Neb treatments

S

sdavis227

New member
After reading the post about the order in which you do nebs and cpt, I had a question that I'm sure has been asked, and I might have even asked it at one time, but am now more curious.

Why is there such a difference in what kinds of nebs the docs prescribe? I know that some of them are because of symptoms or cultures, but I also see that some of them are just proactive.

DS isn't on anything but albuterol and that's just when he has a cough. I've loved this because of course this is a lot less work for us, but I'm wondering if it would be better for him in the long run to be doing nebs to be proactive?

Can some of you please discuss with me what your child is on and why the doc prescribed it, what they said that it would do and why they think it's important?

DS has clinic next month, and I'd like to have some info on all of this if there is a reason to be proactive about the neb issue.

Thanks!
 
S

sdavis227

New member
After reading the post about the order in which you do nebs and cpt, I had a question that I'm sure has been asked, and I might have even asked it at one time, but am now more curious.

Why is there such a difference in what kinds of nebs the docs prescribe? I know that some of them are because of symptoms or cultures, but I also see that some of them are just proactive.

DS isn't on anything but albuterol and that's just when he has a cough. I've loved this because of course this is a lot less work for us, but I'm wondering if it would be better for him in the long run to be doing nebs to be proactive?

Can some of you please discuss with me what your child is on and why the doc prescribed it, what they said that it would do and why they think it's important?

DS has clinic next month, and I'd like to have some info on all of this if there is a reason to be proactive about the neb issue.

Thanks!
 
S

sdavis227

New member
After reading the post about the order in which you do nebs and cpt, I had a question that I'm sure has been asked, and I might have even asked it at one time, but am now more curious.

Why is there such a difference in what kinds of nebs the docs prescribe? I know that some of them are because of symptoms or cultures, but I also see that some of them are just proactive.

DS isn't on anything but albuterol and that's just when he has a cough. I've loved this because of course this is a lot less work for us, but I'm wondering if it would be better for him in the long run to be doing nebs to be proactive?

Can some of you please discuss with me what your child is on and why the doc prescribed it, what they said that it would do and why they think it's important?

DS has clinic next month, and I'd like to have some info on all of this if there is a reason to be proactive about the neb issue.

Thanks!
 
S

sdavis227

New member
After reading the post about the order in which you do nebs and cpt, I had a question that I'm sure has been asked, and I might have even asked it at one time, but am now more curious.

Why is there such a difference in what kinds of nebs the docs prescribe? I know that some of them are because of symptoms or cultures, but I also see that some of them are just proactive.

DS isn't on anything but albuterol and that's just when he has a cough. I've loved this because of course this is a lot less work for us, but I'm wondering if it would be better for him in the long run to be doing nebs to be proactive?

Can some of you please discuss with me what your child is on and why the doc prescribed it, what they said that it would do and why they think it's important?

DS has clinic next month, and I'd like to have some info on all of this if there is a reason to be proactive about the neb issue.

Thanks!
 
S

sdavis227

New member
After reading the post about the order in which you do nebs and cpt, I had a question that I'm sure has been asked, and I might have even asked it at one time, but am now more curious.
<br />
<br />Why is there such a difference in what kinds of nebs the docs prescribe? I know that some of them are because of symptoms or cultures, but I also see that some of them are just proactive.
<br />
<br />DS isn't on anything but albuterol and that's just when he has a cough. I've loved this because of course this is a lot less work for us, but I'm wondering if it would be better for him in the long run to be doing nebs to be proactive?
<br />
<br />Can some of you please discuss with me what your child is on and why the doc prescribed it, what they said that it would do and why they think it's important?
<br />
<br />DS has clinic next month, and I'd like to have some info on all of this if there is a reason to be proactive about the neb issue.
<br />
<br />Thanks!
 
M

Mommy2Alysa

New member
Alysa is currently on Salbutimol (the saline water?) and tobramycin (beacuse she HAD pseudomonas - hoping its gone).

Other then knowing the names I am not sure why they were prescribed sorry.
 
M

Mommy2Alysa

New member
Alysa is currently on Salbutimol (the saline water?) and tobramycin (beacuse she HAD pseudomonas - hoping its gone).

Other then knowing the names I am not sure why they were prescribed sorry.
 
M

Mommy2Alysa

New member
Alysa is currently on Salbutimol (the saline water?) and tobramycin (beacuse she HAD pseudomonas - hoping its gone).

Other then knowing the names I am not sure why they were prescribed sorry.
 
M

Mommy2Alysa

New member
Alysa is currently on Salbutimol (the saline water?) and tobramycin (beacuse she HAD pseudomonas - hoping its gone).

Other then knowing the names I am not sure why they were prescribed sorry.
 
M

Mommy2Alysa

New member
Alysa is currently on Salbutimol (the saline water?) and tobramycin (beacuse she HAD pseudomonas - hoping its gone).
<br />
<br />Other then knowing the names I am not sure why they were prescribed sorry.
 
S

shimmereestar

New member
Ellie is on Xopenex ( a types of albuetrol) 4 times a day. They prescribed this to make sure her air ways are always at their max. The doctor prescribed her pulmozyne twice a day. We have been on this before we even knew she had cf. Our doctor tends to be pretty aggressive in treatments. Because she is so young and has already had pneumonia twice they just want to do everything they can to keep her healthy. She has had two bronchs and you can see from the pics in her lungs all the mucus. That's why they kept the pulmozyne (and our insurance copay is not much on it considering the price of it). These also won't ever hurt her so I figure what's the harm. She also does flovent twice a day but this was due to wheezing and maybe possible asthma. Again our docs are pretty aggressive in their treatment but she is also double delta f508 so I'm sure that's part of their thinking too. They tell me when she gets older they will probably knock her Xopenex to 2 or 3 times a day. We also cpt her 4 times a day (only about 9 minutes after each xopenex treatment) They just want keep her as healthy as possible (as do we) but it takes up a lot of time during the day. Probably TMI for you, but that's what we do and why <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

shimmereestar

New member
Ellie is on Xopenex ( a types of albuetrol) 4 times a day. They prescribed this to make sure her air ways are always at their max. The doctor prescribed her pulmozyne twice a day. We have been on this before we even knew she had cf. Our doctor tends to be pretty aggressive in treatments. Because she is so young and has already had pneumonia twice they just want to do everything they can to keep her healthy. She has had two bronchs and you can see from the pics in her lungs all the mucus. That's why they kept the pulmozyne (and our insurance copay is not much on it considering the price of it). These also won't ever hurt her so I figure what's the harm. She also does flovent twice a day but this was due to wheezing and maybe possible asthma. Again our docs are pretty aggressive in their treatment but she is also double delta f508 so I'm sure that's part of their thinking too. They tell me when she gets older they will probably knock her Xopenex to 2 or 3 times a day. We also cpt her 4 times a day (only about 9 minutes after each xopenex treatment) They just want keep her as healthy as possible (as do we) but it takes up a lot of time during the day. Probably TMI for you, but that's what we do and why <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

shimmereestar

New member
Ellie is on Xopenex ( a types of albuetrol) 4 times a day. They prescribed this to make sure her air ways are always at their max. The doctor prescribed her pulmozyne twice a day. We have been on this before we even knew she had cf. Our doctor tends to be pretty aggressive in treatments. Because she is so young and has already had pneumonia twice they just want to do everything they can to keep her healthy. She has had two bronchs and you can see from the pics in her lungs all the mucus. That's why they kept the pulmozyne (and our insurance copay is not much on it considering the price of it). These also won't ever hurt her so I figure what's the harm. She also does flovent twice a day but this was due to wheezing and maybe possible asthma. Again our docs are pretty aggressive in their treatment but she is also double delta f508 so I'm sure that's part of their thinking too. They tell me when she gets older they will probably knock her Xopenex to 2 or 3 times a day. We also cpt her 4 times a day (only about 9 minutes after each xopenex treatment) They just want keep her as healthy as possible (as do we) but it takes up a lot of time during the day. Probably TMI for you, but that's what we do and why <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

shimmereestar

New member
Ellie is on Xopenex ( a types of albuetrol) 4 times a day. They prescribed this to make sure her air ways are always at their max. The doctor prescribed her pulmozyne twice a day. We have been on this before we even knew she had cf. Our doctor tends to be pretty aggressive in treatments. Because she is so young and has already had pneumonia twice they just want to do everything they can to keep her healthy. She has had two bronchs and you can see from the pics in her lungs all the mucus. That's why they kept the pulmozyne (and our insurance copay is not much on it considering the price of it). These also won't ever hurt her so I figure what's the harm. She also does flovent twice a day but this was due to wheezing and maybe possible asthma. Again our docs are pretty aggressive in their treatment but she is also double delta f508 so I'm sure that's part of their thinking too. They tell me when she gets older they will probably knock her Xopenex to 2 or 3 times a day. We also cpt her 4 times a day (only about 9 minutes after each xopenex treatment) They just want keep her as healthy as possible (as do we) but it takes up a lot of time during the day. Probably TMI for you, but that's what we do and why <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

shimmereestar

New member
Ellie is on Xopenex ( a types of albuetrol) 4 times a day. They prescribed this to make sure her air ways are always at their max. The doctor prescribed her pulmozyne twice a day. We have been on this before we even knew she had cf. Our doctor tends to be pretty aggressive in treatments. Because she is so young and has already had pneumonia twice they just want to do everything they can to keep her healthy. She has had two bronchs and you can see from the pics in her lungs all the mucus. That's why they kept the pulmozyne (and our insurance copay is not much on it considering the price of it). These also won't ever hurt her so I figure what's the harm. She also does flovent twice a day but this was due to wheezing and maybe possible asthma. Again our docs are pretty aggressive in their treatment but she is also double delta f508 so I'm sure that's part of their thinking too. They tell me when she gets older they will probably knock her Xopenex to 2 or 3 times a day. We also cpt her 4 times a day (only about 9 minutes after each xopenex treatment) They just want keep her as healthy as possible (as do we) but it takes up a lot of time during the day. Probably TMI for you, but that's what we do and why <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
Z

zeeannie

Guest
Ours is on Albuterol, to open airways; 7% Saline to thin the mucus; pulmozyome, also to thin the mucus, but in a different way; TOBI every other month because she has pseudomonas. She started doing albuterol, pulmozyme and the vest the first time she got a cough when she was about 4 years old. She didn't culture pseudomonas till a few years later, so we started TOBI. We only just started saline to work on the mucus from more than one facet. I think what you're on depends on severity of symptoms, what you culture, and the protocol at your CF center. Good idea to ask questions about the reasons to be or not to be on something.
 
Z

zeeannie

Guest
Ours is on Albuterol, to open airways; 7% Saline to thin the mucus; pulmozyome, also to thin the mucus, but in a different way; TOBI every other month because she has pseudomonas. She started doing albuterol, pulmozyme and the vest the first time she got a cough when she was about 4 years old. She didn't culture pseudomonas till a few years later, so we started TOBI. We only just started saline to work on the mucus from more than one facet. I think what you're on depends on severity of symptoms, what you culture, and the protocol at your CF center. Good idea to ask questions about the reasons to be or not to be on something.
 
Z

zeeannie

Guest
Ours is on Albuterol, to open airways; 7% Saline to thin the mucus; pulmozyome, also to thin the mucus, but in a different way; TOBI every other month because she has pseudomonas. She started doing albuterol, pulmozyme and the vest the first time she got a cough when she was about 4 years old. She didn't culture pseudomonas till a few years later, so we started TOBI. We only just started saline to work on the mucus from more than one facet. I think what you're on depends on severity of symptoms, what you culture, and the protocol at your CF center. Good idea to ask questions about the reasons to be or not to be on something.
 
Z

zeeannie

Guest
Ours is on Albuterol, to open airways; 7% Saline to thin the mucus; pulmozyome, also to thin the mucus, but in a different way; TOBI every other month because she has pseudomonas. She started doing albuterol, pulmozyme and the vest the first time she got a cough when she was about 4 years old. She didn't culture pseudomonas till a few years later, so we started TOBI. We only just started saline to work on the mucus from more than one facet. I think what you're on depends on severity of symptoms, what you culture, and the protocol at your CF center. Good idea to ask questions about the reasons to be or not to be on something.
 
Z

zeeannie

Guest
Ours is on Albuterol, to open airways; 7% Saline to thin the mucus; pulmozyome, also to thin the mucus, but in a different way; TOBI every other month because she has pseudomonas. She started doing albuterol, pulmozyme and the vest the first time she got a cough when she was about 4 years old. She didn't culture pseudomonas till a few years later, so we started TOBI. We only just started saline to work on the mucus from more than one facet. I think what you're on depends on severity of symptoms, what you culture, and the protocol at your CF center. Good idea to ask questions about the reasons to be or not to be on something.
 
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