My 7 yr old was dx at 5 moths and has had a very light case Thank u GOD everyday.... But everyone i meet or talk to has it in the lungs so I have not had much luck on thinks to look for in the future. Can anyone tell me how i can find more children like my son in our area. We live in NorthEast Georgia almost to Athens GA and almost to S Caroline line. We are from Dallas ( Mareitta) GA can anyone help me..Thanks Farrah mother of Alex age 7
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My son just has it in the GI tract does anyone else?
- Thread starter anonymous
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My two girls have CF and my first girl had only GI problems up untill recently she has started with the lung involvement side. My youngest girl has more lung problems them GI problems.We also live in athens georgia area. Would love to talk thru e-mail. please e-mail me and we can share our stories.Tracey Oldhamtoldham@leonfarmer.com
U're childs CF may be involved in the GI tract now but it could eventually move to lungs...When i was born i had GI problems thats how they knew i had CF however my lungs were uninvolved untill i was 15 , that is when i started to have breathing problems and i cultured for some bugs. I now have little problems with my GI system. I'm not tryin to scare u but i want u to be aware of what can happen in the future.
Hello, in response to your question about GI problems, my son who just turned 2 has mainly GI problems with his CF. He suffers from pancreatic insuffiency and malabsorption. He also has acid reflux. He is on several medicines for this (zantac, prilosec, reglan, and pancreatic enzymes.) He also had a feeding tube placed thru his stomach to provide supplemental nutrition ( a GJ tube) about 3 months ago. He was diagnosed at birth with his CF, there is mandatory newborn screening here in Pennsylvania. I am sure that he probably would have been misdiagnosed with something else because he doesn't have the classic Lung problems yet associated with CF. He is doing quite well Thank God <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has been treated since the day he was diagnosed, both for GI and Lungs. He gets breathing treatments and chest PT 2-4 times a day just precautionary/preventive to keep his lungs healthy. Hope this helps you out.Donna mother of Mikey 2 Y.O. with CF