I just got done watching the movie I heart Huckabees. In it Mark Walburg's character is speaking about the injustice in the world (oil crisis/children killing other children in the streets/issues in Africa/etc...) and he mentions cystic fibrosis. Has anyone see this movie? What was your impression of his comments? Just curious! Thanks..
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Movie I heart Huckabees and mention of CF
- Thread starter anonymous
- Start date
I haven't seen that movie, but Mark just told me that "The Sixth day" also mentions CF. Come on awareness!!!!!!!!!!!!!!!!!!!!!!
On a somewhat similar note, I woudl be really interested in 60 minutes or some show like that doing a segment on CF, to ESPECIALLY include information on people growing older with CF, children, marriage, being an older CFer... anybody else want to hit them up with me? I'm serious by the way.
Julie (wife to Mark 24 w/CF)
On a somewhat similar note, I woudl be really interested in 60 minutes or some show like that doing a segment on CF, to ESPECIALLY include information on people growing older with CF, children, marriage, being an older CFer... anybody else want to hit them up with me? I'm serious by the way.
Julie (wife to Mark 24 w/CF)
Emily65Roses
New member
Yeah, but The 6th Day sucks. I've seen it more than once. The CF information in that movie (and it's from 2000, not that old) is that any clone that had CF would die within 5 years of being cloned. I even added a little piece of info to The 6th Day imdb page, on the "goofs" section. Here it is:
<a target=new class=ftalternatingbarlinklarge href="<a target=new class=ftalternatingbarlinklarge href="http://imdb.com/title/tt0216216/goofs
">http://imdb.com/title/tt0216216/goofs
</a>"><a target=new class=ftalternatingbarlinklarge href="http://imdb.com/title/tt0216216/goofs
">http://imdb.com/title/tt0216216/goofs
</a></a>
Scroll down to the 4th message from the bottom, and the piece about the CF information being incorrect was sent in by me.
"Factual errors: Cystic fibrosis (CF) was said to be a "childhood disease" and its victims were only supposed to live for 5 years. When in fact, it's not really considered a childhood disease anymore, and the average CF patient lives to be 32."
Oh PS-- I agree on awareness. All awareness is cool. Just wanted to let you know that their researchers were braindead. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
<a target=new class=ftalternatingbarlinklarge href="<a target=new class=ftalternatingbarlinklarge href="http://imdb.com/title/tt0216216/goofs
">http://imdb.com/title/tt0216216/goofs
</a>"><a target=new class=ftalternatingbarlinklarge href="http://imdb.com/title/tt0216216/goofs
">http://imdb.com/title/tt0216216/goofs
</a></a>
Scroll down to the 4th message from the bottom, and the piece about the CF information being incorrect was sent in by me.
"Factual errors: Cystic fibrosis (CF) was said to be a "childhood disease" and its victims were only supposed to live for 5 years. When in fact, it's not really considered a childhood disease anymore, and the average CF patient lives to be 32."
Oh PS-- I agree on awareness. All awareness is cool. Just wanted to let you know that their researchers were braindead. <img src="i/expressions/face-icon-small-tongue.gif" border="0">
Purplelungs
New member
well since they only mention cf for maybe 5 minutes the whole movie. but i was still under the impression that all the clones were given some sort of defect and all of them would die in 5 years...so with that we can also assume that they made the cf in the clones the severe gene. think about it they know how to clone and mess with all kinds of genes they could make the cf gene a really bad one and encode it with a 5 year servival , actually i think thats what they did in the clones. anyway its a bad clone-genetic altering- futuristic-something movie anyway. not very good whether we had the cf interest in it or not. well not as good as i think they could have done with it anyway, cf or not. sorry for my movie critique
<blockquote>Quote<br><hr><i>Originally posted by: <b>JazzysMom</b></i><br>In addition to the info on the movie 6th Sense. The whole movie has a negative twist to it & although I am usually for CF getting any type of media attention, I wasnt happy with this. It doesnt give an accurate picture.<hr></blockquote>
ahhh, 6th sense, do u mean the 6th Day?
ahhh, 6th sense, do u mean the 6th Day?
senatorgraham
New member
I think we can all agree that raising awarness for CF is an important goal. If we want to be effective maybe we could spend some time organizing so we can speak with "ONE VOICE", one that is loud and clear.
Perhaps we could have some discourse on specifically what we would want to address, like more funding for CF research and/or how although CF is a serious disease with proper care many lead relatively normal lives. By focusing on a couple of things that we all agree on perhaps we can get our message across. Also, maybe predeterming a time when we could organize to e-mail might help get our point across. Finally, another option is to work on a letter writing campaign.
Just a thought.
Sincerely,
"Senatorgraham"
"My friends are my estate. Forgive me the avarice of hoarding them."-Emily Dickinson
Perhaps we could have some discourse on specifically what we would want to address, like more funding for CF research and/or how although CF is a serious disease with proper care many lead relatively normal lives. By focusing on a couple of things that we all agree on perhaps we can get our message across. Also, maybe predeterming a time when we could organize to e-mail might help get our point across. Finally, another option is to work on a letter writing campaign.
Just a thought.
Sincerely,
"Senatorgraham"
"My friends are my estate. Forgive me the avarice of hoarding them."-Emily Dickinson
I agree with Melissa's statment, "There is power in numbers". Maybe if we all agree (as stenatorgraham said) on some specific things we wish to suggest they do a piece on, that would help. I still think a number of different people should submit emails though. If they get just one email, it might just get the delete button. If they get 2, 4, 7, 12 emails, the first might get deleted, but they might see that somethings up.
My main area of concern, that I want to address (because my husband deals with it everyday) is that THERE ARE ADULTS ALIVE WHO HAVE CF, and they need support with everything that comes along with it. Some people seem to be aware that some children have CF, and most people think CF is JUST a childhood disease-as it use to be. But people's eyes seem to pop out of their heads when they learn that there are people in their 20's, 30's 50's who have CF, and are living fulfilling lives. There isn't much information, or support for those who are growing older, getting married, going to college, trying to have children, trying to hold jobs full or part time, and I would like that to change. Awareness has to start somewhere.
Here's my email address in case anybody wants to make some suggestions, division902@hotmail.com. Or, we can just keep using this post to toss ideas back and fourth. I'd like to have something substantial put together, (ideas or a general letter that we can add personal tidbits to) by this weekend so we can all start emailing not this week, but next week. If anybody has anything else, please please post it or email!!
Thanks,
Julie
ooh, and I like the idea of emailing 60 minutes, dateline, the today show; i never watch oprah so if she does stuff like this, what do you think? I say we get in touch with all of them.
My main area of concern, that I want to address (because my husband deals with it everyday) is that THERE ARE ADULTS ALIVE WHO HAVE CF, and they need support with everything that comes along with it. Some people seem to be aware that some children have CF, and most people think CF is JUST a childhood disease-as it use to be. But people's eyes seem to pop out of their heads when they learn that there are people in their 20's, 30's 50's who have CF, and are living fulfilling lives. There isn't much information, or support for those who are growing older, getting married, going to college, trying to have children, trying to hold jobs full or part time, and I would like that to change. Awareness has to start somewhere.
Here's my email address in case anybody wants to make some suggestions, division902@hotmail.com. Or, we can just keep using this post to toss ideas back and fourth. I'd like to have something substantial put together, (ideas or a general letter that we can add personal tidbits to) by this weekend so we can all start emailing not this week, but next week. If anybody has anything else, please please post it or email!!
Thanks,
Julie
ooh, and I like the idea of emailing 60 minutes, dateline, the today show; i never watch oprah so if she does stuff like this, what do you think? I say we get in touch with all of them.
senatorgraham
New member
I agree, please allow me to clarify. I meant that we should coordinate a time when we could all e-mail at the same time. You know that way they get a huge blast of e-mails (the more the better) so they will have a hard time ignoring our e-mails.
Julie great choice for a topic.
Sincerely,
"Senatorgraham"
"My friends are my estate. Forgive me the avarice of hoarding them."-Emily Dickinson
Julie great choice for a topic.
Sincerely,
"Senatorgraham"
"My friends are my estate. Forgive me the avarice of hoarding them."-Emily Dickinson
senatorgraham
New member
Dear Julie,
If you want to spearhead this that would be cool. I am glad to be helpful. First suggestion, is starting a specific thread for it so as many other people who are interested can get involved as possible. Just a suggestion I do not mean to step on any toes, I prefer to work with people not run roughshod over them.
Sincerely,
"Senatorgraham"
"My friends are my estate. Forgive me the avarice of hoarding them."-Emily Dickinson
If you want to spearhead this that would be cool. I am glad to be helpful. First suggestion, is starting a specific thread for it so as many other people who are interested can get involved as possible. Just a suggestion I do not mean to step on any toes, I prefer to work with people not run roughshod over them.
Sincerely,
"Senatorgraham"
"My friends are my estate. Forgive me the avarice of hoarding them."-Emily Dickinson
Sounds good, I'll put together a separate link in the adults and families section about this. I welcome ideas, don't feel like you are stepping on anybody's feet-this is something I would like everybody to get involved in. If you have anything put together, or that you want to put together, please do!!
Julie
Julie