Need advise

ptwild

New member
When my oldest daughter was pregnant, her blood work showed her to be a carrier of CF. Her husband was then tested, and he is not a carrier. However, my second daughter was worried that she too may be a carrier and asked her doctor to test her. She is also a carrier. She is 25 years old and in a committed relationship. In fact, she and her boyfriend plan on getting engaged soon. My daughter wants her boyfriend to get tested to find out if he is a carrier. He doesn't want to be tested because he says that it wouldn't matter to him if he was a carrier. He doesn't want their relationship or plans for the future to be affected by the test results. However, to appease her, he asked his doctor about being tested. His doctor said that he wouldn't give him the test unless she was pregnant. My daughter is very concerned. she says that she would still marry him if he is a carrier, but she wants to know. Actually, she wants to know that he is not a carrier and then her fears can be alleaved. However, it's impossible to know what the test results would be. Knowing what you all know about CF, would you avoid it at all costs? Or would you wait until pregnancy to find out if there is a possibility of the child having CF (abortion is not an option)? I feel that you never know what difficulties your child may have, whether CF or any other special needs, from birth or later in life. Am I giving her bad advise? I hope this is not too confusing.
 

ptwild

New member
When my oldest daughter was pregnant, her blood work showed her to be a carrier of CF. Her husband was then tested, and he is not a carrier. However, my second daughter was worried that she too may be a carrier and asked her doctor to test her. She is also a carrier. She is 25 years old and in a committed relationship. In fact, she and her boyfriend plan on getting engaged soon. My daughter wants her boyfriend to get tested to find out if he is a carrier. He doesn't want to be tested because he says that it wouldn't matter to him if he was a carrier. He doesn't want their relationship or plans for the future to be affected by the test results. However, to appease her, he asked his doctor about being tested. His doctor said that he wouldn't give him the test unless she was pregnant. My daughter is very concerned. she says that she would still marry him if he is a carrier, but she wants to know. Actually, she wants to know that he is not a carrier and then her fears can be alleaved. However, it's impossible to know what the test results would be. Knowing what you all know about CF, would you avoid it at all costs? Or would you wait until pregnancy to find out if there is a possibility of the child having CF (abortion is not an option)? I feel that you never know what difficulties your child may have, whether CF or any other special needs, from birth or later in life. Am I giving her bad advise? I hope this is not too confusing.
 

ptwild

New member
When my oldest daughter was pregnant, her blood work showed her to be a carrier of CF. Her husband was then tested, and he is not a carrier. However, my second daughter was worried that she too may be a carrier and asked her doctor to test her. She is also a carrier. She is 25 years old and in a committed relationship. In fact, she and her boyfriend plan on getting engaged soon. My daughter wants her boyfriend to get tested to find out if he is a carrier. He doesn't want to be tested because he says that it wouldn't matter to him if he was a carrier. He doesn't want their relationship or plans for the future to be affected by the test results. However, to appease her, he asked his doctor about being tested. His doctor said that he wouldn't give him the test unless she was pregnant. My daughter is very concerned. she says that she would still marry him if he is a carrier, but she wants to know. Actually, she wants to know that he is not a carrier and then her fears can be alleaved. However, it's impossible to know what the test results would be. Knowing what you all know about CF, would you avoid it at all costs? Or would you wait until pregnancy to find out if there is a possibility of the child having CF (abortion is not an option)? I feel that you never know what difficulties your child may have, whether CF or any other special needs, from birth or later in life. Am I giving her bad advise? I hope this is not too confusing.
 

ptwild

New member
When my oldest daughter was pregnant, her blood work showed her to be a carrier of CF. Her husband was then tested, and he is not a carrier. However, my second daughter was worried that she too may be a carrier and asked her doctor to test her. She is also a carrier. She is 25 years old and in a committed relationship. In fact, she and her boyfriend plan on getting engaged soon. My daughter wants her boyfriend to get tested to find out if he is a carrier. He doesn't want to be tested because he says that it wouldn't matter to him if he was a carrier. He doesn't want their relationship or plans for the future to be affected by the test results. However, to appease her, he asked his doctor about being tested. His doctor said that he wouldn't give him the test unless she was pregnant. My daughter is very concerned. she says that she would still marry him if he is a carrier, but she wants to know. Actually, she wants to know that he is not a carrier and then her fears can be alleaved. However, it's impossible to know what the test results would be. Knowing what you all know about CF, would you avoid it at all costs? Or would you wait until pregnancy to find out if there is a possibility of the child having CF (abortion is not an option)? I feel that you never know what difficulties your child may have, whether CF or any other special needs, from birth or later in life. Am I giving her bad advise? I hope this is not too confusing.
 

ptwild

New member
When my oldest daughter was pregnant, her blood work showed her to be a carrier of CF. Her husband was then tested, and he is not a carrier. However, my second daughter was worried that she too may be a carrier and asked her doctor to test her. She is also a carrier. She is 25 years old and in a committed relationship. In fact, she and her boyfriend plan on getting engaged soon. My daughter wants her boyfriend to get tested to find out if he is a carrier. He doesn't want to be tested because he says that it wouldn't matter to him if he was a carrier. He doesn't want their relationship or plans for the future to be affected by the test results. However, to appease her, he asked his doctor about being tested. His doctor said that he wouldn't give him the test unless she was pregnant. My daughter is very concerned. she says that she would still marry him if he is a carrier, but she wants to know. Actually, she wants to know that he is not a carrier and then her fears can be alleaved. However, it's impossible to know what the test results would be. Knowing what you all know about CF, would you avoid it at all costs? Or would you wait until pregnancy to find out if there is a possibility of the child having CF (abortion is not an option)? I feel that you never know what difficulties your child may have, whether CF or any other special needs, from birth or later in life. Am I giving her bad advise? I hope this is not too confusing.
 

ptwild

New member
When my oldest daughter was pregnant, her blood work showed her to be a carrier of CF. Her husband was then tested, and he is not a carrier. However, my second daughter was worried that she too may be a carrier and asked her doctor to test her. She is also a carrier. She is 25 years old and in a committed relationship. In fact, she and her boyfriend plan on getting engaged soon. My daughter wants her boyfriend to get tested to find out if he is a carrier. He doesn't want to be tested because he says that it wouldn't matter to him if he was a carrier. He doesn't want their relationship or plans for the future to be affected by the test results. However, to appease her, he asked his doctor about being tested. His doctor said that he wouldn't give him the test unless she was pregnant. My daughter is very concerned. she says that she would still marry him if he is a carrier, but she wants to know. Actually, she wants to know that he is not a carrier and then her fears can be alleaved. However, it's impossible to know what the test results would be. Knowing what you all know about CF, would you avoid it at all costs? Or would you wait until pregnancy to find out if there is a possibility of the child having CF (abortion is not an option)? I feel that you never know what difficulties your child may have, whether CF or any other special needs, from birth or later in life. Am I giving her bad advise? I hope this is not too confusing.
 

NoExcuses

New member
Get the guy tested. It's a simple blood test.

If he's a carrier, then the couple can adopt.

I would avoid having a CF child at all costs, of course. Why would you knowingly inflict this disease on someone.
 

NoExcuses

New member
Get the guy tested. It's a simple blood test.

If he's a carrier, then the couple can adopt.

I would avoid having a CF child at all costs, of course. Why would you knowingly inflict this disease on someone.
 

NoExcuses

New member
Get the guy tested. It's a simple blood test.

If he's a carrier, then the couple can adopt.

I would avoid having a CF child at all costs, of course. Why would you knowingly inflict this disease on someone.
 

NoExcuses

New member
Get the guy tested. It's a simple blood test.

If he's a carrier, then the couple can adopt.

I would avoid having a CF child at all costs, of course. Why would you knowingly inflict this disease on someone.
 

NoExcuses

New member
Get the guy tested. It's a simple blood test.

If he's a carrier, then the couple can adopt.

I would avoid having a CF child at all costs, of course. Why would you knowingly inflict this disease on someone.
 

NoExcuses

New member
Get the guy tested. It's a simple blood test.

If he's a carrier, then the couple can adopt.

I would avoid having a CF child at all costs, of course. Why would you knowingly inflict this disease on someone.
 

JORDYSMOM

New member
My oldest son is a carrier and is planning to be married. They plan to have her tested just to be prepared. They will still have children no matter what, but it doesn't hurt to know things. Even if they are both carriers they may not have a CF child. Only one out of my three boys has CF.

Who is this doctor to decide what tests your future son-in-law should have?! I just don't see what difference it makes if she is pregnant or not. People should be able to have themselves tested for whatever they want. The doc is not paying for the test.
 

JORDYSMOM

New member
My oldest son is a carrier and is planning to be married. They plan to have her tested just to be prepared. They will still have children no matter what, but it doesn't hurt to know things. Even if they are both carriers they may not have a CF child. Only one out of my three boys has CF.

Who is this doctor to decide what tests your future son-in-law should have?! I just don't see what difference it makes if she is pregnant or not. People should be able to have themselves tested for whatever they want. The doc is not paying for the test.
 

JORDYSMOM

New member
My oldest son is a carrier and is planning to be married. They plan to have her tested just to be prepared. They will still have children no matter what, but it doesn't hurt to know things. Even if they are both carriers they may not have a CF child. Only one out of my three boys has CF.

Who is this doctor to decide what tests your future son-in-law should have?! I just don't see what difference it makes if she is pregnant or not. People should be able to have themselves tested for whatever they want. The doc is not paying for the test.
 

JORDYSMOM

New member
My oldest son is a carrier and is planning to be married. They plan to have her tested just to be prepared. They will still have children no matter what, but it doesn't hurt to know things. Even if they are both carriers they may not have a CF child. Only one out of my three boys has CF.

Who is this doctor to decide what tests your future son-in-law should have?! I just don't see what difference it makes if she is pregnant or not. People should be able to have themselves tested for whatever they want. The doc is not paying for the test.
 

JORDYSMOM

New member
My oldest son is a carrier and is planning to be married. They plan to have her tested just to be prepared. They will still have children no matter what, but it doesn't hurt to know things. Even if they are both carriers they may not have a CF child. Only one out of my three boys has CF.

Who is this doctor to decide what tests your future son-in-law should have?! I just don't see what difference it makes if she is pregnant or not. People should be able to have themselves tested for whatever they want. The doc is not paying for the test.
 

JORDYSMOM

New member
My oldest son is a carrier and is planning to be married. They plan to have her tested just to be prepared. They will still have children no matter what, but it doesn't hurt to know things. Even if they are both carriers they may not have a CF child. Only one out of my three boys has CF.

Who is this doctor to decide what tests your future son-in-law should have?! I just don't see what difference it makes if she is pregnant or not. People should be able to have themselves tested for whatever they want. The doc is not paying for the test.
 

Ratatosk

Administrator
Staff member
I question the doctor making that decision also. Recently I was making inquiries on carrier testing for DH's cousin, who is planning to have more children. I got a response from a grandparent of a CFer who indicated that prior to a family reunion, about 40 of them uncles, aunts, grandparents, cousins went to the local clinic and all had testing done, so they could inform other family members of the possibility. I'd be looking for a different doctor.
 

Ratatosk

Administrator
Staff member
I question the doctor making that decision also. Recently I was making inquiries on carrier testing for DH's cousin, who is planning to have more children. I got a response from a grandparent of a CFer who indicated that prior to a family reunion, about 40 of them uncles, aunts, grandparents, cousins went to the local clinic and all had testing done, so they could inform other family members of the possibility. I'd be looking for a different doctor.
 
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