Topazbutterfly
New member
Hello, my name is Jen and I am a Mom of six kids, ages 14 to 5 weeks. I found out on Thursday that my youngest son, Zach, tested positive in his newborn screening for CF ... neither Dad or I knew we were carriers. He has his sweat test on Tuesday morning at Buffalo Children's Hospital.
I have tried researching the disease online and haven't found any truly helpful websites or information. Other than being told to make a list of questions by my Pediatrician when she called to tell me that he had it, I haven't gotten any information at all from the doctor. <img src="i/expressions/face-icon-small-confused.gif" border="0">
How do I know what to look for as a danger sign? I feel so lost trying to figure this all out, and would appreciate any help or insight from you all.
Thanks so much!!<img src="i/expressions/heart.gif" border="0">
I have tried researching the disease online and haven't found any truly helpful websites or information. Other than being told to make a list of questions by my Pediatrician when she called to tell me that he had it, I haven't gotten any information at all from the doctor. <img src="i/expressions/face-icon-small-confused.gif" border="0">
How do I know what to look for as a danger sign? I feel so lost trying to figure this all out, and would appreciate any help or insight from you all.
Thanks so much!!<img src="i/expressions/heart.gif" border="0">