Have any of you out there taken minocycline? I know its a pretty common tetracycline drug, but i have just never been on it for.I have b cepacia and before, pseudamonas...i am currently starting a 2 week regiment of IV meropenem, IV tobra, oral Bactrim, and new...minocycline.just curious!thanks
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Minocycline
- Thread starter anonymous
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Hi,I have been on Minocycline many times. I just came off a two week course of it about 2 weeks ago. It seems to be an oral drug of choice of my cf doc when i'm not feeling the greatest. I guess it's due to my cultures and it seems to be sensitive to what i grow. I haven't really had any side effects from it.Caren 32w/cf
I am currently on doxycycline, which is, I think in the same family as minocycline. I've had upset stomach a couple of timesfrom it, but other than that, not much.Actually, it's been kind of a miracle drug for me, I started to feel so much better after being on it. I could tell a difference in just 3 days. One precaution that I saw on the bottle of doxycycline was not to lay down for 30 minutes after taking it, which was something I had never seen before, just thought I'd add that, I thought it was interesting. Good luck.<img src="i/expressions/face-icon-small-smile.gif" border="0">
Hi , I also have b.cepacia and have been using minocycline for about 7 years now. My doctor has me rotating different combinations of antibiotics two weeks on two weeks off. The first time i took minocycline i was dizzy a tiny bit for the first 2 days of the two week cycle. This happened the first few times i rotated onto it, after that it hasnt happened again. One thing to also remember is....it can increase your sensitivity to sunlight, so you could burn faster, be careful not to spend too much time in direct sunlight. I had adult onset of acne ( 30 when i got it) and went to a dermatologist and she gave me retin-A which didnt help at all. Then when i was 32 i was diagnosed with b.cepacia and my doctor put me on the minocycline and my skin cleared up every time i rotated onto it. Eventually ( since i am on minocycline a lot )the acne went completely away. Then i read somewhere it is commonly used for acne. Did you just find out about the b.cepacia or have you had it a while? To the post about doxycycline, yes it is in the same family as minocycline, (been using doxycycline for years as well), but never heard about not laying down right after taking it, maybe it can make a person dizzy at first like the mincycline did to me at first. I always take it right before bed, and never had any problem with it.~Diane 39 cf / diabetes / b.cepacia
Diane- it is caitlin (me) who wrote the first post...remember me? Sorry i didnt sign my name at the end of the post.I just started a two week cycle of IV meds yesterday...had 2 doses of IV meropenem and tobra and felt fine, but when I took oral bactrim and oral minocycline, i went to bed, and woke up at 3 am with a fever, shivering in my 80 degree room. took tylenol to get rid of it, but today i feel just AWFUL...i guess you could say dizzy. Every time i get a fever when the tylenol wears off i am reminded of the line in pink floyds comfortabley numb "when i was a child i had a fever, my hands felt just like two balloons." My hands and head feels like a balloon.I am hoping that this feeling is all due to 4 pretty heavy meds entering my system and stirring things up...at least it would mean they are working, but i really hope this goes away. I went from feeling fine yesterday (this is just a preventative cleanout), to feeling horrible today!!This is the first time I have started IV meds at home...usually i stay in the hospital for 2-3 days, and then go home. Maybe because I am home I am noticing more how bad I feel...i suppose if i were in the hospital it would just seem normal.anyway...thanks for all of your responses, any more are appreciated...!
Hi Caitlin, I wondered if that was you, im sorry to hear you are feeling so lousy, IV Merepenim is very good for cepacia, as well as the others you are on. I have gone thru the same thing as you with the fevers when i get sick and it seems like something you just have to wait out, till it starts to go away as the antibiotics take full effect. Keep drinking lots of water to help flush out the fever and infection. I would think most likely, the combination of the 4 antibiotics are what is causing the feeling you have ( dizziness) especially if this is the first time you have been on 4 at a time. One thing to keep in mind, when you are on that many antibiotics trush can set in. Its nothing to worry about really, but it can be a problem if left untreated and very uncomfy when eating because things will feel like they are spicy when they arent. If you start to notice things just dont taste right, or see whitish spots in your mouth or throat tell your doctor and he will prescribe something for it. You are probably more active doing your iv's at home and that is a good thing, but make sure you get proper rest, because when feeling this crappy, your body needs it. But it is also important to keep active for your lungs sake , so make sure to get moving as soon as you can. I hope you feel better real soon and i will say a prayer for you to recover quick, i know how scary it is to feel that lousy<img src="i/expressions/face-icon-small-sad.gif" border="0"> Take Care an let me know how things are going...........~Diane 39 cf / diabetes / b.cepacia
If you haven't already, I would suggest reporting the fever and feeling lousy to your doctor. When I take any meds in the same family as the doxycycline I would get the shakes, a fever, balloonlike feeling, and vomitting uncontrollably. Come to find out, I'm allergic to those meds which explained why it took so long for me to get well even when I was on it. Just a thought.
My teenage daughter is on zithromax every day and now is on minocycline for her skin. She needs to ask the CF doc how long she can stay on the minocycline. I am sure she does not want her skin to flare-up again, but I assume it will as soon as she stops the antibiotic. Does anyone have experience with this?
I have stopped having fevers but have felt just HORRIBLE all week...like I sleep for 12 hours and wake up feeling dizzy, out of it, and on the verge of throwing up. I have been trying really hard to prevent myself from throwing up just because i know its bad for me and i need to keep food/pills down...but it would feel so much better! anyway, i am irritated b/c this was supposed to be a *preventative* clean-out...like i wanted to exercise and really feel healthy for these 2 weeks...but instead i have just been laying around all week!! I am furious b/c my doctor is 'out of town' for the weekend, and i couldnt even speak to the cf doctor on call...she just relayed a message through some secretary that "she didnt feel comfortable taking me off minocycline or changing my dose, so just wait it out through the weekend, or use my own discretion and go off of it if i needed to." Meanwhile, GET THIS, (sorry this is complete venting)..I just got a form letter from my hospital yesterday, saying that my doctor, my doctor who i have been speaking to all week about my treatment, will no longer be seeing patients as of July 1st! This letter, dated July 8th, (and received on the 18th) is telling me that hes leaving and all concerns must be directed to the pulmonary dept. by July 9th...and he didn't even say a thing to me! Does anyone else find this shockingly impersonal, not to mention plain mean? To not tell your patients when you speak to them when they are in the middle of a cleanout that you are LEAVING before the cleanout is even set to END? I was STUNNED. I just couldnt believe it. Last time i switched doctors my old one told me 6 months in advance, and talked with me about who would be the best change, never once did i get a form letter!!! Anyway, it is totally upsetting obviously, and he is away for the weekend, i have no way of getting in touch with him, meanwhile i want to scream at him and everyone else at the hospital but i am just sitting here. Anyway, just had to get that out, i was explaining it to my non-cf friends etc., and although i think they saw how impersonal it was, i dont think they fully recognize how weird it is to be having daily conversations with your doctor (one about a ct scan in july that he failed to mention he wouldnt be around to read), and have him not tell you he is leaving in less than 2 weeks! AHHHHHHH. By the way Diane, this medicine is clearing up my skin too and so that is another reason i am upset to go off of it...my skin is perfect when usually during heavy IV antibiotics it breaks out horribly! Oh well, i suppose i would rather be able to get off the couch than have a few zits. Thanks for listening...!Caitlin