Mucomyst shortage

Starfall99

New member
A couple months ago I tried to refill my Mucomyst perscription and was told by the CF pharmacy that it was on backorder. I still had some overstock and my doctor thought there would be more available by the time I ran out. I finally ran out about 3 weeks ago, and guess what? Still can't get it! I'm starting to feel awful and am really worried about what's going to happen if I can't get my medicine. I live near Philadelphia, and have been exploring online Canadian pharmacies out of desperation. Are other people having this problem? Are any of you familiar with online pharmacies? I've never done this before and would appreciate any advice.

Thanks!

Eliana
 

triples15

Super Moderator
BLAH Eliana! I'm having the same problem and it's SOOO frustrating!!! Ugh. Walgreens stopped being able to get it for me months ago (maybe almost a year?). Then I was able to find it at my hospital pharmacy. They supplied me for a few months and now they can no longer get it either. I was told the same thing you were when I checked with CF Services, and that they don't have any idea when they'll get more in.

I've had a pretty nasty exacerbation recently and am coming off of 4 weeks of IVs. I'm still not back up to baseline and I REALLY need my mucomyst. I'm beyond frustrated.

Anyway, the FDA's website says the next release is scheduled in March, but that is only by 1 of the 3 manufactures. The other 2 manufacturers are no longer even giving an estimated release date, which is definitely not good news. So the little that is released in March will probably go to hospitals and we won't see any of it!

Here is the link. I've been keeping an eye on it for updates, so it may be helpful to you:

http://www.fda.gov/Drugs/DrugSafety/DrugShortages/ucm314739.htm#acetylcysteine

There are only a few of us that I know of around here that still use mucomyst. Hopefully some others see and respond. I'm sorry I can't be of any help regarding online and/or Canadian pharmacies. I know it would make me a little nervous, but I can DEFINITELY see how you would be desperate enough to consider it. Let me know if you decide to go that route, would you?



Autumn, 32 w/CF
 
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