Kenziesmom
New member
I am new and have never talked to anyone with a child with CF. My daughter is 13 and has cf. She is pretty healthy. Hospitalized once for CF when she was 1 1/2 years old (diagnosis), when she was 8 for an appendectomy. she has done home IV antibiotics about 5 times. She does have resistant Pseudomonas aeruginosa but we had the synergy tests done and did find antibiotic cocktails that work. We did get her a port because she had a hard time getting picc lines.
I guess my questions are: does anyone here have someone around the same age.
Do any of you get anxiety for no reason at all even when every body is happy and healthy?
lately I have been having a hard time and I feel alone.....
My daughter acts as though she doesn't have cf (which I don't know if that is a good or bad thing) she does her treatments, takes her meds, but doesn't like to talk about it, doesn't tell any of her friends that she has cf. When I ask her if she is embarrassed she says it's just nobody's business. She doesn't go on any websites or read any books to learn about cf. Everything she knows is from what we tell her or her doctor.
Is any of this familiar to anyone? I worry about her....
I guess my questions are: does anyone here have someone around the same age.
Do any of you get anxiety for no reason at all even when every body is happy and healthy?
lately I have been having a hard time and I feel alone.....
My daughter acts as though she doesn't have cf (which I don't know if that is a good or bad thing) she does her treatments, takes her meds, but doesn't like to talk about it, doesn't tell any of her friends that she has cf. When I ask her if she is embarrassed she says it's just nobody's business. She doesn't go on any websites or read any books to learn about cf. Everything she knows is from what we tell her or her doctor.
Is any of this familiar to anyone? I worry about her....