Minnesota-Fairview Clinic

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mistylavon

New member
Hi - I've read on here that many of you have gone to see Dr. Warwick at this clinic for a 2nd opinion. I'm wondering if anyone here goes there as their primary clinic? Do you feel like you get excellent care? What ages are your children? Are they doing well? Ever been sick? We're just starting to explore and want to find answers b/c we'd be willing to move if our daughter could possibly have that many more years of life on her. Please share your thoughts, concerns about regularly going to this clinic. Also, are the other doctors there as proactive as Dr. Warwick?
Thanks so much,
Misty
 
M

mistylavon

New member
Hi - I've read on here that many of you have gone to see Dr. Warwick at this clinic for a 2nd opinion. I'm wondering if anyone here goes there as their primary clinic? Do you feel like you get excellent care? What ages are your children? Are they doing well? Ever been sick? We're just starting to explore and want to find answers b/c we'd be willing to move if our daughter could possibly have that many more years of life on her. Please share your thoughts, concerns about regularly going to this clinic. Also, are the other doctors there as proactive as Dr. Warwick?
Thanks so much,
Misty
 
M

mistylavon

New member
Hi - I've read on here that many of you have gone to see Dr. Warwick at this clinic for a 2nd opinion. I'm wondering if anyone here goes there as their primary clinic? Do you feel like you get excellent care? What ages are your children? Are they doing well? Ever been sick? We're just starting to explore and want to find answers b/c we'd be willing to move if our daughter could possibly have that many more years of life on her. Please share your thoughts, concerns about regularly going to this clinic. Also, are the other doctors there as proactive as Dr. Warwick?
Thanks so much,
Misty
 
N

NoExcuses

New member
No other clinic has the life expectancy of the Minnesota clinic. So to answer your question about other doctors that are like Warwick, I have to say I think he's one of a kind. And the proof is in the life expectancy.

I don't go there, but I have visited as you mentioned.
 
N

NoExcuses

New member
No other clinic has the life expectancy of the Minnesota clinic. So to answer your question about other doctors that are like Warwick, I have to say I think he's one of a kind. And the proof is in the life expectancy.

I don't go there, but I have visited as you mentioned.
 
N

NoExcuses

New member
No other clinic has the life expectancy of the Minnesota clinic. So to answer your question about other doctors that are like Warwick, I have to say I think he's one of a kind. And the proof is in the life expectancy.

I don't go there, but I have visited as you mentioned.
 
2

2perfectboys

Guest
I would think any of the doctors that work with Warwick have the same practice as he does, I would say it is his clinic protocol all the doctors there go by for the most part. We have always been seen by one CF clinic, but have visited two others, one when my son was diagnoised 8 years ago and a different clinic about two years ago, just to check how other clincis were doing things and see what their prespective on my son's health were. I told our primary CF doctor about these two visits, and I don't think he was offended and if he was, than tough poop. He's my son and I can go to whatever doctor I want and make sure he is getting the best care. We are planning a trip up there this summer, but I do not expect to find out anything drastically different, but I don't think it ever hurts to get different opinions, even if they don't agree with mine or our primary CF docs, because there is no one way with CF, that is why I would never up and move to Minnesota, maybe Northern Arizona, but they can keep the cold.

Lori
 
2

2perfectboys

Guest
I would think any of the doctors that work with Warwick have the same practice as he does, I would say it is his clinic protocol all the doctors there go by for the most part. We have always been seen by one CF clinic, but have visited two others, one when my son was diagnoised 8 years ago and a different clinic about two years ago, just to check how other clincis were doing things and see what their prespective on my son's health were. I told our primary CF doctor about these two visits, and I don't think he was offended and if he was, than tough poop. He's my son and I can go to whatever doctor I want and make sure he is getting the best care. We are planning a trip up there this summer, but I do not expect to find out anything drastically different, but I don't think it ever hurts to get different opinions, even if they don't agree with mine or our primary CF docs, because there is no one way with CF, that is why I would never up and move to Minnesota, maybe Northern Arizona, but they can keep the cold.

Lori
 
2

2perfectboys

Guest
I would think any of the doctors that work with Warwick have the same practice as he does, I would say it is his clinic protocol all the doctors there go by for the most part. We have always been seen by one CF clinic, but have visited two others, one when my son was diagnoised 8 years ago and a different clinic about two years ago, just to check how other clincis were doing things and see what their prespective on my son's health were. I told our primary CF doctor about these two visits, and I don't think he was offended and if he was, than tough poop. He's my son and I can go to whatever doctor I want and make sure he is getting the best care. We are planning a trip up there this summer, but I do not expect to find out anything drastically different, but I don't think it ever hurts to get different opinions, even if they don't agree with mine or our primary CF docs, because there is no one way with CF, that is why I would never up and move to Minnesota, maybe Northern Arizona, but they can keep the cold.

Lori
 
R

ReneeP

New member
I have two daughters with CF and we lived in MN for 4 years and were treated at the MN Fairview Clinic. We have been to 5 different CF clinics over the years so I have plenty to compare it to.

To answer a couple of your questions, my daughters are 12 & 8 now (we moved out of MN 2 1/2 years ago). And comparitively speaking, they are pretty healthy. They are both Double Delta F508.

As far as the care received at the MN clinic, it was good. I really liked Dr. Milla and Dr. Warwick (my girls always saw Dr Milla, we spoke to Dr Warwick several times at conferences and stuff but he was not their primary CF dr.)

There are good and bad things about all CF Clinics and moving as much as we have I have found that they are all different. The medications are usually a little different in MN. They really like Mucomyst where almost no other CF dr typically prescribes it (my girls are still on it by my request). And the MN drs don't like Pulmozyme where almost all other CF drs push it like crazy.

One thing to keep in mind is that MN is one of the two healthiest states in the country (New Hampshire being the other). So, CF aside, MN is a very healthy state. I would be willing to bet the average life expenctency in MN is higher than most states in general so it would be natural to assume that CF patients are also living longer there. I do not believe it is an absolute result of the CF Center. They are great doctors and are very aggressive, but to say their procedures are "better" than everywhere else, I think that would be unfair.

I feel that a HUGE part (probably BIGGEST) part of CF care is done at home and you can control that no matter where you live. And MN (though it's a wonderful place) is not the most comfortable place to live... it's VERY cold and VERY expensive. If you like the cold and can afford it, it's a wonderful place to raise a family. I really liked it in the summer...lol... but 30 below was a bit much for me. I felt the kids would be better off where they could get outside more and just be cooped up less... good luck whatever you decide.
 
R

ReneeP

New member
I have two daughters with CF and we lived in MN for 4 years and were treated at the MN Fairview Clinic. We have been to 5 different CF clinics over the years so I have plenty to compare it to.

To answer a couple of your questions, my daughters are 12 & 8 now (we moved out of MN 2 1/2 years ago). And comparitively speaking, they are pretty healthy. They are both Double Delta F508.

As far as the care received at the MN clinic, it was good. I really liked Dr. Milla and Dr. Warwick (my girls always saw Dr Milla, we spoke to Dr Warwick several times at conferences and stuff but he was not their primary CF dr.)

There are good and bad things about all CF Clinics and moving as much as we have I have found that they are all different. The medications are usually a little different in MN. They really like Mucomyst where almost no other CF dr typically prescribes it (my girls are still on it by my request). And the MN drs don't like Pulmozyme where almost all other CF drs push it like crazy.

One thing to keep in mind is that MN is one of the two healthiest states in the country (New Hampshire being the other). So, CF aside, MN is a very healthy state. I would be willing to bet the average life expenctency in MN is higher than most states in general so it would be natural to assume that CF patients are also living longer there. I do not believe it is an absolute result of the CF Center. They are great doctors and are very aggressive, but to say their procedures are "better" than everywhere else, I think that would be unfair.

I feel that a HUGE part (probably BIGGEST) part of CF care is done at home and you can control that no matter where you live. And MN (though it's a wonderful place) is not the most comfortable place to live... it's VERY cold and VERY expensive. If you like the cold and can afford it, it's a wonderful place to raise a family. I really liked it in the summer...lol... but 30 below was a bit much for me. I felt the kids would be better off where they could get outside more and just be cooped up less... good luck whatever you decide.
 
R

ReneeP

New member
I have two daughters with CF and we lived in MN for 4 years and were treated at the MN Fairview Clinic. We have been to 5 different CF clinics over the years so I have plenty to compare it to.

To answer a couple of your questions, my daughters are 12 & 8 now (we moved out of MN 2 1/2 years ago). And comparitively speaking, they are pretty healthy. They are both Double Delta F508.

As far as the care received at the MN clinic, it was good. I really liked Dr. Milla and Dr. Warwick (my girls always saw Dr Milla, we spoke to Dr Warwick several times at conferences and stuff but he was not their primary CF dr.)

There are good and bad things about all CF Clinics and moving as much as we have I have found that they are all different. The medications are usually a little different in MN. They really like Mucomyst where almost no other CF dr typically prescribes it (my girls are still on it by my request). And the MN drs don't like Pulmozyme where almost all other CF drs push it like crazy.

One thing to keep in mind is that MN is one of the two healthiest states in the country (New Hampshire being the other). So, CF aside, MN is a very healthy state. I would be willing to bet the average life expenctency in MN is higher than most states in general so it would be natural to assume that CF patients are also living longer there. I do not believe it is an absolute result of the CF Center. They are great doctors and are very aggressive, but to say their procedures are "better" than everywhere else, I think that would be unfair.

I feel that a HUGE part (probably BIGGEST) part of CF care is done at home and you can control that no matter where you live. And MN (though it's a wonderful place) is not the most comfortable place to live... it's VERY cold and VERY expensive. If you like the cold and can afford it, it's a wonderful place to raise a family. I really liked it in the summer...lol... but 30 below was a bit much for me. I felt the kids would be better off where they could get outside more and just be cooped up less... good luck whatever you decide.
 
C

cysticfibrosisgirl

New member
The MN U CF clnic was not at all what everyone said it was going to be. When I went there the cystic fibrosis doctor I had yelled at me!! And said YOU DON"T HAVE CF!! Now we all know that sweat tests can be off. and so can the gene tests.. So what was his pont anyway!! The nures there at the U cf center are wird.
I have Cystic fibrosis I have been told that by other cystic fibrosis centers!! The other CF centers I have talked to say the U of M is wird and that they had no clue why the U was so wird.

If I die, I will die from untreated CF.. And the U will pay big for that!!!!
I have talked with others the run the CF centers and The u of m is not one to go to anymore and they are Not the best...

I am very mad at them but I am not going to spead my whole life thinking about them..

Thanks for reading this..
 
C

cysticfibrosisgirl

New member
The MN U CF clnic was not at all what everyone said it was going to be. When I went there the cystic fibrosis doctor I had yelled at me!! And said YOU DON"T HAVE CF!! Now we all know that sweat tests can be off. and so can the gene tests.. So what was his pont anyway!! The nures there at the U cf center are wird.
I have Cystic fibrosis I have been told that by other cystic fibrosis centers!! The other CF centers I have talked to say the U of M is wird and that they had no clue why the U was so wird.

If I die, I will die from untreated CF.. And the U will pay big for that!!!!
I have talked with others the run the CF centers and The u of m is not one to go to anymore and they are Not the best...

I am very mad at them but I am not going to spead my whole life thinking about them..

Thanks for reading this..
 
C

cysticfibrosisgirl

New member
The MN U CF clnic was not at all what everyone said it was going to be. When I went there the cystic fibrosis doctor I had yelled at me!! And said YOU DON"T HAVE CF!! Now we all know that sweat tests can be off. and so can the gene tests.. So what was his pont anyway!! The nures there at the U cf center are wird.
I have Cystic fibrosis I have been told that by other cystic fibrosis centers!! The other CF centers I have talked to say the U of M is wird and that they had no clue why the U was so wird.

If I die, I will die from untreated CF.. And the U will pay big for that!!!!
I have talked with others the run the CF centers and The u of m is not one to go to anymore and they are Not the best...

I am very mad at them but I am not going to spead my whole life thinking about them..

Thanks for reading this..
 
R

Ratatosk

Administrator
Staff member
Key is being proactive with your child's health. CPT, preventative meds... And are your healthcare providers going to be proactive. Know that's the case with U of MN. We have a local accreditted CF clinic, but we go elsewhere because they don't encourage CPT only "IF" the lungs are affected. We don't go to U of MN, but have friends who do from our area. They go every 4 months or so and are quite please with the care. One family involved with Great Strides just moved here from the Denver area and are pleased with the U of MN, but were also quite happy with the facilities in CO, too.

As far as weather, sure it's cold in the winter -- January. But you warm up your car with autostart and go from a warm house to a warm car. Love the change in seasons and summers are wonderful!
 
R

Ratatosk

Administrator
Staff member
Key is being proactive with your child's health. CPT, preventative meds... And are your healthcare providers going to be proactive. Know that's the case with U of MN. We have a local accreditted CF clinic, but we go elsewhere because they don't encourage CPT only "IF" the lungs are affected. We don't go to U of MN, but have friends who do from our area. They go every 4 months or so and are quite please with the care. One family involved with Great Strides just moved here from the Denver area and are pleased with the U of MN, but were also quite happy with the facilities in CO, too.

As far as weather, sure it's cold in the winter -- January. But you warm up your car with autostart and go from a warm house to a warm car. Love the change in seasons and summers are wonderful!
 
R

Ratatosk

Administrator
Staff member
Key is being proactive with your child's health. CPT, preventative meds... And are your healthcare providers going to be proactive. Know that's the case with U of MN. We have a local accreditted CF clinic, but we go elsewhere because they don't encourage CPT only "IF" the lungs are affected. We don't go to U of MN, but have friends who do from our area. They go every 4 months or so and are quite please with the care. One family involved with Great Strides just moved here from the Denver area and are pleased with the U of MN, but were also quite happy with the facilities in CO, too.

As far as weather, sure it's cold in the winter -- January. But you warm up your car with autostart and go from a warm house to a warm car. Love the change in seasons and summers are wonderful!
 
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