Hey guys, I could have sworn I read in some CF information, that CFers need to be emotionally stable and they need consistency, a stable life style and strick routine. HOwever, now I can't find where I read this particular info. Can anyone help??? thanks the sooner would be better. My daughter lives with CF, and I need the information to provide to her team of workers.
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need info on emotions please!
- Thread starter anonymous
- Start date
L
luke
Guest
all children should have stable homes and routines, not just sick ones. Sure poor mental health has a direct effect on physical health but it does on everyone, your CF team should already know that. I am interested in why you need to prove that to anyone?
As for routines, the earlier we become regimented the better, hopefully the routines set up as children will carry through the late adolescent/early adult years where we sometimes stray from our care.
Luke
As for routines, the earlier we become regimented the better, hopefully the routines set up as children will carry through the late adolescent/early adult years where we sometimes stray from our care.
Luke
L
luke
Guest
Anonymous,
"jeez, chill out"???? Please save your comments for the teenage forum, grown ups talk here. My response is directly related to my feeling that this "info" is going to be used by a digruntled parent to remove the other parent from the picture. If I am wrong I will admit it. But I have had front row tickets to mothers trying to remove fathers for spite from their childrens lives and I don't think it is right!
Luke
"jeez, chill out"???? Please save your comments for the teenage forum, grown ups talk here. My response is directly related to my feeling that this "info" is going to be used by a digruntled parent to remove the other parent from the picture. If I am wrong I will admit it. But I have had front row tickets to mothers trying to remove fathers for spite from their childrens lives and I don't think it is right!
Luke
cfgirl2008
New member
Luke I respect you and all but what you said to Anonymous of what they said geez chill out and then you said save that for the teenage forums. Well I have to say most of the teenagers don't do that on the forum. So just tell that person to take it somewhere else and besides people are right to say their opinion wheter you like it or not.
Tiffany 15 w/cf
Tiffany 15 w/cf
Its understandable why people would ??? the original post. If the child is being cared for by a CF team then the info should not be needed, but quite often not everyone goes just to a CF center. They often go to a primary first or have home health aides etc that are not CF literate. Maybe the poster should have explained why this info was needed better, but to jump to conclusions as such instead of just questioning it is wrong. Why cant we just address issues or ??? nicely......
<blockquote>Quote<br><hr><i>Originally posted by: <b>luke</b></i><br>I have had front row tickets to mothers trying to remove fathers for spite from their childrens lives and I don't think it is right!<hr></blockquote>
Or this person could have a legitimate reason to remove the second parent. There are a LOT of reasons to want this kind of information. I really think you've jumped the gun by assuming that this poster is being devious in his/her request.
Or this person could have a legitimate reason to remove the second parent. There are a LOT of reasons to want this kind of information. I really think you've jumped the gun by assuming that this poster is being devious in his/her request.
Sometimes I have a hard time getting out what I'm trying to say... so if this would have been me posting a message and I got the response that was given to her/him, I would never want to come back and that's not what this board should be about. We should be biased and supportive, not judgemental.
Maybe i'm wrong, and If I am , let me know...
Amy
Mom to Kate 4 no c/f
Kamryn 11 mos C/F ???
Maybe i'm wrong, and If I am , let me know...
Amy
Mom to Kate 4 no c/f
Kamryn 11 mos C/F ???
WOW!!!!! I asked a simple question and instead I started a fight between everyone. SORRY!! I probably should have been more specific in my request, however, I don't have much time to type while taking care of the children. NOw I do. Saturday is relax day and sit in PJ's all day. So here it goes. To Luke, have you had or known someone who has had a bad break with having the father taking out of their lifes by an upset mother? Cause it sounds like you're holding a grudge? Just asking. The reason why I wanted this information is cause my daughter has needed round the clock care at home with new workers. Two are in high school and one is in University. My daughter was diagnosed at birth and I remember the CF team at the hospital at the time, gave me little comments here and there, and one was CF babies need consistency and strick routine in order to stay healthy. And yes, I realize all kids do but I am trying to give as much info to these three people so I can feel secure leaving them with my daughter. However, if this is to pose problems with the rest of you, I certainly can just go on any CF.org or whatever, it was just that I don't have the time, and thought that all of you being so informative and active in CF, it would just be faster for me to ask you, kind of getting someone who would pretty much know where to find it at a touch of a button. However, I realize that one or two of you are uptight and or have a chip on your shoulder about this, so thanks anyway. It's not like you scared me off this forum, but next time, I should just pass it by one of you's first to see if it is wherthy of "your" forum! NOt meant to sound sarcastic, just asking.
Initial poster,
We've all had times where we've posted on this board and our questions/comments have created quite a stirr-and often times unintentionally!
Quite honestly, when I read this a few days ago I was like, "what the heck is this person asking" but I decided not to respond until you came back to clairify because I wasn't sure what exactly you were looking for. Now that you've elaborated on what you meant (and I understand you didn't initially have time) it makes more sense.
Unfortunately I can't answer the question for you because I haven't specifically heard of what you are asking for. Although now that the question has been clairified, someone else-especially with a child-might be able to point you in the right direction.
Also, I can't speak for Luke and I am sure he will come back and speak for himself, but I know he has often times posted on this board about parental issues growing up, so yes, I believe you are quite accurate that he does have an issue and the way the question was worded initially-I can see where he was coming from.
I wish you luck in finding what you need!!
We've all had times where we've posted on this board and our questions/comments have created quite a stirr-and often times unintentionally!
Quite honestly, when I read this a few days ago I was like, "what the heck is this person asking" but I decided not to respond until you came back to clairify because I wasn't sure what exactly you were looking for. Now that you've elaborated on what you meant (and I understand you didn't initially have time) it makes more sense.
Unfortunately I can't answer the question for you because I haven't specifically heard of what you are asking for. Although now that the question has been clairified, someone else-especially with a child-might be able to point you in the right direction.
Also, I can't speak for Luke and I am sure he will come back and speak for himself, but I know he has often times posted on this board about parental issues growing up, so yes, I believe you are quite accurate that he does have an issue and the way the question was worded initially-I can see where he was coming from.
I wish you luck in finding what you need!!
I have been on this site for the past 5 months now...and i have to say that certain people do jump down peoples throats and i do not like it.....We are all trying to deal with this terrible terrible illness as parents..When our children are born you never expect this to happen and it is just heart breaking and god damn frightening.......My main fear is that i will out live my daughter and not a day goes by that i dont think about it or have a good cry...
We are all here to support each other regardless of peoples views....I remember posting something about IVF treatment and it caused a massive stir re abortion etc......It was something that i didnt even want to get into and i didnt even mean to upset anyone....I just wanted to speak to someone who would have considered it or had gone through it...not people who condemned it...
Anyway........I am going to give this site a miss for a while as i am always concerned if i (not intentionally) upset someone.....
To all the others who are just great ...Thanks and big kisses and hugs to all your little ones x x x x x x x x x x x x x x x x x
Paula mum to Joe aged 2 yrs 7 mths w/o CF and Ruby aged 5 mths ( with a cold at the mo!! Argghhhhh!!) w/CF...
We are all here to support each other regardless of peoples views....I remember posting something about IVF treatment and it caused a massive stir re abortion etc......It was something that i didnt even want to get into and i didnt even mean to upset anyone....I just wanted to speak to someone who would have considered it or had gone through it...not people who condemned it...
Anyway........I am going to give this site a miss for a while as i am always concerned if i (not intentionally) upset someone.....
To all the others who are just great ...Thanks and big kisses and hugs to all your little ones x x x x x x x x x x x x x x x x x
Paula mum to Joe aged 2 yrs 7 mths w/o CF and Ruby aged 5 mths ( with a cold at the mo!! Argghhhhh!!) w/CF...
My son is five and was diagnosed at 18 months. Consistency does play a role in treating CF, especially when it comes to breathing treatments. It helps the parent and child to have a set routine, this has been hard for me because I'm not time-oriented at all. As far as emotions go, your clinic should be helping much more than what they currently are. My son sees the psych every visit and they make sure to talk to him and me to see how we are doing. They also are available whenever we are having a "hard" time. I certainly can't remember where I read the importance of it all, but I have read it also! Your daughters caregivers do need to understand how important routine is and should communicate with you if they feel she is going through a rough emotional patch... but they don't need to be "counselors". It is very important that you keep your emotions in check also, I've had many breakdowns and lots of depression. I hope this helps and your daughter does good.