medic alert

anonymous

New member
Here's one for you all. Do any of you wear a medic alert bracelet? Keep in mind my child (CFer) is little and I do all her care for now. But do you older ladies and gents wear one? In case you know God forbid you got in an accident or such. Would it be helpful for medic personel to know your a CFer? And could their be potential for trouble if they didn't know you to be CFer? And also, ( man I talk alot) but at what age did you start wearing one?

thanks
 

Emily65Roses

New member
I've always had one. Now that I'm older, and I wear a bracelet (I used to wear a necklace, and it was never taken off), I forget to put it on sometimes. But I've just about always had one. I mean, I don't remember a time where I didn't wear one. My mom could probably tell you when I started wearing one, but I know for a fact that I at least had it by 4th grade (in my 4th grade school pic, you can see the medic alert). I probably had it earlier than that, that's just when I know I had it for sure.

As a CFer, with such complicated medical garbage, I think it's a very good idea to wear a medic alert. We have different needs in the event of an accident (possibly closer monitoring of the heart, and the oxygen sat levels, etc). We also tend to know if we have med allergies, or things we don't respond well to. If they try to give you penicillin in case of a possible infection from debris or something, it may not do squat for us because we're so often put on antibiotics, maybe we'd need something stronger, you know? And the medic alert could tell them that. Plus if you're unconscious for more than a day, the hospital would need to know about Pulmozyme, TOBI, or Colistin treatments, so that you could get them, unconscious or not. It's also a very good way to have contact information on you. My mother's name and phone number are in mine so that if something happens, they can get a hold of her. Years from now, when I get married, Mike's name and number will also be put in my medic alert contact information.

Oh and -- if your oxygen sats are lower, and they don't know you have CF, they may start trying to treat you for potential trauma problems that aren't there. Our sat levels are less most of the time, and if they don't know there's a valid reason for that, they may think you've got internal injuries, or something. Sat levels or not, if they don't know you've got CF, they may attempt to treat you for problems they think were caused from the accident. When in reality these problems are just things you live with due to the CF. I don't think that was too clear, but do you get what I'm saying? They may spend important time treating things that can't be fixed when they could be addressing and mending things that *can* be fixed.
 

EmilysMom

New member
Emily pretty much said everything I would have stated. She started wearing hers in the 2nd grade actually. She may not remember but she picked out the necklace at our local jewelry store where they engraved it for us. We got it for her after a suggestion from her doctor that she probably should think about having one in case of an accident. It would help medical personnel to know how to contact us and it would also help them to know they were dealing with a kid who was already dealing with a number of medical issues (as well as whatever happened in the accident)
Her sister actually has to have one too for a bleeding disorder (although we are trying to figure out how to have "Von Willebrand's Disease" engraved on anything that won't end up being 12 feet long after all those letters are engraved) ;o)
 

anonymous

New member
Thanks Emilly and Barbara, I really appreciate the info. My daughter is five, and just starting first grade. Picking it out herself is a great idea. So ( in fear of sounding stupid) do I put CF, or do they need the actual full name and oh ya, I think you mentioned mamas name and phone #? thanks again.
 

Emily65Roses

New member
Mine had the whole name engraved on it. And the emergency information on my new bracelet is only because I have a nifty little medic alert. It's a bracelet that opens up, and it holds this little piece of water-resistant paper that has meds, emergency info, doc info, etc on it. A regular bracelet or necklace probably won't have room for emergency contact info. If you get the one that opens up, you'll have more room. But I suppose it depends on which one she likes. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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