MRSA??

anonymous

New member
I just found out that my 3 1/2 mth old cultured MRSA. I cant believe it, we are so concious(sp?) about everything and we never take her anywhere. How did she get this?? I just cant stop crying, my head is about to explode!! My heart is just breaking!!<img src="i/expressions/brokenheart.gif" border="0"> What am I supposed to do? What will happen? Her dr didnt even say anything about it. So she can never get rid of it?? I am so sick to my stomach,. Will this amke her very sick??

Thanks<img src="i/expressions/face-icon-small-sad.gif" border="0">
 
2

2sickkids

Guest
My oldest boy has had MRSA since '03 dr tried 4 antibotics at home for 1wk then at hosp 1wk followed by 2 more wks at home nothing worked. It hasn't made any change in his xrays. He has only been in the hosp one time so don't think they r worried. Had a baby in aug and his 1st xrays showed he was born w lung damage and MRSA since 2wks old but they haven't tried anything for the baby 6months now so not to sure. But mine seem do be fine w/it so try not to worry to much the only place I really take my boys is the dr but they said a lot of people carry staph, strep and stuff so I use hospital cleaner and keep hand sanitiser in every room
 

anonymous

New member
To be honest, your baby most likely cultured it from a visit to the doctor or hospital, sometimes via just simple contact, but especially if they have had any invasive procedures done.

Even though my husband is healthy, I still make him wear a mask anytime he goes to a CF appointment, and make the staff wash their hands before they touch him. If he is having a procedure done (like a sleep study with a bipap machine) I request ALL new tubing and disinfect the machine myself. If the clinic were ever to object, we would go somewhere that wouldn't. But they dont' and they understand our concern.

That being said, MRSA is "treatable" although will never go away and can always reappear, people still live a long time with it. The baby could have even contracted it from any medical "tools" that were used at birth (forceps) or blankets at the hospital. Keep your head up, this is a setback, but it is livable.

Julie
Wife to Mark 24 w/CF
 

anonymous

New member
Oh, and I forgot, to the second poster, have they tested you for MRSA? I am just curious. Do they think the youngest got it from the oldest, or did you use the same hospital for both children?

Julie
 

anonymous

New member
MRSA stands for methicillin resistant staphylococcus aureus (although I have also seen it used for the synonymous Multi-resistant staphylococcus aureus). In both incidences it describes Staph aureus that is resistant to the normal antibiotics of choice. Strangely enough (bearing in mind the high incidence of S. aureus and the amount of antibiotic treatments taken by your average PWCF) it is still relatively rare in CF. I recently did a literature search and found no comprehensive studies on MRSA in CF which almost certainly means it is not common world wide. In our own experience, only two of our patients have had MRSA in the last 15 years. In both cases the infections were successfully treated with Vancomycin. This is one of the antibiotics we hold in reserve and only use to treat emerging multi-resistant organisms. Teicoplanin is another antibiotic that can be used in its treatment. Unlike B. cepacia, and P. aeruginosa, MRSA can usually be successfully removed and is not an infection that once got is usually for life. Of course there is no guarantee, that once it has been eradicated, a PWCF will not pick up either normal Staph or MRSA again at a later date.

Here is 1 of 2 articles that I have found that says you can get rid of MRSA.
 

anonymous

New member
ok so i have a dumb question......is staph and mrsa related........................ i mean my son has cultured staph since he was diagnosed.... so does that mean eventually it will change to being mrsa???????? im just confused...... are they related or are they 2 different bugs



Melissa
 

anonymous

New member
Yeah, thats what they told me was that it was staph. I didnt know it was MRSA until I got the letter of recommendations from the drs office!!
 
2

2sickkids

Guest
Julie,
differnt hospitals,same cf clinic ,I was never tested but had my pulm give me antibiotics sons pulm originaly though I gave to him because I worked in healthcare before I had my son. When my oldest was in hosp I left my hosp 6 months preg a m a to go stay with him. But no way to tell
 

anonymous

New member
Melissa,

Staph can become a MRSA when antibiotics are not properly utilized, that is how it probably was created. "Superbugs" are credited to docs who treat without getting sensitivities and people not taking the complete dosage and length as prescribed. MRSA is staph with resistance to most antibiotics, they are different strains but by defintition what makes a MRSA is its resistance to all but Vancomycin.


Luke
 

anonymous

New member
So if she has MRSA why wouldnt they have put her on that vancomycin? If that is the only thing that will treat it?? AHHH, now I have to wonder all weekend!!
 

anonymous

New member
At this point vanco is the only know method of treating MRSA that has been sucessful, it is quite the resiliant bug. But that being said, you have to be careful with vanco because once the MRSA becomes resistant to that, there might be one other option the Teicoplanin , but there is no other existing antibiotic at this point known to treat MRSA the way vanco does and alleviate all symptoms.
It is believed that once you culture MRSA, you have it forever, but it lays "dormant" in you system at times so one month you could culture it, treat it and get retested and it's gone. Then you test again 6 months, a year or even two later (and it's been "clean"/gone) this whole time and you culture it again. So the idea is that if it's treated properly, it will "go away" (meaning it will be inactive in your system) but may or may not reappear throughout your life. What causes it to "come back" has not been determined yet, although some docs think it might be lung infections, increased stress, inadequate diet/nutrition which in turn lowers the immune system.

Julie
 

anonymous

New member
I have MRSA and I can usually knock it down w/ doxycycline or minocycline. I would suggest trying these before getting out the "big guns" (i.e. vancomycin, etc)
I've also heard of zyvox (linezolid) possibly to treat MRSA and this is going to sound strange, but put garlic & MRSA in your google search or whatever search engine you have & see what you can pick up about the advantages of treating MRSA with garlic. Probably not anything your Dr would suggest, but it probably couldn't hurt to try it??
 

anonymous

New member
I read that once you do not culture it at least 3 x in a row it is gone and if you do culture it down the road it is a different strain.

Not sure why they are not treating your baby for it!!!

GL, here is what I read!

What are the clinical implications of MRSA?

Many CF patients are labelled as colonised with MRSA (that is to say there are no signs of infection associated with its isolation) rather than infected. Although a number of body sites can harbour MRSA, most MRSA-positive CF patients are found to carry the organism in their nose, throats and sputum, rather than on the skin. Colonisation status may also vary over time without any specific therapeutic interventions. About half of positive patients will eventually lose their MRSA for good, a quarter will be colonised continuously, and another quarter will be colonised intermittently. The duration of colonisation may also be brief. About 35% of CF patients in one study became MRSA-negative again within one month. The clinical relevance of MRSA in the sputum of CF patients remains unclear. On the whole, colonisation has not been linked with deterioration in lung function. However, as many MRSA-positive CF patients are also infected with other pathogens, such as Pseudomonas aeruginosa or Burkholderia cepacia, it can be very difficult to distinguish the clinical significance of MRSA in comparison to these other organisms. There is some evidence that being MRSA-positive may have a negative impact on growth in CF children. The reasons for this are unknown. The same study also found that these MRSA-positive patients required more courses of intravenous antibiotics and had worse chest x-ray scores than controls. However, the authors did not retrospectively examine differences in clinical condition and antibiotic use prior to MRSA acquisition. In one study of outcomes of MRSA colonisation in CF, only three patients were MRSA-positive at the time of death, and in only one of these was MRSA considered a possible contributing factor. Many CF patients now have permanent intravenous access devices such as Portocaths or PAS ports for the infusion of antibiotics. In some patients these intravenous lines have become infected and, in many instances, it has resulted in their removal. Many different organisms can be responsible for these infections, including MRSA. Intravenous access devices are now the commonest source of nosocomial MRSA bacteraemia in all patient groups.
 

anonymous

New member
Tetracycline is a great point! It is bacterial-static, not bacterial-cidal, it inhibits the growth of the bacteri letting your body attack it rather than actually "killing" it with Vanc. VERY NICE!


Luke
 

anonymous

New member
I would also like to add that docs and scientists are thinking that MRSA isn't as bad as they thought. Sure they are keeping with their original thoughts but are "investigating" its harmfulness. Not that you don't have to worry about it anymore (I sure do as my daughter has it) but don't stress over it, well too much anyway! Best of luck to all of you who have it!<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/rose.gif" border="0"><img src="i/expressions/face-icon-small-wink.gif" border="0">
 
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