When a new parent comes on here asking about our opinions on whether their child has CF or not, I always cringe a little. The reason I cringe is that I remember vividly the overwhelming emotion that happened when I was told of my son's 1st diagnosis - Cerebral Palsy. He ended up having both CF and CP, but the CP diagnosis came 1st and I took it the hardest.When the doctor said the words, my world crashed, the earth ceased revolving, all time stopped. I couldn't hear anything else the doctor was saying because my ears wouldn't work - the doctor was talking and I remember seeing his mouth move, but I wasn't registering a word he said. Waves of nausea kept coming over me, but I never actually threw up. So in short, I was absolutely devastated and could barely walk out of the room let alone drive home and spent the better part of the next three months crying non-stop.Now flash forward to this website where we freely tell people that yeah, your kid probably has CF. When I see that I imagine that OP reading it and crumbling into a ball on the floor with tears streaming down their face. Does anyone else feel that maybe we're a little too quick to make the "diagnosis" or is it just me?And I'm not responding to any post in particular, it's just a feeling that I've had for a while and thought to post it tonight.
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Newly Diagnosed Section
- Thread starter Buckeye
- Start date
When a new parent comes on here asking about our opinions on whether their child has CF or not, I always cringe a little. The reason I cringe is that I remember vividly the overwhelming emotion that happened when I was told of my son's 1st diagnosis - Cerebral Palsy. He ended up having both CF and CP, but the CP diagnosis came 1st and I took it the hardest.When the doctor said the words, my world crashed, the earth ceased revolving, all time stopped. I couldn't hear anything else the doctor was saying because my ears wouldn't work - the doctor was talking and I remember seeing his mouth move, but I wasn't registering a word he said. Waves of nausea kept coming over me, but I never actually threw up. So in short, I was absolutely devastated and could barely walk out of the room let alone drive home and spent the better part of the next three months crying non-stop.Now flash forward to this website where we freely tell people that yeah, your kid probably has CF. When I see that I imagine that OP reading it and crumbling into a ball on the floor with tears streaming down their face. Does anyone else feel that maybe we're a little too quick to make the "diagnosis" or is it just me?And I'm not responding to any post in particular, it's just a feeling that I've had for a while and thought to post it tonight.
When a new parent comes on here asking about our opinions on whether their child has CF or not, I always cringe a little. The reason I cringe is that I remember vividly the overwhelming emotion that happened when I was told of my son's 1st diagnosis - Cerebral Palsy. He ended up having both CF and CP, but the CP diagnosis came 1st and I took it the hardest.When the doctor said the words, my world crashed, the earth ceased revolving, all time stopped. I couldn't hear anything else the doctor was saying because my ears wouldn't work - the doctor was talking and I remember seeing his mouth move, but I wasn't registering a word he said. Waves of nausea kept coming over me, but I never actually threw up. So in short, I was absolutely devastated and could barely walk out of the room let alone drive home and spent the better part of the next three months crying non-stop.Now flash forward to this website where we freely tell people that yeah, your kid probably has CF. When I see that I imagine that OP reading it and crumbling into a ball on the floor with tears streaming down their face. Does anyone else feel that maybe we're a little too quick to make the "diagnosis" or is it just me?And I'm not responding to any post in particular, it's just a feeling that I've had for a while and thought to post it tonight.
When a new parent comes on here asking about our opinions on whether their child has CF or not, I always cringe a little. The reason I cringe is that I remember vividly the overwhelming emotion that happened when I was told of my son's 1st diagnosis - Cerebral Palsy. He ended up having both CF and CP, but the CP diagnosis came 1st and I took it the hardest.When the doctor said the words, my world crashed, the earth ceased revolving, all time stopped. I couldn't hear anything else the doctor was saying because my ears wouldn't work - the doctor was talking and I remember seeing his mouth move, but I wasn't registering a word he said. Waves of nausea kept coming over me, but I never actually threw up. So in short, I was absolutely devastated and could barely walk out of the room let alone drive home and spent the better part of the next three months crying non-stop.Now flash forward to this website where we freely tell people that yeah, your kid probably has CF. When I see that I imagine that OP reading it and crumbling into a ball on the floor with tears streaming down their face. Does anyone else feel that maybe we're a little too quick to make the "diagnosis" or is it just me?And I'm not responding to any post in particular, it's just a feeling that I've had for a while and thought to post it tonight.
<p>When a new parent comes on here asking about our opinions on whether their child has CF or not, I always cringe a little. The reason I cringe is that I remember vividly the overwhelming emotion that happened when I was told of my son's 1st diagnosis - Cerebral Palsy. He ended up having both CF and CP, but the CP diagnosis came 1st and I took it the hardest.<p>When the doctor said the words, my world crashed, the earth ceased revolving, all time stopped. I couldn't hear anything else the doctor was saying because my ears wouldn't work - the doctor was talking and I remember seeing his mouth move, but I wasn't registering a word he said. Waves of nausea kept coming over me, but I never actually threw up. So in short, I was absolutely devastated and could barely walk out of the room let alone drive home and spent the better part of the next three months crying non-stop.<p>Now flash forward to this website where we freely tell people that yeah, your kid probably has CF. When I see that I imagine that OP reading it and crumbling into a ball on the floor with tears streaming down their face. Does anyone else feel that maybe we're a little too quick to make the "diagnosis" or is it just me?<p>And I'm not responding to any post in particular, it's just a feeling that I've had for a while and thought to post it tonight.
M
Mommafirst
Guest
I remember when I first came here. My daughter wasn't even diagnosed yet. I was eager for other options, to have hope that we weren't going to get a diagnosis -- and the blunt directness I found was very upsetting, but yet it was a wake up call, one that helped me to mentally accept the diagnosis.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
M
Mommafirst
Guest
I remember when I first came here. My daughter wasn't even diagnosed yet. I was eager for other options, to have hope that we weren't going to get a diagnosis -- and the blunt directness I found was very upsetting, but yet it was a wake up call, one that helped me to mentally accept the diagnosis.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
M
Mommafirst
Guest
I remember when I first came here. My daughter wasn't even diagnosed yet. I was eager for other options, to have hope that we weren't going to get a diagnosis -- and the blunt directness I found was very upsetting, but yet it was a wake up call, one that helped me to mentally accept the diagnosis.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
M
Mommafirst
Guest
I remember when I first came here. My daughter wasn't even diagnosed yet. I was eager for other options, to have hope that we weren't going to get a diagnosis -- and the blunt directness I found was very upsetting, but yet it was a wake up call, one that helped me to mentally accept the diagnosis.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
M
Mommafirst
Guest
I remember when I first came here. My daughter wasn't even diagnosed yet. I was eager for other options, to have hope that we weren't going to get a diagnosis -- and the blunt directness I found was very upsetting, but yet it was a wake up call, one that helped me to mentally accept the diagnosis.
<br />
<br />I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
<br />
<br />I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
<br />
<br />I try very hard to respond to all the posts in the Newly Diagnosed section. I remember the fear, the ambiguity, the unknown of this scary label they were placing on my daughter's medical chart. I'd barely met her, barely formed a relationship with this tiny baby and I was being constrained on my dreams and hopes for her.
<br />
<br />I do think we need to be very sensitive in that board, but I also think its hard not to get hardened. We don't see the people who get released from the CF diagnosis and move on, only the ones who get diagnosed and stick around. We are biased and we are cynical. We've heard the bad news. We've been there. And its pretty easy to allow that cynicism to color our responses to a new parent. I don't think its helpful to give a new parent a false pretty view, anymore that it is helpful to give them a total gloom and doom picture.
I believe that the newly diagnosed section was created so that anyone going in there would be sensitive and gentle. I think when the parents decide to "move" out of that board, they are ready for a little more serious dose of reality, but I think that portion of the board is "sacred" for those people who are still trying to come to grip with the (possible) diagnosis.
I believe that the newly diagnosed section was created so that anyone going in there would be sensitive and gentle. I think when the parents decide to "move" out of that board, they are ready for a little more serious dose of reality, but I think that portion of the board is "sacred" for those people who are still trying to come to grip with the (possible) diagnosis.
I believe that the newly diagnosed section was created so that anyone going in there would be sensitive and gentle. I think when the parents decide to "move" out of that board, they are ready for a little more serious dose of reality, but I think that portion of the board is "sacred" for those people who are still trying to come to grip with the (possible) diagnosis.
I believe that the newly diagnosed section was created so that anyone going in there would be sensitive and gentle. I think when the parents decide to "move" out of that board, they are ready for a little more serious dose of reality, but I think that portion of the board is "sacred" for those people who are still trying to come to grip with the (possible) diagnosis.
I believe that the newly diagnosed section was created so that anyone going in there would be sensitive and gentle. I think when the parents decide to "move" out of that board, they are ready for a little more serious dose of reality, but I think that portion of the board is "sacred" for those people who are still trying to come to grip with the (possible) diagnosis.
MicheleGazelle
New member
I think I tend to not post much in that forum. One problem I have is that my upbeat, optimistic attitude is often perceived as pie-in-the-sky unrealistic expectations. But it's based on actual accomplishments, so I feel like it's very down to earth. Still, I know other people often don't see it that way. (I run into that all over the place, not just in health forums.) I work hard on striking a delicate balance between my own "Yes, it can be done!" attitude and what I know other people believe. The gap is just too large for many people and it winds up being alienating instead of encouraging. When I know I just can't pull it off, I try to keep my big mouth shut. It's hard enough under 'normal' circumstances.
MicheleGazelle
New member
I think I tend to not post much in that forum. One problem I have is that my upbeat, optimistic attitude is often perceived as pie-in-the-sky unrealistic expectations. But it's based on actual accomplishments, so I feel like it's very down to earth. Still, I know other people often don't see it that way. (I run into that all over the place, not just in health forums.) I work hard on striking a delicate balance between my own "Yes, it can be done!" attitude and what I know other people believe. The gap is just too large for many people and it winds up being alienating instead of encouraging. When I know I just can't pull it off, I try to keep my big mouth shut. It's hard enough under 'normal' circumstances.
MicheleGazelle
New member
I think I tend to not post much in that forum. One problem I have is that my upbeat, optimistic attitude is often perceived as pie-in-the-sky unrealistic expectations. But it's based on actual accomplishments, so I feel like it's very down to earth. Still, I know other people often don't see it that way. (I run into that all over the place, not just in health forums.) I work hard on striking a delicate balance between my own "Yes, it can be done!" attitude and what I know other people believe. The gap is just too large for many people and it winds up being alienating instead of encouraging. When I know I just can't pull it off, I try to keep my big mouth shut. It's hard enough under 'normal' circumstances.
MicheleGazelle
New member
I think I tend to not post much in that forum. One problem I have is that my upbeat, optimistic attitude is often perceived as pie-in-the-sky unrealistic expectations. But it's based on actual accomplishments, so I feel like it's very down to earth. Still, I know other people often don't see it that way. (I run into that all over the place, not just in health forums.) I work hard on striking a delicate balance between my own "Yes, it can be done!" attitude and what I know other people believe. The gap is just too large for many people and it winds up being alienating instead of encouraging. When I know I just can't pull it off, I try to keep my big mouth shut. It's hard enough under 'normal' circumstances.
MicheleGazelle
New member
I think I tend to not post much in that forum. One problem I have is that my upbeat, optimistic attitude is often perceived as pie-in-the-sky unrealistic expectations. But it's based on actual accomplishments, so I feel like it's very down to earth. Still, I know other people often don't see it that way. (I run into that all over the place, not just in health forums.) I work hard on striking a delicate balance between my own "Yes, it can be done!" attitude and what I know other people believe. The gap is just too large for many people and it winds up being alienating instead of encouraging. When I know I just can't pull it off, I try to keep my big mouth shut. It's hard enough under 'normal' circumstances.