I've noticed alot of people asking about diabetes and weight gain and such. It's been my experiance that emphasis has been placed on quantity and not quality of food for CFers. I was just in for a tune up and was getting annoyed with everyone saying "eat, eat, eat". I was about ready to knock the dietician upside the head with her clipboard, and it dawned on me that I needed to ask her specific questions rather than just tune out while she gave me the "high calorie, here are some milk shake recipies" speech. So I thought I'd share my info with everyone. FYI: I was diagnosed @ 5 weeks of age, w/ CFRD about two years ago, and am about 15-20 lbs. underweight. I go to an adult CF clinic at National Jewish Research and Med. Center in Denver. The facility has been rated the #1 respratory hospital in the nation for five years. The dietician I see is a pulmonary dietician who has been there for 12 yrs, and with the CF clinic for 5.A) CFers need a high calorie, high protien, calcium rich diet: there is a simple test that can be done that measures how many calories you burn by just sitting and breathing. You breath into a device for about ten minutes. I reccomend it so that your dietician can give you a number of calories to shoot for specifically for you. *Protien: My dietician reccomends 55-65 grams of protien a day. *Calcium!!!! There is a CF related osteoporosis that is still very new to researchers, but very important to patients. Calcium rich foods also tend to be high in calories. Supplements are very helpful, but do not rely on them. Make sure that your supplement is water souluable. You may need a perscription calcium that is better absorbed. * A, D, E, K,: most of us take these any way, but remember you get better absorbsion if you take them with food, enzymes. Also, if you take two doses, try to seperate them, one in the morning one at night. B) Avoid too many concentrated sweets. Table sugar,Candy, Soda, sweet treats can throw blood sugar out of wack and thus prevent absorbtion of calories, so try to moniter these. Fructose (the sugar in fruit) is way ok, plus you get the benifits of that fruit. THE DAIRY MYTH: some people think that dairy makes mucus thicker. Not true at all. It may make you feel like your throat is coated, but it's not doing anything to your mucus.C) Unsaturated fats are important! There is research to indicate that they enhance the immune system. About %10 of the fats in your daily intake should consist of mono, polyunsaturated fat. D) FLUIDS! You need 1oz of fluid per kilogram of body weight. Fluids can be juices, sports drinks, water, uncaffienated drinks. In the summer when we sweat more often, we loose more sodium and this can be dangerous, Try drinking gatoraid b/c it has sodium in it. E) Eat a Variety of foods. hope this helps. IF anyone wants more info, let me know.Debbie22 yr old w/ CF
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Nutrition! Diet!
- Thread starter anonymous
- Start date
Hi-I'm 21m with CF, doing ok, but finishing up some IV drugs on wensday morning, yepie. My weght has been improving over the past 2 years, I was 124 now 150lbs. But what about drinking beer? calories? good/bad? What do other people do? I drink about 8 beers a week. what do you think?Colin
I have always been told that beer is ok. My dietician even told me she's rather me drink a rich, dark beer with a meal than a soda because the calories are more useful. The only thing to watch for is if you are using inslulin. I have CFRD and have never been told that I couldn't drink, just that I was going to drink alot, like at a party, I shouldn't use my insulin if I have a midnight snack. I use Humalog, fast acting insulin. Also, make sure that your antibiotics don't have an alcohol warning. But as far as calories go, crack open a cold one!Debbie22 yr old w/ CF
As far as beer goes, drink up! I drink a lot of beer and it puts weight on me. I too have diabetes, but can not take insulin with beer. I usually take 1 unit/25-30 grams of carbs, but can not do that with beer for some reason. If I took insulin after a night of drinking beer, 3-8 beers, my blood sugars would be extremely low. Don't know the answer to that one. And I'm glad someone finally agreed with me that dairy does not make you more congested. I drink a lot of milk, especially in my shakes, and know how important dairy is. Drink milk, drink beer!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
Creatine works bets if you are doing SERIOUS training, not just regular exercise. Go with high protien, calories, calcium. FYI: get a bone density test, cf related osteoperosis could limit what is safe for you to do in the gym. It's usually worse in females but better safe than sorry. I have it real bad in my spine and am not supposed to ski this season<img src="i/expressions/face-icon-small-sad.gif" border="0"> or do weight lifting over my head, or any other activity that I could eaisly fracture my spine.Debbie 22 yr old w/ cf
My name is Selina Stevens, I'm 20years old. and I was reading what you guys was wrting. and you was talking about beer. I didnt know that beer could have or make u gian weight. if so what kind? and how many beers. I always thought with all this medicine cf ppl are on are not to drink. you can reply back at selinastevens@alltel.net Please reply
Hello Debbie, I never gained weight since many years i just lose. I live in lebanon so that is a shame because nothing is done right here. My weight is just 43 kg, 156 cm so if you can send me some hints on how to gain weight fastly i'll be thankful(ramiuefa@yahoo.com) Rami 21 W/CF
Hello Debbie, I never gained weight since many years i just lose. I live in lebanon so that is a shame because nothing is done right here. My weight is just 43 kg, 156 cm so if you can send me some hints on how to gain weight fastly i'll be thankful(ramiuefa@yahoo.com) Rami 21 W/CF