MRSA out there?

[ginandbrea]

My daughter is 9 y/o with CF. She was just Dx in Oct at age 9 and immediately put in Children's Hospital for 2 weeks upon Dx with FEV1 52%, MRSA.

She has DF508/3849+10kbC>T, PS, MRSA, FEV1 81% (currently). She went to clinic last week and again was cultured + for MRSA. Can anyone enlighten me a bit more about MRSA??? When I called the clinic to get the results, they didn't seem too concerned, but I am. She is on Bactrim. From what little I do know, it shows up mostly in adults and is rare in children, no real knowledge of the effects.

We were told for a few years that she had asthma. Last year she started going downhill, not growing, more frequent chest infections and coughing. Is it to her favor she was diagnosed late, meaning maybe her symptoms are not as severe or is it a bad thing being that she hasn't gotten the proper treatments in 9 years and more damage has been done???

Any advice would be great!

Best in health <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina

 

[ginandbrea]

My daughter is 9 y/o with CF. She was just Dx in Oct at age 9 and immediately put in Children's Hospital for 2 weeks upon Dx with FEV1 52%, MRSA.

She has DF508/3849+10kbC>T, PS, MRSA, FEV1 81% (currently). She went to clinic last week and again was cultured + for MRSA. Can anyone enlighten me a bit more about MRSA??? When I called the clinic to get the results, they didn't seem too concerned, but I am. She is on Bactrim. From what little I do know, it shows up mostly in adults and is rare in children, no real knowledge of the effects.

We were told for a few years that she had asthma. Last year she started going downhill, not growing, more frequent chest infections and coughing. Is it to her favor she was diagnosed late, meaning maybe her symptoms are not as severe or is it a bad thing being that she hasn't gotten the proper treatments in 9 years and more damage has been done???

Any advice would be great!

Best in health <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina

 

[ginandbrea]

My daughter is 9 y/o with CF. She was just Dx in Oct at age 9 and immediately put in Children's Hospital for 2 weeks upon Dx with FEV1 52%, MRSA.

She has DF508/3849+10kbC>T, PS, MRSA, FEV1 81% (currently). She went to clinic last week and again was cultured + for MRSA. Can anyone enlighten me a bit more about MRSA??? When I called the clinic to get the results, they didn't seem too concerned, but I am. She is on Bactrim. From what little I do know, it shows up mostly in adults and is rare in children, no real knowledge of the effects.

We were told for a few years that she had asthma. Last year she started going downhill, not growing, more frequent chest infections and coughing. Is it to her favor she was diagnosed late, meaning maybe her symptoms are not as severe or is it a bad thing being that she hasn't gotten the proper treatments in 9 years and more damage has been done???

Any advice would be great!

Best in health <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina

 

[ginandbrea]

My daughter is 9 y/o with CF. She was just Dx in Oct at age 9 and immediately put in Children's Hospital for 2 weeks upon Dx with FEV1 52%, MRSA.

She has DF508/3849+10kbC>T, PS, MRSA, FEV1 81% (currently). She went to clinic last week and again was cultured + for MRSA. Can anyone enlighten me a bit more about MRSA??? When I called the clinic to get the results, they didn't seem too concerned, but I am. She is on Bactrim. From what little I do know, it shows up mostly in adults and is rare in children, no real knowledge of the effects.

We were told for a few years that she had asthma. Last year she started going downhill, not growing, more frequent chest infections and coughing. Is it to her favor she was diagnosed late, meaning maybe her symptoms are not as severe or is it a bad thing being that she hasn't gotten the proper treatments in 9 years and more damage has been done???

Any advice would be great!

Best in health <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina

 

[ginandbrea]

My daughter is 9 y/o with CF. She was just Dx in Oct at age 9 and immediately put in Children's Hospital for 2 weeks upon Dx with FEV1 52%, MRSA.

She has DF508/3849+10kbC>T, PS, MRSA, FEV1 81% (currently). She went to clinic last week and again was cultured + for MRSA. Can anyone enlighten me a bit more about MRSA??? When I called the clinic to get the results, they didn't seem too concerned, but I am. She is on Bactrim. From what little I do know, it shows up mostly in adults and is rare in children, no real knowledge of the effects.

We were told for a few years that she had asthma. Last year she started going downhill, not growing, more frequent chest infections and coughing. Is it to her favor she was diagnosed late, meaning maybe her symptoms are not as severe or is it a bad thing being that she hasn't gotten the proper treatments in 9 years and more damage has been done???

Any advice would be great!

Best in health <img src="i/expressions/face-icon-small-smile.gif" border="0">

Gina

 

[vinsmom]

Sounds like you're in Arizona? Are you? My 9 year old had MRSA back in Oct as well and his PFT's dropped to 68% We put him on three weeks of Bactrium and he was fine. Then in December he dropped to 74% again and had 3 weeks of IV therapy w/no improvement but the MRSA was gone. We finally tested him for Valley Fever..we live in AZ, and he was positive. He's being treated for that with fluconozole daily and his last PFT's in January were up to 84%. The MRSA is very common in CFers. Just make sure she's not coughing on anyone as it is airborne. We had good luck w/our treatment so I hope you do too.

 

[vinsmom]

Sounds like you're in Arizona? Are you? My 9 year old had MRSA back in Oct as well and his PFT's dropped to 68% We put him on three weeks of Bactrium and he was fine. Then in December he dropped to 74% again and had 3 weeks of IV therapy w/no improvement but the MRSA was gone. We finally tested him for Valley Fever..we live in AZ, and he was positive. He's being treated for that with fluconozole daily and his last PFT's in January were up to 84%. The MRSA is very common in CFers. Just make sure she's not coughing on anyone as it is airborne. We had good luck w/our treatment so I hope you do too.

 

[vinsmom]

Sounds like you're in Arizona? Are you? My 9 year old had MRSA back in Oct as well and his PFT's dropped to 68% We put him on three weeks of Bactrium and he was fine. Then in December he dropped to 74% again and had 3 weeks of IV therapy w/no improvement but the MRSA was gone. We finally tested him for Valley Fever..we live in AZ, and he was positive. He's being treated for that with fluconozole daily and his last PFT's in January were up to 84%. The MRSA is very common in CFers. Just make sure she's not coughing on anyone as it is airborne. We had good luck w/our treatment so I hope you do too.

 

[vinsmom]

Sounds like you're in Arizona? Are you? My 9 year old had MRSA back in Oct as well and his PFT's dropped to 68% We put him on three weeks of Bactrium and he was fine. Then in December he dropped to 74% again and had 3 weeks of IV therapy w/no improvement but the MRSA was gone. We finally tested him for Valley Fever..we live in AZ, and he was positive. He's being treated for that with fluconozole daily and his last PFT's in January were up to 84%. The MRSA is very common in CFers. Just make sure she's not coughing on anyone as it is airborne. We had good luck w/our treatment so I hope you do too.

 

[vinsmom]

Sounds like you're in Arizona? Are you? My 9 year old had MRSA back in Oct as well and his PFT's dropped to 68% We put him on three weeks of Bactrium and he was fine. Then in December he dropped to 74% again and had 3 weeks of IV therapy w/no improvement but the MRSA was gone. We finally tested him for Valley Fever..we live in AZ, and he was positive. He's being treated for that with fluconozole daily and his last PFT's in January were up to 84%. The MRSA is very common in CFers. Just make sure she's not coughing on anyone as it is airborne. We had good luck w/our treatment so I hope you do too.

 

[ginandbrea]

Hi Vinsmom!,

Thank you so much for the incouraging words, I'm so glad I found this site, everyone here is so so nice and helpful!

We live in San Diego, do you think Valley Fever is possible here? I will have to do some research on that.

So happy to hear your son is better, that's so great!

Hope to chat again soon and again thank you so much!

Gina

 

[ginandbrea]

Hi Vinsmom!,

Thank you so much for the incouraging words, I'm so glad I found this site, everyone here is so so nice and helpful!

We live in San Diego, do you think Valley Fever is possible here? I will have to do some research on that.

So happy to hear your son is better, that's so great!

Hope to chat again soon and again thank you so much!

Gina

 

[ginandbrea]

Hi Vinsmom!,

Thank you so much for the incouraging words, I'm so glad I found this site, everyone here is so so nice and helpful!

We live in San Diego, do you think Valley Fever is possible here? I will have to do some research on that.

So happy to hear your son is better, that's so great!

Hope to chat again soon and again thank you so much!

Gina

 

[ginandbrea]

Hi Vinsmom!,

Thank you so much for the incouraging words, I'm so glad I found this site, everyone here is so so nice and helpful!

We live in San Diego, do you think Valley Fever is possible here? I will have to do some research on that.

So happy to hear your son is better, that's so great!

Hope to chat again soon and again thank you so much!

Gina

 

[ginandbrea]

Hi Vinsmom!,

Thank you so much for the incouraging words, I'm so glad I found this site, everyone here is so so nice and helpful!

We live in San Diego, do you think Valley Fever is possible here? I will have to do some research on that.

So happy to hear your son is better, that's so great!

Hope to chat again soon and again thank you so much!

Gina

 

[Alyssa]

MRSA is just a staph infection that is resistant to certain types of antibiotics. It is one of those bugs that they have to be careful of so you will see the doctors and hospitals follow "gowning and masking" procedures because they have to. But as far as CF goes, it's somewhat common to have MRSA and is not one of the more "feared" bugs because it is not generally associated with causing the lung damage that other bacteria can cause over time. It's the resistance to certain antibiotics that can make it more tricky to treat and try to get rid of.

It's still possible that she could eradicate it - that doesn't happen often, but it does happen. My daughter is one of the few who has been able to clear both MRSA and Psuedomonas infections and so far they have not returned (almost 5 years now)

To answer your question about being diagnosed later being an advantage to her or not... no, there is no advantage to being diagnosed later because you miss out on the correct diagnosis and treatment options. Does she have any permanent lung damage? If yes, would that have been prevented had she been getting treatments all those years??? Who knows for sure. But yes, it does mean that she was probably healthier than most people with CF by that age (showing fewer symptom), so it was easier for the doctors to "miss" the fact that she had CF.

Our daughter was misdiagnosed with "asthma with productive cough" from age 5 through age 14. Yes, it was nice I guess to not know she had CF all those years, and no permanent harm to her lungs occurred, but I feel we were just lucky that she didn't get Psuedomonas and become colonized with it during that time... we would have left it untreated for a long long time because they had already sweat tested her and told us "NO CF".... they were wrong.

 

[Alyssa]

MRSA is just a staph infection that is resistant to certain types of antibiotics. It is one of those bugs that they have to be careful of so you will see the doctors and hospitals follow "gowning and masking" procedures because they have to. But as far as CF goes, it's somewhat common to have MRSA and is not one of the more "feared" bugs because it is not generally associated with causing the lung damage that other bacteria can cause over time. It's the resistance to certain antibiotics that can make it more tricky to treat and try to get rid of.

It's still possible that she could eradicate it - that doesn't happen often, but it does happen. My daughter is one of the few who has been able to clear both MRSA and Psuedomonas infections and so far they have not returned (almost 5 years now)

To answer your question about being diagnosed later being an advantage to her or not... no, there is no advantage to being diagnosed later because you miss out on the correct diagnosis and treatment options. Does she have any permanent lung damage? If yes, would that have been prevented had she been getting treatments all those years??? Who knows for sure. But yes, it does mean that she was probably healthier than most people with CF by that age (showing fewer symptom), so it was easier for the doctors to "miss" the fact that she had CF.

Our daughter was misdiagnosed with "asthma with productive cough" from age 5 through age 14. Yes, it was nice I guess to not know she had CF all those years, and no permanent harm to her lungs occurred, but I feel we were just lucky that she didn't get Psuedomonas and become colonized with it during that time... we would have left it untreated for a long long time because they had already sweat tested her and told us "NO CF".... they were wrong.

 

[Alyssa]

MRSA is just a staph infection that is resistant to certain types of antibiotics. It is one of those bugs that they have to be careful of so you will see the doctors and hospitals follow "gowning and masking" procedures because they have to. But as far as CF goes, it's somewhat common to have MRSA and is not one of the more "feared" bugs because it is not generally associated with causing the lung damage that other bacteria can cause over time. It's the resistance to certain antibiotics that can make it more tricky to treat and try to get rid of.

It's still possible that she could eradicate it - that doesn't happen often, but it does happen. My daughter is one of the few who has been able to clear both MRSA and Psuedomonas infections and so far they have not returned (almost 5 years now)

To answer your question about being diagnosed later being an advantage to her or not... no, there is no advantage to being diagnosed later because you miss out on the correct diagnosis and treatment options. Does she have any permanent lung damage? If yes, would that have been prevented had she been getting treatments all those years??? Who knows for sure. But yes, it does mean that she was probably healthier than most people with CF by that age (showing fewer symptom), so it was easier for the doctors to "miss" the fact that she had CF.

Our daughter was misdiagnosed with "asthma with productive cough" from age 5 through age 14. Yes, it was nice I guess to not know she had CF all those years, and no permanent harm to her lungs occurred, but I feel we were just lucky that she didn't get Psuedomonas and become colonized with it during that time... we would have left it untreated for a long long time because they had already sweat tested her and told us "NO CF".... they were wrong.

 

[Alyssa]

MRSA is just a staph infection that is resistant to certain types of antibiotics. It is one of those bugs that they have to be careful of so you will see the doctors and hospitals follow "gowning and masking" procedures because they have to. But as far as CF goes, it's somewhat common to have MRSA and is not one of the more "feared" bugs because it is not generally associated with causing the lung damage that other bacteria can cause over time. It's the resistance to certain antibiotics that can make it more tricky to treat and try to get rid of.

It's still possible that she could eradicate it - that doesn't happen often, but it does happen. My daughter is one of the few who has been able to clear both MRSA and Psuedomonas infections and so far they have not returned (almost 5 years now)

To answer your question about being diagnosed later being an advantage to her or not... no, there is no advantage to being diagnosed later because you miss out on the correct diagnosis and treatment options. Does she have any permanent lung damage? If yes, would that have been prevented had she been getting treatments all those years??? Who knows for sure. But yes, it does mean that she was probably healthier than most people with CF by that age (showing fewer symptom), so it was easier for the doctors to "miss" the fact that she had CF.

Our daughter was misdiagnosed with "asthma with productive cough" from age 5 through age 14. Yes, it was nice I guess to not know she had CF all those years, and no permanent harm to her lungs occurred, but I feel we were just lucky that she didn't get Psuedomonas and become colonized with it during that time... we would have left it untreated for a long long time because they had already sweat tested her and told us "NO CF".... they were wrong.

 

[Alyssa]

MRSA is just a staph infection that is resistant to certain types of antibiotics. It is one of those bugs that they have to be careful of so you will see the doctors and hospitals follow "gowning and masking" procedures because they have to. But as far as CF goes, it's somewhat common to have MRSA and is not one of the more "feared" bugs because it is not generally associated with causing the lung damage that other bacteria can cause over time. It's the resistance to certain antibiotics that can make it more tricky to treat and try to get rid of.

It's still possible that she could eradicate it - that doesn't happen often, but it does happen. My daughter is one of the few who has been able to clear both MRSA and Psuedomonas infections and so far they have not returned (almost 5 years now)

To answer your question about being diagnosed later being an advantage to her or not... no, there is no advantage to being diagnosed later because you miss out on the correct diagnosis and treatment options. Does she have any permanent lung damage? If yes, would that have been prevented had she been getting treatments all those years??? Who knows for sure. But yes, it does mean that she was probably healthier than most people with CF by that age (showing fewer symptom), so it was easier for the doctors to "miss" the fact that she had CF.

Our daughter was misdiagnosed with "asthma with productive cough" from age 5 through age 14. Yes, it was nice I guess to not know she had CF all those years, and no permanent harm to her lungs occurred, but I feel we were just lucky that she didn't get Psuedomonas and become colonized with it during that time... we would have left it untreated for a long long time because they had already sweat tested her and told us "NO CF".... they were wrong.