Our doctor just told us to put my daughter on pulmozyme. She's 16months with no lung problems, they told us to start with pulmozyme as more of a preventative measure. Our problem is that she will not sit with a mask on her little face. I feel like were torturing her. We've tried letting her dolly wear one mask and her the other, but as soon as the machine starts, she gets so worked up and out of control! Anyone got any tricks to try?Thanks
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Need help giving pulmozyme!
- Thread starter anonymous
- Start date
Perhaps you can sit and hold her hand or massage her back or arms and shoulders. I would relax her first and tell her it is just water in vapor. Perhaps Mommy can breathe it in for a few minutes and say not bad and smile get her to laugh.Tell her it is good for her and that she will feel better. I would also pay attention if she really feels better. I do believe from personal experience that Pulmozyme is good on some occassions but not on a continual basis. I would get a second opinion
my son was the same way when we started doing it.. i give him his pulmozyme neb when he is taking his nap.. i just put the mask on his face when he is sleeping. that way he get the whole treatment and were not wasting it... and i dont have to worry about fighting with him...
Our daughter does not take pulmozyne but we have had a few issues regarding cf that have been tricky. We were told to do some role playing. Get a special doll that has CF and let her play with a medical kit that contains everything you may use for CF.Let your child be in control and keep note of what they do to their doll, because this shows what they are afraid of and what needs to be dealt with. As an example, my daughter had just gone for blood tests and when we did the role playing she went right for the needle. It gave us a chance to talk about it and talk it through. It also gives them a little control. It worked for us so it is worth a try. I know she is young but she still understands that she doesn't like what is going on and you can still talk her through it.Heather
Baby Einstein is the best!! My (now 4 year old) daughter would not sit still for anything but these videos. We first started her on these when she was 4 months old when she had to sit still for her breathing treatments and her TOBI. They work wonders <img src="i/expressions/face-icon-small-smile.gif" border="0"> She enjoyed them for the next couple of years!
Don't you have a "blow by" attachment that came with your nebulizer? That is how I had to give my son his aerosol treatments for the first several months (he also takes Pulmozyme). He started at 3 years old. I would either do it while he was asleep or sitting still (watching TV). 1: Plug in the "T adapter" to the top of the nebulizer2: Attach the tubing to one end of the T adapter3: Hold your hand (clean of course) over the open end of the T adapter until the treatment is over.4: Hold tubing very close to your childs mouth/nose.You should be able to see the mist go up her nose when she inhales.After about 4 months of this, he started agreeing to use the mask (so he could play during treatment and not have to sit still). He hates the band that goes around his head, so I just removed the band from the mask and he holds the mask over his nose/mouth.Good luck!Darla
My son started taking pulmozyme for the same reasons at the age of three. The treatment itself does not take long, so I would sit him on my lap and hold the mask for him while we watched one of his favorite videos. I think I did that for a few months and eventually he became comfortable to do the treatment himself. I wanted to reassure him and let him know that it was okay. Afterall, the treatment can be a little overwhelming - it is loud and steam comes out of your mouth - I know it was a little unsettling for me and was proabaly terribly frightening for him at the time. I felt that sitting with him for a few minutes everyday for awhile was a good investment towards making him feel comfortable about something that he will have to do the rest of his life. My only other advice would be to make it as fun and comfortable as possible. Figure out what your child likes best and try to work that into the time it takes for the treatment. Good luck.Katrina, mother to Sean (6 w/cf), Carolyn (4 1/2 w/o cf) and Allison 2 1/2 w/o cf)