The CF community lost one of it's most inspiring, courageous patients last Saturday. Danielle Soares passed away at the tender age of 21 while at Children's Hospital Boston. She had a lung transplant a little over a year ago, then suddenly her lungs filled with fluid there was nothing more the doctors could do. She had lost her hard-fought battle. Anyone who is a patient at Children's will know what a huge loss this is, as Danielle was truly one of a kind! She will be tremendously missed....
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May Danielle rest in peace...
- Thread starter anonymous
- Start date
The CF community lost one of it's most inspiring, courageous patients last Saturday. Danielle Soares passed away at the tender age of 21 while at Children's Hospital Boston. She had a lung transplant a little over a year ago, then suddenly her lungs filled with fluid there was nothing more the doctors could do. She had lost her hard-fought battle. Anyone who is a patient at Children's will know what a huge loss this is, as Danielle was truly one of a kind! She will be tremendously missed....
thelizardqueen
New member
My prayers and thoughts go out to her family and friends.
thelizardqueen
New member
My prayers and thoughts go out to her family and friends.
S
skh
Guest
Her family and friends will be in my prayers.
Sue
Sue
S
skh
Guest
Her family and friends will be in my prayers.
Sue
Sue
This is such sad news... and hurts.
Danielle's mom and I have been emailing eachother for over a year, since Danielle needed lungs and they were looking it living lobar lung transplant. And I will not forge the email I got from Barbara saying that Danielle got lungs, and living lobar was not needed. Elated we were.
We have stayed in touch and I got a wonderful update in a Christmas card.
If anyone wants to send them a card here is their address
Barbara is the mom
Soares
305 Ocean Meadows
Fairhaven, MA 02719
I know she enjoyed her year of great health with new lungs!!
Joanne Schum
luckylungsforjo@aol.com
Danielle's mom and I have been emailing eachother for over a year, since Danielle needed lungs and they were looking it living lobar lung transplant. And I will not forge the email I got from Barbara saying that Danielle got lungs, and living lobar was not needed. Elated we were.
We have stayed in touch and I got a wonderful update in a Christmas card.
If anyone wants to send them a card here is their address
Barbara is the mom
Soares
305 Ocean Meadows
Fairhaven, MA 02719
I know she enjoyed her year of great health with new lungs!!
Joanne Schum
luckylungsforjo@aol.com
This is such sad news... and hurts.
Danielle's mom and I have been emailing eachother for over a year, since Danielle needed lungs and they were looking it living lobar lung transplant. And I will not forge the email I got from Barbara saying that Danielle got lungs, and living lobar was not needed. Elated we were.
We have stayed in touch and I got a wonderful update in a Christmas card.
If anyone wants to send them a card here is their address
Barbara is the mom
Soares
305 Ocean Meadows
Fairhaven, MA 02719
I know she enjoyed her year of great health with new lungs!!
Joanne Schum
luckylungsforjo@aol.com
Danielle's mom and I have been emailing eachother for over a year, since Danielle needed lungs and they were looking it living lobar lung transplant. And I will not forge the email I got from Barbara saying that Danielle got lungs, and living lobar was not needed. Elated we were.
We have stayed in touch and I got a wonderful update in a Christmas card.
If anyone wants to send them a card here is their address
Barbara is the mom
Soares
305 Ocean Meadows
Fairhaven, MA 02719
I know she enjoyed her year of great health with new lungs!!
Joanne Schum
luckylungsforjo@aol.com
Hi this is the first time I've responded to these forums. I started reading them a few days ago - I guess it was kinda an eye opener for me. I have a 9 year old boy with CF and a healthy 12 year old girl. Tanner has been pretty healthy except for nose polyps (removed 3 times) and some bowel troubles this last year. He does neb and percussion since diagnosed at 6mos. I guess I've always been scared that things will get worse as he gets older - but I didn't want to think about it and I just enjoy his cool personality and humor!! Am I totally unrealistic to think that maybe he won't have alot of problems? How old are your 2 sons? What is cepacia? I don't think I've ever heard of that.
Hi this is the first time I've responded to these forums. I started reading them a few days ago - I guess it was kinda an eye opener for me. I have a 9 year old boy with CF and a healthy 12 year old girl. Tanner has been pretty healthy except for nose polyps (removed 3 times) and some bowel troubles this last year. He does neb and percussion since diagnosed at 6mos. I guess I've always been scared that things will get worse as he gets older - but I didn't want to think about it and I just enjoy his cool personality and humor!! Am I totally unrealistic to think that maybe he won't have alot of problems? How old are your 2 sons? What is cepacia? I don't think I've ever heard of that.