MedPulse vest system?

anonymous

New member
Hi,I am looking for info on the medpulse vest. If you have the medpulse please respond! I have a few questions.Do you like it?Did it take a long time for insurance to approve it?Have you had any problems with it? If so, did the company respond quickly?We are waiting for this system to be approved by insurance for our four year old daughter, Rachel and would like any info we can get, I have been asking this question for almost 2 months but I haven't gotten many relpies. Thanks!Andrea
 

anonymous

New member
Just last month we got the Theairapy vest for our daughter. The company is still wrking on the insurance part, but gave it to us anyway. It is working great! We received the vest within two weeks of it being prescribed. Our daughter was in the hospital at time of it being prescribed with lung function down to 66%. this may be why evrything went so quickly. The company is great, Already have had a personal visit and two phone calls to make sure everythin is working well. I highly recomend the theairapy vest. If I can help with anything else let me know. Michelle dare2write101@yahoo.com
 

anonymous

New member
my daughter mariah has been on the vest for 5 years and we love it its the best thing .u need to talk to your doc.then call the company and they will fight with whom every is going to pay for it for u but they did it for me and finely got it paid by insurnce.thanks diana if u have any more ? contact me at mdkg@fidnet.com
 

anonymous

New member
My son michael was just diagnosed about a year ago and we got our vest in just a few months. he is five years old and is doing great. don't give up on the insurance because i almost did and they finally came through for me. please feel free to contact me anytime.tinajst@aol.com
 

anonymous

New member
Hi, My name is TIm, I'm 24 and I was diagnosed with CF when I was four. More than once the vest haskept me from having to go to the hospital when I was pretty sick. I never had any problems getting the vest, but then again my therapist at the CF clinic here in San Antonio is real effective. I suggest talking to the actual pulminary therapist at your daughter's clinic as they are usually pretty motivated people. I am a full time college student at a nearby university and there is no way I could do it without the vest, beleive me it helps that much!Good luck!
 

AbsintheSorrow

New member
I personally hated the Vest. It took a while for insurance to cover it, and then the company came in and taught me how to use it and all good stuff like that. The company was very good and helpful, but insurance, as per usual, was a pain in the ass. And I hated it. It's a personal thing, some people hate it and some people love it, but it made me nauseous. Not to mention they don't make it with adult women in mind, and leave no room for breasts. Mine were often squished, and this was painful. That's just my opinion. Some people swear by it. It depends on who you ask.
 

Liza

New member
Hi, this is to Tim. You say you go to clinic in San Antonio? Where do you go? Is it an adult clinic or peds/adult clinic? We could possibly end up in SA next year and I was just wondering when I say your post. Thanks.Liza
 
I

IG

Guest
If you are in San Antonio anytime soon, check out the CF clinic at Santa Rosa Childrens Hospital. They do both peds and adults. Both are really great clinics! But they have a new hospital policy with cystics so if your 18 or just about there, you will be put over to the adult side. They have some really kick ass doctors there on both sides. <img src="i/expressions/face-icon-small-happy.gif" border="0"> Plus the people are really great, very friendly. Terrific place (for a hospital) <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Anyway if you want more information I could probably pass it on.
 

anonymous

New member
Hey Liza,If you go to San Antonio I can tell you from experience that they doctors there are really great. Well I only know about the adult doctors. But from the other CF patient I know there he really loves all the docs pedi and adult. The nurses in the hospital are great too. Very friendly and if they are new it seems that the verterian nurses tell them about cf, I haven't had hardly any trouble with nurses while staying there. ITs a great PLUS. As you can tell from the other posts we really like em. Its kinda a smaller type clinic but I think thats why it makes it so great. They seem to know their patients better and are always on top of the new things delevoping with meds and cf. I could give ya some info on the CF clinic too. Hope this helps.Amanda
 

anonymous

New member
Andrea,I am a single mother with a daughter name Lindsey, she is 10. She recieved the vest five years ago. They gave us the vest just for being on a study. I definately recommend it, it has been wonderful. she puts it on three times a day for 30 minutes. Not only is it a time saver, but it works 100% more effective. If you ever need to talk or have any questions please e-mail me. Lindsey, had surgery at two days old and we were told she would not live the first few weeks. She is 10 years old. We moved here from Texas to MN. Where she is being seen by Dr. Henry, which I highly recommend. She has been through tube feedings, surgery, and as you know a lot of hospitalization. Here lungs function dropped to 64% but now they are back up to 80%. I hope your daughter is doing good. I know how stressful it can be, especially at your daughter's age. I would recommend the vest without a doubt and she should not have to wait! Ask for Vicki Dean at the mayo clinic, that is my daughters nurse. Get an appointment in with her Dr. Henry, I know she could help get through the loop holes of the insurance companies. To answer your question regarding how fast do they respond to problems with the machine. Right away, Lindsey vest did not fit after five years. They sent us on a day later.Sincerely, Jodie
 
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