about 5-8 months old. We were told to count his respirations -- can't remember how many breaths during a minute was too fast and the nasal flaring. Only time he breathed too fast was when he had an ear infection and spiked a fever.
<br />
<br />He too had synagis shots and a couple of times he developed a wheeze during this time period. Wasn't a constant, just off and on -- so I'd steam up the bathroom and give him a bath in the morning and before bed. We also increased his CPT -- added another beatment late at night, increased the amount of time doing his cpt, too. To "beat that cough (wheeze) out of him".

 

[ktsmom]

Wow I am glad that Max is better. What a scary ordeal this must have been for all of you!

Regarding the pulse oximeter, we did purchase one for our home and no, we haven't driven ourselves crazy with it. In fact, it has been incredibly useful to have. With an infant, who can't tell you something is wrong, I could see an advantage to having one but that's just me.

Also - another thing we track is our daughter's sleeping respiration rate. Just every once in awhile I count it and compare it to her baseline that we established. It can be an early sign of trouble - I think I got this idea from some of Dr. Warwick's stuff posted on NoExcuses blog. Be sure to not count during REM sleep.

 

[ktsmom]

Wow I am glad that Max is better. What a scary ordeal this must have been for all of you!

Regarding the pulse oximeter, we did purchase one for our home and no, we haven't driven ourselves crazy with it. In fact, it has been incredibly useful to have. With an infant, who can't tell you something is wrong, I could see an advantage to having one but that's just me.

Also - another thing we track is our daughter's sleeping respiration rate. Just every once in awhile I count it and compare it to her baseline that we established. It can be an early sign of trouble - I think I got this idea from some of Dr. Warwick's stuff posted on NoExcuses blog. Be sure to not count during REM sleep.

 

[ktsmom]

Wow I am glad that Max is better. What a scary ordeal this must have been for all of you!

Regarding the pulse oximeter, we did purchase one for our home and no, we haven't driven ourselves crazy with it. In fact, it has been incredibly useful to have. With an infant, who can't tell you something is wrong, I could see an advantage to having one but that's just me.

Also - another thing we track is our daughter's sleeping respiration rate. Just every once in awhile I count it and compare it to her baseline that we established. It can be an early sign of trouble - I think I got this idea from some of Dr. Warwick's stuff posted on NoExcuses blog. Be sure to not count during REM sleep.

 

[ktsmom]

Wow I am glad that Max is better. What a scary ordeal this must have been for all of you!

Regarding the pulse oximeter, we did purchase one for our home and no, we haven't driven ourselves crazy with it. In fact, it has been incredibly useful to have. With an infant, who can't tell you something is wrong, I could see an advantage to having one but that's just me.

Also - another thing we track is our daughter's sleeping respiration rate. Just every once in awhile I count it and compare it to her baseline that we established. It can be an early sign of trouble - I think I got this idea from some of Dr. Warwick's stuff posted on NoExcuses blog. Be sure to not count during REM sleep.

 

[ktsmom]

Wow I am glad that Max is better. What a scary ordeal this must have been for all of you!
<br />
<br />Regarding the pulse oximeter, we did purchase one for our home and no, we haven't driven ourselves crazy with it. In fact, it has been incredibly useful to have. With an infant, who can't tell you something is wrong, I could see an advantage to having one but that's just me.
<br />
<br />Also - another thing we track is our daughter's sleeping respiration rate. Just every once in awhile I count it and compare it to her baseline that we established. It can be an early sign of trouble - I think I got this idea from some of Dr. Warwick's stuff posted on NoExcuses blog. Be sure to not count during REM sleep.