New Member

A

alan

New member
Hello everyone. My Name is Alan Himmel. I have a son with CF. He is now almost 7 years old. I have been an member of another group called "Sharktank". The url is www.sharktank.org

In this group we discuss the science of CF. In fact, we are a research group. I have been very involved in this since the birth of my son. Luckily, we have had a great leader of our group. Her name is Melanie Childers. Melanie was the first to postulate the idea of supplementing with exogenous glutathione, nebulized into the lungs. This was about seven years ago, when it was discovered that the CF lungs were in fact deficient in the antioxidant, glutathione, due to the lack of transport of the compound by the faulty CFTR protein.

Anyway, since the discovery that Glutathione plays a role in the health of CF patients, other research and ideas have followed. You can read the research if you go to the sharktank website.

I will be posting an announcment directly following this email, for those who are interested in volunteering for a clinicl trial in south Florida.

I am happy I found this group, and I think I can learn a lot here.

Alan
 
A

alan

New member
Hello everyone. My Name is Alan Himmel. I have a son with CF. He is now almost 7 years old. I have been an member of another group called "Sharktank". The url is www.sharktank.org

In this group we discuss the science of CF. In fact, we are a research group. I have been very involved in this since the birth of my son. Luckily, we have had a great leader of our group. Her name is Melanie Childers. Melanie was the first to postulate the idea of supplementing with exogenous glutathione, nebulized into the lungs. This was about seven years ago, when it was discovered that the CF lungs were in fact deficient in the antioxidant, glutathione, due to the lack of transport of the compound by the faulty CFTR protein.

Anyway, since the discovery that Glutathione plays a role in the health of CF patients, other research and ideas have followed. You can read the research if you go to the sharktank website.

I will be posting an announcment directly following this email, for those who are interested in volunteering for a clinicl trial in south Florida.

I am happy I found this group, and I think I can learn a lot here.

Alan
 
A

alan

New member
Hello everyone. My Name is Alan Himmel. I have a son with CF. He is now almost 7 years old. I have been an member of another group called "Sharktank". The url is www.sharktank.org

In this group we discuss the science of CF. In fact, we are a research group. I have been very involved in this since the birth of my son. Luckily, we have had a great leader of our group. Her name is Melanie Childers. Melanie was the first to postulate the idea of supplementing with exogenous glutathione, nebulized into the lungs. This was about seven years ago, when it was discovered that the CF lungs were in fact deficient in the antioxidant, glutathione, due to the lack of transport of the compound by the faulty CFTR protein.

Anyway, since the discovery that Glutathione plays a role in the health of CF patients, other research and ideas have followed. You can read the research if you go to the sharktank website.

I will be posting an announcment directly following this email, for those who are interested in volunteering for a clinicl trial in south Florida.

I am happy I found this group, and I think I can learn a lot here.

Alan
 
A

anonymous

New member
Hi Alan,

Welcome to the site. I too have heard of shark tank, and have browsed the site a few times.
Although i am not a member, i do have a friend that is and has also supported the site/research, financially.

It realy sounds like an interesting trial, and i do hope many cf'ers participate. Good luck and keep us posted.
 
A

anonymous

New member
Hi Alan,

Welcome to the site. I too have heard of shark tank, and have browsed the site a few times.
Although i am not a member, i do have a friend that is and has also supported the site/research, financially.

It realy sounds like an interesting trial, and i do hope many cf'ers participate. Good luck and keep us posted.
 
A

anonymous

New member
Hi Alan,

Welcome to the site. I too have heard of shark tank, and have browsed the site a few times.
Although i am not a member, i do have a friend that is and has also supported the site/research, financially.

It realy sounds like an interesting trial, and i do hope many cf'ers participate. Good luck and keep us posted.
 
C

CFHockeyMom

New member
Welcome, Alan. Glad you found us.

I checked out sharktank.org, WOW! What a great idea. I'm very interested and will be checking in often.

If you don't mind, could you please post either here or in the families section what treatments your son is on. I'm curious which of the treatments Shartank has come up with or is researching that you're using for your son. There are a lot of parents here using "alternative" treatments for their kids and might appreciate knowing what the members of Sharktank are doing. Thanks.
 
C

CFHockeyMom

New member
Welcome, Alan. Glad you found us.

I checked out sharktank.org, WOW! What a great idea. I'm very interested and will be checking in often.

If you don't mind, could you please post either here or in the families section what treatments your son is on. I'm curious which of the treatments Shartank has come up with or is researching that you're using for your son. There are a lot of parents here using "alternative" treatments for their kids and might appreciate knowing what the members of Sharktank are doing. Thanks.
 
C

CFHockeyMom

New member
Welcome, Alan. Glad you found us.

I checked out sharktank.org, WOW! What a great idea. I'm very interested and will be checking in often.

If you don't mind, could you please post either here or in the families section what treatments your son is on. I'm curious which of the treatments Shartank has come up with or is researching that you're using for your son. There are a lot of parents here using "alternative" treatments for their kids and might appreciate knowing what the members of Sharktank are doing. Thanks.
 
K

kayleesgrandma

New member
Welcome Alan, it looks like you will be an interesting new addition to our family! I especially look forward to what you have to say, as my grandaughter may benefit. Thanks for joining our little community.
 
K

kayleesgrandma

New member
Welcome Alan, it looks like you will be an interesting new addition to our family! I especially look forward to what you have to say, as my grandaughter may benefit. Thanks for joining our little community.
 
K

kayleesgrandma

New member
Welcome Alan, it looks like you will be an interesting new addition to our family! I especially look forward to what you have to say, as my grandaughter may benefit. Thanks for joining our little community.
 
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