My roommate's 2-1/2 yr. old daughter my have CF.

A

anonymous

New member
The tests haven't been completed but they are pretty sure that she has CF. My roommate, a single 22 year old mother is having a tough time dealing with this, and I don't blame her. I am trying to find as much information as I can for her so that she has a better understanding about the disease. Does anyone know any good sites for finding info., and help in Oregon??
Catherine
 
A

anonymous

New member
have you tried www.cff.org?

If the baby gets diagnosed and she needs assistance, I would look up Oregon Medicaid. <a target=new class=ftalternatingbarlinklarge href="http://www.oregon.gov/DHS/index.shtml">http://www.oregon.gov/DHS/index.shtml</a>

Here are some assistance websites that run off of donations, so if your roommate applies for assistance if the baby is diagnosed-PLEASE pass the word to family and friends, both her's and yours as they run off solely donations!

<a target=new class=ftalternatingbarlinklarge href="http://www.milanfoundation.org/
">http://www.milanfoundation.org/
</a><a target=new class=ftalternatingbarlinklarge href="http://www.r4stars.org/news-6-11-2004.htm
">http://www.r4stars.org/news-6-11-2004.htm
</a>
Please keep us updated on the diagnosis, were here to help!

Julie (wife to Mark 24 w/CF)
 
A

anonymous

New member
We got the sweat test results back last night and they were negative. She is still really sick, but atleast we know it's not CF. They think that she may have colin cancer and are going to be doing a biopsy within the next few weeks. They have her on all sorts of medications for her asthma and phenomia. Hopefully the doctors will figure this out soon, children shouldn't have to be this ill. It was sort of amazing though, we live in a very small close community and once people heard about her may having CF everyone became very educated on the disease. We all read about it all day. I love small towns!!!
Thanks!!!
 
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