needing less enzymes?

Nicole

New member
It seems as thought Danny is needing less enzymes that before. He is eating the same kinds of food and the same amounts so not sure what the deal is. At one point he was taking 4 1/2 to 5 creaon 5's with a meal and 2-3 with snacks. Ever since birth he has been on the high end of enzyme dosage. He seemed like he was having some constipation so I decided to back off a bit and see if that helped. It helped some so I backed off a little more and now he is pretty regular. Once a day usually, fair amount, no oil, still pretty stinky though. He is still gaining weight great. He's about 35.5 lbs. Any one else have this happen?
 

Nicole

New member
It seems as thought Danny is needing less enzymes that before. He is eating the same kinds of food and the same amounts so not sure what the deal is. At one point he was taking 4 1/2 to 5 creaon 5's with a meal and 2-3 with snacks. Ever since birth he has been on the high end of enzyme dosage. He seemed like he was having some constipation so I decided to back off a bit and see if that helped. It helped some so I backed off a little more and now he is pretty regular. Once a day usually, fair amount, no oil, still pretty stinky though. He is still gaining weight great. He's about 35.5 lbs. Any one else have this happen?
 

Nicole

New member
It seems as thought Danny is needing less enzymes that before. He is eating the same kinds of food and the same amounts so not sure what the deal is. At one point he was taking 4 1/2 to 5 creaon 5's with a meal and 2-3 with snacks. Ever since birth he has been on the high end of enzyme dosage. He seemed like he was having some constipation so I decided to back off a bit and see if that helped. It helped some so I backed off a little more and now he is pretty regular. Once a day usually, fair amount, no oil, still pretty stinky though. He is still gaining weight great. He's about 35.5 lbs. Any one else have this happen?
 

JazzysMom

New member
I had this happen, but not until recently. Even tho there is a fair amount of stool with no oil, does it float? If the poop is floating that means there still is too much fat in the stool even if it doesnt seem greasy. Constipation can also be from slight dehydration & not just too many enzymes. We are so prone to dehydration that I think many of us have it in slight degrees without knowing it. If his stool doesnt float & his weight is good then I wouldnt worry about having to lower it. I will add tho that during my teens/twenties my weight remained well & I didnt have "oily" stools, but they did float. At that time I didnt use enzymes & it wasnt until my stool was tested that they realized how much fat I wasnt absorbing. As I was told (whenn I ?? why start using enzymes if my weights is good) is that if I can maintain my weight with losing that much fat in the stool, can you imagine what would happen if I DID absorb that extra. Just food for thought!
 

JazzysMom

New member
I had this happen, but not until recently. Even tho there is a fair amount of stool with no oil, does it float? If the poop is floating that means there still is too much fat in the stool even if it doesnt seem greasy. Constipation can also be from slight dehydration & not just too many enzymes. We are so prone to dehydration that I think many of us have it in slight degrees without knowing it. If his stool doesnt float & his weight is good then I wouldnt worry about having to lower it. I will add tho that during my teens/twenties my weight remained well & I didnt have "oily" stools, but they did float. At that time I didnt use enzymes & it wasnt until my stool was tested that they realized how much fat I wasnt absorbing. As I was told (whenn I ?? why start using enzymes if my weights is good) is that if I can maintain my weight with losing that much fat in the stool, can you imagine what would happen if I DID absorb that extra. Just food for thought!
 

JazzysMom

New member
I had this happen, but not until recently. Even tho there is a fair amount of stool with no oil, does it float? If the poop is floating that means there still is too much fat in the stool even if it doesnt seem greasy. Constipation can also be from slight dehydration & not just too many enzymes. We are so prone to dehydration that I think many of us have it in slight degrees without knowing it. If his stool doesnt float & his weight is good then I wouldnt worry about having to lower it. I will add tho that during my teens/twenties my weight remained well & I didnt have "oily" stools, but they did float. At that time I didnt use enzymes & it wasnt until my stool was tested that they realized how much fat I wasnt absorbing. As I was told (whenn I ?? why start using enzymes if my weights is good) is that if I can maintain my weight with losing that much fat in the stool, can you imagine what would happen if I DID absorb that extra. Just food for thought!
 

folione

New member
Just this week at my son's CF clinic appointment, while we were discussing enzyme and antacid dosages, his doctor said that as he gets older his enzyme needs might plateau or decrease. He's 3 and uses 3 creon-10 for a meal the size of a happy-meal.
 

folione

New member
Just this week at my son's CF clinic appointment, while we were discussing enzyme and antacid dosages, his doctor said that as he gets older his enzyme needs might plateau or decrease. He's 3 and uses 3 creon-10 for a meal the size of a happy-meal.
 

folione

New member
Just this week at my son's CF clinic appointment, while we were discussing enzyme and antacid dosages, his doctor said that as he gets older his enzyme needs might plateau or decrease. He's 3 and uses 3 creon-10 for a meal the size of a happy-meal.
 

Ratatosk

Administrator
Staff member
DS had more constipation issues when he was about 1 1/2 years old when we switched from formula to whole milk. Early on (4 months old) with loose stools while still being constipated, or at least having a LOT of stool in his colon, so we needed to use milk of mag a couple of times. The issues with determining the amount of enzymes based on poop has always driven me batty -- especially when DS was a lot younger and not consistent in his eating. Sounds like he's doing well, and from what I understand, those who are on enzymes, still have some pancreatic function, so maybe as he's gotten older, his pancrease is working more efficiently.

And when we've had true constipation issues -- usually DS's tummy is a bit hard, he decreases eating, sometimes he'll tell us his tummy hurts and his stools are more like hard little bunny ones -- sorry tmi. Then we usually give him some milk of mag to clean him out. Most likely it that case it's again caused by meconium equivilant or stool backed up in the colon.

When we've changed enzymes, we've usually done it gradually over a period of time. Upped or lowered the amount for meals by half a capsule. He's been on 4 to 4 1/2 pancrease mt4s for meals for a long time. And snacks, usually 2 capsules unless he starts chowing down on something big or fattier.
 

Ratatosk

Administrator
Staff member
DS had more constipation issues when he was about 1 1/2 years old when we switched from formula to whole milk. Early on (4 months old) with loose stools while still being constipated, or at least having a LOT of stool in his colon, so we needed to use milk of mag a couple of times. The issues with determining the amount of enzymes based on poop has always driven me batty -- especially when DS was a lot younger and not consistent in his eating. Sounds like he's doing well, and from what I understand, those who are on enzymes, still have some pancreatic function, so maybe as he's gotten older, his pancrease is working more efficiently.

And when we've had true constipation issues -- usually DS's tummy is a bit hard, he decreases eating, sometimes he'll tell us his tummy hurts and his stools are more like hard little bunny ones -- sorry tmi. Then we usually give him some milk of mag to clean him out. Most likely it that case it's again caused by meconium equivilant or stool backed up in the colon.

When we've changed enzymes, we've usually done it gradually over a period of time. Upped or lowered the amount for meals by half a capsule. He's been on 4 to 4 1/2 pancrease mt4s for meals for a long time. And snacks, usually 2 capsules unless he starts chowing down on something big or fattier.
 

Ratatosk

Administrator
Staff member
DS had more constipation issues when he was about 1 1/2 years old when we switched from formula to whole milk. Early on (4 months old) with loose stools while still being constipated, or at least having a LOT of stool in his colon, so we needed to use milk of mag a couple of times. The issues with determining the amount of enzymes based on poop has always driven me batty -- especially when DS was a lot younger and not consistent in his eating. Sounds like he's doing well, and from what I understand, those who are on enzymes, still have some pancreatic function, so maybe as he's gotten older, his pancrease is working more efficiently.

And when we've had true constipation issues -- usually DS's tummy is a bit hard, he decreases eating, sometimes he'll tell us his tummy hurts and his stools are more like hard little bunny ones -- sorry tmi. Then we usually give him some milk of mag to clean him out. Most likely it that case it's again caused by meconium equivilant or stool backed up in the colon.

When we've changed enzymes, we've usually done it gradually over a period of time. Upped or lowered the amount for meals by half a capsule. He's been on 4 to 4 1/2 pancrease mt4s for meals for a long time. And snacks, usually 2 capsules unless he starts chowing down on something big or fattier.
 

Nicole

New member
Thanks, guys! As far as his stools sinking or floating, I don't know. He wears diapers and I have never taken the time to plop one in the toilet to see. Maybe I should. His tummy always feels soft even when he hasn't gone in a little while, although it is, and has always been, a bit distended. We go back to clinic on Nov 10 so I will ask his doc what her thoughts are. Don't get me wrong, I'm not too worried about it. I would have expected him to need more, not less, especially considering his history.
 

Nicole

New member
Thanks, guys! As far as his stools sinking or floating, I don't know. He wears diapers and I have never taken the time to plop one in the toilet to see. Maybe I should. His tummy always feels soft even when he hasn't gone in a little while, although it is, and has always been, a bit distended. We go back to clinic on Nov 10 so I will ask his doc what her thoughts are. Don't get me wrong, I'm not too worried about it. I would have expected him to need more, not less, especially considering his history.
 

Nicole

New member
Thanks, guys! As far as his stools sinking or floating, I don't know. He wears diapers and I have never taken the time to plop one in the toilet to see. Maybe I should. His tummy always feels soft even when he hasn't gone in a little while, although it is, and has always been, a bit distended. We go back to clinic on Nov 10 so I will ask his doc what her thoughts are. Don't get me wrong, I'm not too worried about it. I would have expected him to need more, not less, especially considering his history.
 
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