NTB & Mold...

kbsonner

New member
Well we are in the hospital going on 4 weeks. My son has the NTB bug and also mold now. Has anyone had mold before?? He hasn't responded to all the drug combo's hes been on so we arent going home anytime soon I don't think. Any advise would be great! Kelly
 

kbsonner

New member
Well we are in the hospital going on 4 weeks. My son has the NTB bug and also mold now. Has anyone had mold before?? He hasn't responded to all the drug combo's hes been on so we arent going home anytime soon I don't think. Any advise would be great! Kelly
 

kbsonner

New member
Well we are in the hospital going on 4 weeks. My son has the NTB bug and also mold now. Has anyone had mold before?? He hasn't responded to all the drug combo's hes been on so we arent going home anytime soon I don't think. Any advise would be great! Kelly
 

kbsonner

New member
Well we are in the hospital going on 4 weeks. My son has the NTB bug and also mold now. Has anyone had mold before?? He hasn't responded to all the drug combo's hes been on so we arent going home anytime soon I don't think. Any advise would be great! Kelly
 

kbsonner

New member
Well we are in the hospital going on 4 weeks. My son has the NTB bug and also mold now. Has anyone had mold before?? He hasn't responded to all the drug combo's hes been on so we arent going home anytime soon I don't think. Any advise would be great! Kelly
 

Jane

Digital opinion leader
Yes, Kelly one of my boys had aspergillus (mold) problems as well as the NTM. The docs gave him sporanox for a year which seemed to have helped since his #s are down.

Its too bad they can't find an ABX yet. It took us quite a while too. Trial and error, which is so frustrating. What have they tried?

Have you checked the forum on the NTM site? It is pretty helpful with issues specific to that. Here's the link: <a target=_blank class=ftalternatingbarlinklarge href="http://ntminfo.org/
">http://ntminfo.org/
</a>
Good luck- keep asking questions!
 

Jane

Digital opinion leader
Yes, Kelly one of my boys had aspergillus (mold) problems as well as the NTM. The docs gave him sporanox for a year which seemed to have helped since his #s are down.

Its too bad they can't find an ABX yet. It took us quite a while too. Trial and error, which is so frustrating. What have they tried?

Have you checked the forum on the NTM site? It is pretty helpful with issues specific to that. Here's the link: <a target=_blank class=ftalternatingbarlinklarge href="http://ntminfo.org/
">http://ntminfo.org/
</a>
Good luck- keep asking questions!
 

Jane

Digital opinion leader
Yes, Kelly one of my boys had aspergillus (mold) problems as well as the NTM. The docs gave him sporanox for a year which seemed to have helped since his #s are down.

Its too bad they can't find an ABX yet. It took us quite a while too. Trial and error, which is so frustrating. What have they tried?

Have you checked the forum on the NTM site? It is pretty helpful with issues specific to that. Here's the link: <a target=_blank class=ftalternatingbarlinklarge href="http://ntminfo.org/
">http://ntminfo.org/
</a>
Good luck- keep asking questions!
 

Jane

Digital opinion leader
Yes, Kelly one of my boys had aspergillus (mold) problems as well as the NTM. The docs gave him sporanox for a year which seemed to have helped since his #s are down.

Its too bad they can't find an ABX yet. It took us quite a while too. Trial and error, which is so frustrating. What have they tried?

Have you checked the forum on the NTM site? It is pretty helpful with issues specific to that. Here's the link: <a target=_blank class=ftalternatingbarlinklarge href="http://ntminfo.org/
">http://ntminfo.org/
</a>
Good luck- keep asking questions!
 

Jane

Digital opinion leader
Yes, Kelly one of my boys had aspergillus (mold) problems as well as the NTM. The docs gave him sporanox for a year which seemed to have helped since his #s are down.
<br />
<br />Its too bad they can't find an ABX yet. It took us quite a while too. Trial and error, which is so frustrating. What have they tried?
<br />
<br />Have you checked the forum on the NTM site? It is pretty helpful with issues specific to that. Here's the link: <a target=_blank class=ftalternatingbarlinklarge href="http://ntminfo.org/
">http://ntminfo.org/
</a><br />
<br />Good luck- keep asking questions!
 

kbsonner

New member
Well looks like he is on....Tobi, Lactobacillus, Nystatin, Rifabutin, Ethambutol, Amikacin, Azithromycin, Moxifloxacin, Caspofungin. This is the list the nurse gave me anyway lol. I have had so many people here talking and things have been changed so many times, I don't know what is treating what or for what anymore...
 

kbsonner

New member
Well looks like he is on....Tobi, Lactobacillus, Nystatin, Rifabutin, Ethambutol, Amikacin, Azithromycin, Moxifloxacin, Caspofungin. This is the list the nurse gave me anyway lol. I have had so many people here talking and things have been changed so many times, I don't know what is treating what or for what anymore...
 

kbsonner

New member
Well looks like he is on....Tobi, Lactobacillus, Nystatin, Rifabutin, Ethambutol, Amikacin, Azithromycin, Moxifloxacin, Caspofungin. This is the list the nurse gave me anyway lol. I have had so many people here talking and things have been changed so many times, I don't know what is treating what or for what anymore...
 

kbsonner

New member
Well looks like he is on....Tobi, Lactobacillus, Nystatin, Rifabutin, Ethambutol, Amikacin, Azithromycin, Moxifloxacin, Caspofungin. This is the list the nurse gave me anyway lol. I have had so many people here talking and things have been changed so many times, I don't know what is treating what or for what anymore...
 

kbsonner

New member
Well looks like he is on....Tobi, Lactobacillus, Nystatin, Rifabutin, Ethambutol, Amikacin, Azithromycin, Moxifloxacin, Caspofungin. This is the list the nurse gave me anyway lol. I have had so many people here talking and things have been changed so many times, I don't know what is treating what or for what anymore...
 

beleache

New member
Hi Kelly, I hope they figure out a good combo for Dillon soon.. That's a lot for a little kid to go through.. {{{{{Hugs}}}}} to both of you.. Keep us posted. <img src="i/expressions/heart.gif" border="0"> joni PS i was dxd w/ a NTM bug in march..
 

beleache

New member
Hi Kelly, I hope they figure out a good combo for Dillon soon.. That's a lot for a little kid to go through.. {{{{{Hugs}}}}} to both of you.. Keep us posted. <img src="i/expressions/heart.gif" border="0"> joni PS i was dxd w/ a NTM bug in march..
 

beleache

New member
Hi Kelly, I hope they figure out a good combo for Dillon soon.. That's a lot for a little kid to go through.. {{{{{Hugs}}}}} to both of you.. Keep us posted. <img src="i/expressions/heart.gif" border="0"> joni PS i was dxd w/ a NTM bug in march..
 

beleache

New member
Hi Kelly, I hope they figure out a good combo for Dillon soon.. That's a lot for a little kid to go through.. {{{{{Hugs}}}}} to both of you.. Keep us posted. <img src="i/expressions/heart.gif" border="0"> joni PS i was dxd w/ a NTM bug in march..
 

beleache

New member
Hi Kelly, I hope they figure out a good combo for Dillon soon.. That's a lot for a little kid to go through.. {{{{{Hugs}}}}} to both of you.. Keep us posted. <img src="i/expressions/heart.gif" border="0"> joni PS i was dxd w/ a NTM bug in march..
 
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