Dear Barry and Jill,
Yes, my son cultured Norcordia 4 years ago. He was 10 at the time and had had a really terrible year before he cultured it. He had had 3 tune ups in 9 months and in between kept having pnuemonia. I think he had had it for about that long before he cultured it. I have to admit it kind of freaked the CF Dr's out it was unusual for a CF patient to culture it. However, since then they have heard of it more and more. Just a few weeks afterwards it was discussed at the Annual CF conference. Appartently certain 'bugs' hit certain areas. Norcordia is showing up in the Southwest. Where do you live? We do live in th SW. We live in NM.
You are the first person I have talked to that has had a child culture it. I will warn you, I couldn't find anyinformation on it. And what I did find on the internet scared me to death so be careful.
Like I said my Dr's weresurprized they brought in the Infectious Diesease Dr in to consult about what Meds to treat him with. They treated him very aggressively and he got better. He hasn't grown it since They do watch him very close we just finished a tune up last week and they did lots of cultures.
How is your son doing? He's so young it's hard to compare one time to the next. Like I said my son was very sick.
I'll be glad to answer any questions.
Terri
Mom to three 17 w/o CF, 14 w CF, 9 w CF