new treatment

anonymous

New member
I was wondering if anyone has starting to inhale salt water? I am starting it as soon as it comes in (Im the first one at my clinic) & I was just wondering what people who tried it think? Thanks for any response!!!




Amy.21.cf.cfrd
 

anonymous

New member
I was wondering if anyone has starting to inhale salt water? I am starting it as soon as it comes in (Im the first one at my clinic) & I was just wondering what people who tried it think? Thanks for any response!!!




Amy.21.cf.cfrd
 

Faust

New member
I plan on it, but I plan on figuring out a way to formulate my own and not pay some pharmacy 40+ bucks a month to send me sterile salt water. That just really pisses me off. If it was 10 or even maybe 20 bucks i'd pay it just for conveinence. But 40 bucks? Go F off you greedy bastiges!
 

Faust

New member
I plan on it, but I plan on figuring out a way to formulate my own and not pay some pharmacy 40+ bucks a month to send me sterile salt water. That just really pisses me off. If it was 10 or even maybe 20 bucks i'd pay it just for conveinence. But 40 bucks? Go F off you greedy bastiges!
 

ej0820

New member
I just posted something about this not too long ago wondering how it is and if anyone has used it before. Let us know how it goes!!


erin
20/f/cf
<img src="i/expressions/rose.gif" border="0">
 

ej0820

New member
I just posted something about this not too long ago wondering how it is and if anyone has used it before. Let us know how it goes!!


erin
20/f/cf
<img src="i/expressions/rose.gif" border="0">
 

Rokiss12

New member
i've done it before, when they wanted stuff to culture instead of swabbing the back of my throat... it tasted horrrrrible! haha, my dr's might recommend it for home use later though :p

Kate
 

Rokiss12

New member
i've done it before, when they wanted stuff to culture instead of swabbing the back of my throat... it tasted horrrrrible! haha, my dr's might recommend it for home use later though :p

Kate
 

Jane

Digital opinion leader
Hi,
My son is on home IV, but when he was inpatient, they started saline nebs twice a day. They were VERY irritating and he coughed a ton (similar to having an induced sputum test). The doc told us it gets easier the longer they do it. They didn't give us any info about it for home use, but I will ask at our follow-up.
Jane

(mom of 2 boys w/cf 10 & 14)
 

Jane

Digital opinion leader
Hi,
My son is on home IV, but when he was inpatient, they started saline nebs twice a day. They were VERY irritating and he coughed a ton (similar to having an induced sputum test). The doc told us it gets easier the longer they do it. They didn't give us any info about it for home use, but I will ask at our follow-up.
Jane

(mom of 2 boys w/cf 10 & 14)
 

anonymous

New member
seandavis - the pharmacy here wants to charge me $120 for the hypertonic! I am getting in touch with the Cf pharmacy - the only pharmacy that will do it here won't bill my insurance and I don't want to have to hassel with that every month - so for now, no salt water - but I am excited to try it.

**Any chemist here who knows what the ratio of sea salt to water would be to make 7% saline? I could boil that at home!
 

anonymous

New member
seandavis - the pharmacy here wants to charge me $120 for the hypertonic! I am getting in touch with the Cf pharmacy - the only pharmacy that will do it here won't bill my insurance and I don't want to have to hassel with that every month - so for now, no salt water - but I am excited to try it.

**Any chemist here who knows what the ratio of sea salt to water would be to make 7% saline? I could boil that at home!
 

anonymous

New member
Be careful about mixing your own....need to keep it sterile.
I get a box of 50 vials, 15 mls each vial, sterile 10% hypertonic saline solution, from a Respiratory pharmaceutical company for about $10. I can't believe someone above said it was going to cost over a $100...or whatever. I started it on my own about 8 or 9 years ago, before there were any studies out, against my doctors wishes. Now he says good thing I did...
I just dilute it w/ sterile saline (bronchosaline, or the pink saline vials)
 

anonymous

New member
Be careful about mixing your own....need to keep it sterile.
I get a box of 50 vials, 15 mls each vial, sterile 10% hypertonic saline solution, from a Respiratory pharmaceutical company for about $10. I can't believe someone above said it was going to cost over a $100...or whatever. I started it on my own about 8 or 9 years ago, before there were any studies out, against my doctors wishes. Now he says good thing I did...
I just dilute it w/ sterile saline (bronchosaline, or the pink saline vials)
 
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