The first drive has both some hope and reservations that you may die within the next 8-10 hours. Saying goodbye at the door to the surgery area happens rather fast. The prep takes your mind off of the surgery to come, frequently it is at night and your tired. After a "dry run" it becomes easier. I had a call one night, all night up and sent home around 8 AM. That night was another call (9 PM), exhausted (from the prior night) I went in (told this time I would get the lungs) and the TX started around dawn.
No terror yet not the feeling of great excitement for me. I felt I had 5-6 months left at the time (my wife felt 2 months). I had no doubt about the desire to go forward, yet that night I was not in the "mood" to go back in for the same drill. Certainly, my wife and I had serious discussions on the 25 min. drive and in the room prior to being brought to surgery. For some reason I felt I would have a fairly easy time with the TX and either be dead or out in ten days. The long complications and vent for well over a month got rather tedious. Leaving on oxygen was not anticipated after two months in the hospital. Getting out of bed for the daily walk took two nurses around 1 hour to get ready, a 5 minute walk, and one hour to get back to bed. Being on a walk and run out of oxygen (when on 5 plus liters) was priceless. Over a month of hallucinations (many drugs on board from pneumonia) was interesting.
Worth all the effort without any reservations.
CF 55 TX cepacia
No terror yet not the feeling of great excitement for me. I felt I had 5-6 months left at the time (my wife felt 2 months). I had no doubt about the desire to go forward, yet that night I was not in the "mood" to go back in for the same drill. Certainly, my wife and I had serious discussions on the 25 min. drive and in the room prior to being brought to surgery. For some reason I felt I would have a fairly easy time with the TX and either be dead or out in ten days. The long complications and vent for well over a month got rather tedious. Leaving on oxygen was not anticipated after two months in the hospital. Getting out of bed for the daily walk took two nurses around 1 hour to get ready, a 5 minute walk, and one hour to get back to bed. Being on a walk and run out of oxygen (when on 5 plus liters) was priceless. Over a month of hallucinations (many drugs on board from pneumonia) was interesting.
Worth all the effort without any reservations.
CF 55 TX cepacia